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Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsAshley X "treatment" starts to catch on, complete with "pillow angels quality of life support group"
No. Not the Onion. If only...
http://www.guardian.co.uk/society/2012/mar/15/ashley-treatment-rise-amid-concerns
Five years ago details first emerged of Ashley, a nine-year-old girl living near Seattle. She was born with developmental disabilities that meant she was unable to talk or walk, and continues to have the cognitive ability of an infant.
Ashley's parents, together with doctors at Seattle children's hospital, devised a cocktail of medical interventions to keep her from growing any further. Dubbed the "Ashley treatment", the procedure was born out of the conviction that Ashley's quality of life would improve as it would spare her physical discomfort and pain.
The core of the treatment was hormone therapy: high estrogen doses to bring forward the closure of the growth plates in her bones, which would in turn stop her growing. In addition, surgical interventions included removal of her nascent breast buds to avoid the discomfort of fully-formed breasts later in life, and a hysterectomy to avoid menstruation....
"This is a violation of the civil rights of individuals, and it should be prohibited," Decker said. "Parents have rationalised that this is an OK thing to do, but it treats people as though they have no worth and that's a slippery slope that could end with the idea that people with disabilities don't have to be kept alive or integrated in society."
Surprisingly, the Guardian failed to mention that one of the parents' rationalizations for this was to keep Ashley from being raped by a caregiver in the future (this happens more often than you think)! O rly? We mutilate people to keep other people* from raping them?
hifiguy
(33,688 posts)Creepy.
What is the life expectancy of these kids anyway? Will they live to be adults after this "treatment"?
pnwmom
(108,977 posts)I wouldn't presume to judge these parents.
Some decisions are best left to the families and their doctors.
lumberjack_jeff
(33,224 posts)1) does this improve her quality of life?
2) should parents be empowered to make decisions of this magnitude on her behalf?
IMO, the answer to question 1 is yes.
The answer to question 2 is that parents should be able to request it, subject to approval by the hospital ethics panel and the court (if necessary).
I know a family who had a hysterectomy performed on their 20 year old daughter with severe CP for a couple of reasons. I don't find any fault with their decision.
And yes, it is part of a slippery slope, but she is and always will be unable to make her own decisions, and there's no reason to believe that whoever is empowered to make those decisions on her behalf after the parents die will better represent her interests.