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In reply to the discussion: This message was self-deleted by its author [View all]Response to laserhaas (Original post)
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I cannot believe they did surgery and did not diagnose the kidney. WatF is this website?
bettyellen
Feb 2018
#1
From what I can gather, kidney masses in young children are likely cancerous as well.
LisaL
Feb 2018
#87
In the video, the woman says its stage four cancer and that they have no diagnosis-
bettyellen
Feb 2018
#156
Since the mass was large they were preparing the family for the likihood of removal- there is also
bettyellen
Feb 2018
#170
It's a 4 hour drive between Las Vegas and Los Angeles, which would have been faster
pnwmom
Feb 2018
#176
Youre skipping over the part where they get to LA and they still do not want surgery thats been
bettyellen
Feb 2018
#180
They didn't want the open surgery without a biopsy first. And they were shocked to see
pnwmom
Feb 2018
#185
But they didnt want another American doctor. And there was a biopsy done but they claim they still
bettyellen
Feb 2018
#186
I don't blame them for not trusting American doctors after what they'd been put through.
pnwmom
Feb 2018
#188
She lied about what they put her through . They needed to make sure that kid was going to a doctor
bettyellen
Feb 2018
#194
When they talked about taking her home to die is when you trust thats exactly what they might do.
bettyellen
Feb 2018
#211
Its spread to her lungs as they suspected. So any delay in treatment was dangerous. They believe
bettyellen
Feb 2018
#286
The mom delayed it moving to LA, and maybe they were better surgeons there but she didnt want to go
bettyellen
Feb 2018
#351
I think she was upset the cancer might be advanced and demanded proof of cancer
bettyellen
Feb 2018
#353
Its unfortunate those asshole latched on to her and encouraged her to defame the doctors. They
bettyellen
Feb 2018
#355
Yea, I don't think it's good news that they didn't remove the kidney or the tumor when they opened
LisaL
Feb 2018
#198
It seems the mom wanted a guaranteed result before committing to surgery ...
bettyellen
Feb 2018
#214
The other kidney and abdominal wall are inspected and reviewed during the surgery...
Hassin Bin Sober
Feb 2018
#233
The mother is comfortable now with the better care the daughter is getting in LA.
pnwmom
Feb 2018
#237
They wanted to delay biopsy for a third opinion in Mexico. LA was the second opinion.
bettyellen
Feb 2018
#167
I thought it was obvious the mass was so large they felt removal would likely be needed
bettyellen
Feb 2018
#171
And whoever wrote it is lying about the hospital and claiming theyre human trafficking and
bettyellen
Feb 2018
#175
Obviously not, since the UCLA hospital decided not to remove the kidney after all. n/t
pnwmom
Feb 2018
#192
Inoperable? Why? My father had kidney cancer, they diagnosed it, and then removed it.
pnwmom
Feb 2018
#202
She only ran into trouble trying to stop the surgery in LA though. She wanted to go to Mexico.
bettyellen
Feb 2018
#173
The mother was shocked when she got to LA and saw that they had already arranged
pnwmom
Feb 2018
#209
You assume the doctors didnt explain? And that the surgery was successful? Nope and nope.
bettyellen
Feb 2018
#220
Once they had her opened up, there was no reason not to remove the kidney IF she had cancer.
pnwmom
Feb 2018
#221
So you and Mom know better than the surgeons at UCLA and taking the kid home to die is their right?
bettyellen
Feb 2018
#223
No, I don't. But I'm not going to join the pile-on on the mother. The mother did NOT endanger
pnwmom
Feb 2018
#225
No, she isn't. They couldn't have a firm diagnosis till her lungs had been biopsied,
pnwmom
Feb 2018
#229
She said she knew nothing despite the biopsy of her kidney. And thats bullshit.
bettyellen
Feb 2018
#241
I didn't listen to the whole video so I don't know the context, but they were clearly trying to
pnwmom
Feb 2018
#244
She was freaking out based on the shock of what the doctors were telling her. But she was
pnwmom
Feb 2018
#277
Shes got a new fundraiser to stop the hospital from treating the child despite the cancer diagnosis
bettyellen
Feb 2018
#283
For the type of tumor suspected, biopsy isn't advised because it can spread the tumor.
