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Mon Apr 16, 2018, 07:01 PM

EBV linked to major immune-related diseases.

This is so concerning:
https://medicalxpress.com/news/2018-04-epstein-barr-virus-linked-diseases.html

9 replies, 1072 views

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Reply EBV linked to major immune-related diseases. (Original post)
Laffy Kat Apr 2018 OP
CountAllVotes Apr 2018 #1
Laffy Kat Apr 2018 #2
CountAllVotes Apr 2018 #4
Laffy Kat Apr 2018 #7
marybourg Apr 2018 #3
Laffy Kat Apr 2018 #5
marybourg Apr 2018 #6
Laffy Kat Apr 2018 #8
CountAllVotes Apr 2018 #9

Response to Laffy Kat (Original post)

Mon Apr 16, 2018, 07:17 PM

1. Had a severe case of mononucleosis when 16

I feel like I never really got over it. The fatigue is the same/worse now some 40+ years ago.

Was dx'd w/MS in the mid-1990's.

I believe it is all I can say.



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Response to CountAllVotes (Reply #1)

Mon Apr 16, 2018, 07:28 PM

2. There has been a well-established link between EBV and Burkitt's lymphoma...

Endemic in areas of Africa. My youngest had EBV and one of his best friends had EBV and then Burkitt's, although he's totally cured now. It scares the hell out of me. I've always wondered if that's why I am functionally chronically fatigued to this day. I bet my titers would show EBV antibodies from who know when.

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Response to Laffy Kat (Reply #2)

Mon Apr 16, 2018, 07:46 PM

4. yep

The fatigue I experience every day/all day is the same type of fatigue.

I remember about 2 years after the mono, I was out on a date with a guy who was driving a brand new flashy car.

I remember driving by a sign for a motel and I just wanted to go home and go to sleep.

Normally, this would be a big deal at that age. You'd be excited or something it would seem. However, I was to tired to care.

Today it is no different. It is such a struggle to get things done.

As for other people, they just do not quite get it.

That is perhaps one of the worst aspect of this illness. Others think you look "just fine". Little do they know how much many of us suffer.

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Response to CountAllVotes (Reply #4)

Mon Apr 16, 2018, 07:58 PM

7. Totally understand! I'm the same way.

I know exactly when it hit me and it was right after the birth of my second baby. I had a real sore throat, although the doctor said my throat wasn't even red, and then I became exhausted. Eventually he diagnosed me with CFS. I'm better now. I work, I go out, I have friends, but I'm not nearly as active as I used to be. I'm always amazed over how much other people get done. Little things take everything I have. And, you're right, other people just don't get it.

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Response to Laffy Kat (Original post)

Mon Apr 16, 2018, 07:30 PM

3. I have 2 of them.

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Response to marybourg (Reply #3)


Response to Laffy Kat (Reply #5)

Mon Apr 16, 2018, 07:54 PM

6. The 7 immune-related diseases.

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Response to marybourg (Reply #6)

Mon Apr 16, 2018, 07:59 PM

8. Oh, I thought you were talking about "titers" as a word play.

So sorry! Do you want me to delete that response?

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Response to marybourg (Reply #6)

Mon Apr 16, 2018, 08:00 PM

9. ...

Those diseases are: systemic lupus erythematosus (SLE), multiple sclerosis (MS), rheumatoid arthritis (RA), juvenile idiopathic arthritis (JIA), inflammatory bowel disease (IBD), celiac disease, and type 1 diabetes. Combined, these seven diseases affect nearly 8 million people in the U.S.

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