LisaL
Feb 2018
#205
I think it could mean that they decided to just biopsy it. I don't think they saw
pnwmom
Feb 2018
#204
This makes sense based on what I've been reading about childhood kidney cancer.
Hassin Bin Sober
Feb 2018
#89
Thanks for sharing that information. If only their physician had communicated as well. :( n/t
Doremus
Feb 2018
#106
Considering the source, and the fact that the only other report on this story
The Velveteen Ocelot
Feb 2018
#2
They DID get a second opinion and preserved their parental rights. They insisted on proof it
bettyellen
Feb 2018
#21
A biopsy is the first step to determine if there is a malignancy, so I am not understanding the
still_one
Feb 2018
#78
Appreciate the perspective. I didn't follow the links, but within the OPs I didn't see anything
still_one
Feb 2018
#92
Thanks. I will look for it. I assume the pathology report on the removed kidney showed a
still_one
Feb 2018
#93
That may be true, but a pathology report on the removed kidney would have had to be done, and all I
still_one
Feb 2018
#97
The mother is very confused and trying to micromanage or avoid the surgery.
bettyellen
Feb 2018
#165
Stage four means cancer spread to lungs. From what is being claimed, there are spots found on child'
LisaL
Feb 2018
#213
It honestly seemed to be about the costs vs success of treatment. None of us get
bettyellen
Feb 2018
#217
very disturbing but... I think there is more to the story that we aren't getting...
hlthe2b
Feb 2018
#3
It may only SEEM to be arbitrary & capricious... we are not getting the full story.
hlthe2b
Feb 2018
#70
I most certainly would want a 2nd opine before subjecting my child to invasive surgery
laserhaas
Feb 2018
#38
They had the child flown to Los Angeles for a second opinion- a two day delay -
bettyellen
Feb 2018
#61
Yup. Snopes describes it as a "notoriously unreliable" alternative medicine site.
The Velveteen Ocelot
Feb 2018
#14
The article cited accuse them of experimenting on kids and human trafficking, LOL
bettyellen
Feb 2018
#68
It would be nice to think that hospitals never make mistakes, but we know they do.
pnwmom
Feb 2018
#15
There are no other internet hits except linked to this story. I am very skeptical
uppityperson
Feb 2018
#19
WatF does that video tell us? Attention seeking mom doesnt seem focused on her kid at all.
bettyellen
Feb 2018
#22
If that occurs you appeal. You don't deluge the court with bullshit pleadings.
The Velveteen Ocelot
Feb 2018
#118
You brought up Bill Windsor. We get to cross-examine you about him.
The Velveteen Ocelot
Feb 2018
#159
That's not how you deal with a "bad judge." And a judge isn't "bad"
The Velveteen Ocelot
Feb 2018
#119
The complete facts are not known because HIPAA rules prevent the doctors
The Velveteen Ocelot
Feb 2018
#141
Yes, he is. A quick Google search revealed that his thing is suing people.
The Velveteen Ocelot
Feb 2018
#102
When they took her from Nevada hospital to California hospital, they got the second opinion.
LisaL
Feb 2018
#199
They think the second opinion was the same because the doctors were friends
bettyellen
Feb 2018
#290
She says she has no diagnosis and then claims the kid had stage 4 cancer seconds later? She is
bettyellen
Feb 2018
#69
I'm gonna go see if Dennis Gorski, or Steve Novella, has written about this case...
SidDithers
Feb 2018
#109
How nice you've found new conspiracy theories that don't involve Mitt Romney stealing your toys!
tritsofme
Feb 2018
#123
There are so many red flags in the mommy's account of things it's hard to keep them straight...
Hekate
Feb 2018
#230
I'm more sympathetic to her than you are and maybe it's because I used to have to spend
pnwmom
Feb 2018
#242
The initial doctor in LA was a friend of the doctor in NV, and probably influenced by his opinion.
pnwmom
Feb 2018
#258
Those horrible child welfare people got her set up with insurance for the kid, so she didnt have to
bettyellen
Feb 2018
#295
Yes, the parents might have thought of Mexico as a way to pay for care they couldn't afford.
pnwmom
Feb 2018
#296
She was running from help at every turn, sadly she thought she should be micromanaging cancer treat
bettyellen
Feb 2018
#299
Asking to have blood tests done before removing a major organ isn't micro-managing.
pnwmom
Feb 2018
#302
When complained about the scar size, the fact hat hey changed the plan during surgery, and now she
bettyellen
Feb 2018
#303
If it was Wilms, they wouldn't have needed to open her up, because the aim then would have been
pnwmom
Feb 2018
#308
Again, the reason they didn't remove it are very likely not good ones for the child.
LisaL
Feb 2018
#312
That's true. And that's another reason they were better off that the surgery was moved
pnwmom
Feb 2018
#314
Youve probably already read that generally biopsies are dangerous on the type of cancers she had
bettyellen
Feb 2018
#310
She was SMART to doctor shop. It would have been STUPID to have that surgery done in Nevada.
pnwmom
Feb 2018
#315
It would have been stupid for them to let her leave LA when she was shopping for a no surgery
bettyellen
Feb 2018
#316
You appear to be someone who worships at the feet of doctors. I don't. I recognize
pnwmom
Feb 2018
#318
Nope, Im someone who has had family behave like this woman and try to outsmart doctors when she
bettyellen
Feb 2018
#321
Neither of them are national cancer centers. Nevada hospitals rank 46/50 in the country
pnwmom
Feb 2018
#324
The person I was responding to was talking about Nevada hospitals. But her trouble DID
pnwmom
Feb 2018
#329
I understand leaving Nevada for UCLA, but I still see red flags in this story as first presented...
Hekate
Feb 2018
#289
Personal attacks are supposed to be avoided here. I'm going to assume you didn't know that.nt
pnwmom
Feb 2018
#239
This person usually posts about Romney stealing his toys, it's nice to see he has new interests.
tritsofme
Feb 2018
#245
This story is also covered on the "Proof The Bible Is True" site so you know it's legit!
Kaleva
Feb 2018
#127
This situation was apparently resolved more than a week ago, because this was the mother's
pnwmom
Feb 2018
#228
Then if Missouri is middling for hospitals, imagine how bad hospitals in a state ranked 46th must be
pnwmom
Feb 2018
#269
Add that the mom was talking about taking her home to die before the operation and it appears she
bettyellen
Feb 2018
#261
Of course they have a fundraiser and mixed stories on FB- denying they wouldnt allow care while
bettyellen
Feb 2018
#274
Do you believe that if child was released to them to drive, they would for sure show up at the UCLA?
LisaL
Feb 2018
#281
Yes. Because they didn't realize that the surgery had been scheduled till they got there.
pnwmom
Feb 2018
#282
Their FB fundraiser is to get custody and withdraw from treatement. So nope.
bettyellen
Feb 2018
#285
That is NOT what their FB page says. And the treatment for the child has NOT been delayed.
pnwmom
Feb 2018
#287
The fundraiser is called Save Grace AB from UCLA Hospital and its new so....
bettyellen
Feb 2018
#288
The money is for them to fight in court and stop treatment. Thats their FB pitch....
bettyellen
Feb 2018
#284
The real story here is that there is a chance these parents effectively killed their child.
stevenleser
Feb 2018
#297
Insurance likely wouldn't cover transfer because it wouldn't be considered necessary.
LisaL
Feb 2018
#306
My understanding that when child showed up in Nevada, she wasn't signed up for insurance.
LisaL
Feb 2018
#328