HomeLatest ThreadsGreatest ThreadsForums & GroupsMy SubscriptionsMy Posts
DU Home » Latest Threads » Forums & Groups » Main » General Discussion (Forum) » Hope is the Thing with Fe...

Sat Sep 2, 2023, 02:39 PM

Hope is the Thing with Feathers

I wanted to wait this time, not preempt a a Good News story before it was fully hatched.

Cassandra's received her liver transplant Thursday evening. Surgery finished up before the sun rose Friday.

No sooner had her parents returned to Philly, exhausted, thoroughly bummed out, that they got the phone call.

Another liver was available, a five-year old donor.

There's tragedy mixed with this miracle, of course, because another child died, a little boy, in order to provide this spectacular gift. For Cassandra, a pediatric transplant is the next best thing to a living donor.

The surgeons were very happy. Not only did the surgery proceed without a hitch but Cassandra had clean margins (no evidence of cancer) around the liver or lungs. Not anywhere.

The journey isn't done. Cassandra is in a medically-induced coma until Monday to give her body a chance to rest and heal. Weirdly enough, physicians did the same thing to her father after his traumatic brain injury 20+ years ago. She'll be closely monitored for infection and rejection or any other mishap.

I am completely humbled by the donor family. I raised little boys, can easily remember them at age five. I'm not sure I would have had the strength or grace to offer my child's organs while steeped in profound grief.

But this family did.

My daughter-in-law is committed to remembering this little boy as if he were one of our own. He'll be part of Cassandra and the rest of us, another child to cherish and remember.



52 replies, 1951 views

Reply to this thread

Back to top Alert abuse

Always highlight: 10 newest replies | Replies posted after I mark a forum
Replies to this discussion thread
Arrow 52 replies Author Time Post
Reply Hope is the Thing with Feathers (Original post)
peggysue2 Sep 2 OP
Hekate Sep 2 #1
peggysue2 Sep 2 #11
CaliforniaPeggy Sep 2 #2
peggysue2 Sep 2 #13
Bayard Sep 2 #3
peggysue2 Sep 2 #14
Deuxcents Sep 2 #4
peggysue2 Sep 2 #15
Solly Mack Sep 2 #5
peggysue2 Sep 2 #16
electric_blue68 Sep 2 #6
peggysue2 Sep 2 #18
electric_blue68 Sep 2 #24
lamp_shade Sep 2 #7
peggysue2 Sep 2 #19
thatcrowwoman Sep 2 #8
peggysue2 Sep 2 #20
Lonestarblue Sep 2 #9
peggysue2 Sep 2 #22
spanone Sep 2 #10
peggysue2 Sep 2 #23
spanone Sep 2 #45
Cha Sep 2 #12
peggysue2 Sep 2 #28
Cha Sep 2 #32
peggysue2 Sep 2 #41
Cha Sep 2 #44
SpamWyzer Sep 2 #17
peggysue2 Sep 2 #29
elleng Sep 2 #21
peggysue2 Sep 2 #30
rurallib Sep 2 #25
peggysue2 Sep 2 #35
calimary Sep 2 #26
peggysue2 Sep 2 #36
calimary Sep 2 #43
Jean Genie Sep 2 #27
peggysue2 Sep 2 #37
MuseRider Sep 2 #31
peggysue2 Sep 2 #38
Karadeniz Sep 2 #33
peggysue2 Sep 2 #39
Hope22 Sep 2 #34
peggysue2 Sep 2 #40
Ms. Toad Sep 2 #42
peggysue2 Sep 2 #47
Faux pas Sep 2 #46
peggysue2 Sep 2 #50
a kennedy Sep 2 #48
peggysue2 Sep 2 #51
haele Sep 2 #49
peggysue2 Sep 2 #52

Response to peggysue2 (Original post)

Sat Sep 2, 2023, 02:45 PM

1. 💕💕💕💕💕💕💕💕💕💕💕💕

Love and hope to you all

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Hekate (Reply #1)

Sat Sep 2, 2023, 04:27 PM

11. Thanks, Hekate!

The whole thing has been pretty incredible. The number of healthy, available livers is low to begin with, but a pediatric liver (one that meets all the criteria) is very hard to find.

As a family we will be forever grateful to everyone involved.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 02:51 PM

2. Thank you, my dear peggysue2, for this amazing and wonderful news! ♥

Reply to this post

Back to top Alert abuse Link here Permalink


Response to CaliforniaPeggy (Reply #2)

Sat Sep 2, 2023, 04:29 PM

13. Oh thank you, Peggy!

Giving updates is the very least I can do after all the support received from our DU family.

You guys, rock!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 02:51 PM

3. Glad everything went well for your family

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Bayard (Reply #3)

Sat Sep 2, 2023, 04:32 PM

14. Me too, Bayard

This has been a true rollercoaster ride as is often the case with catastrophic illness or injury. I've been on this road before. It never gets easier.

Thanks for the good wishes.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 02:57 PM

4. One family's heart break is another family's miracle

Thanks to unconditional love, medicine, science and technology. It’s wonderful what can be done now but the real reason is the grieving family’s gift to save a life(s). I’m sure this little boy will be remembered and celebrated by both families and I hope the message will help others to talk about the “what if it happens to us” and be donors if that day ever comes. Peggysue, my heart melted when I read your post and hopefully, Cassandra will recover and live a healthy and happy life. 🌺

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Deuxcents (Reply #4)

Sat Sep 2, 2023, 04:36 PM

15. Big thank you for that, Deuxcents

I suspect this little boy will be celebrated by several families, all gifted as we were. A friend of my daughter-in-law referred to the donation as a tragic miracle.

That about sums it up.

Appreciate the words and good wishes.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 03:03 PM

5. Hoping for the best.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Solly Mack (Reply #5)

Sat Sep 2, 2023, 04:37 PM

16. The more hope and good wishes the better, Solly Mack

They've been working like a charm thus far.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 03:40 PM

6. May she stay compatible with her new liver, be infection-free, never be subjected to any cancer...

ever again, living a healthy, long life!
🤞🤞🤞🤞🤞

Reply to this post

Back to top Alert abuse Link here Permalink


Response to electric_blue68 (Reply #6)

Sat Sep 2, 2023, 04:41 PM

18. That's what we're hoping for, electric blue

This was her last, best chance. So many things could have gone wrong but didn't.

It's renewed my faith that all things are possible. I'd been wobbling badly over the last few weeks. This turned me around.

Thanks for the good wishes!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Reply #18)

Sat Sep 2, 2023, 04:49 PM

24. YW




Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 03:43 PM

7. Thank you for continuing to keep us posted.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to lamp_shade (Reply #7)

Sat Sep 2, 2023, 04:42 PM

19. Ahhh, you're welcome, lamp_shade

Makes me happy to do it!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 03:56 PM

8. Sending love and hugs and sweet Shalom, peace be with you all.🩵💫🕊

🕊thatcrowwoman

Reply to this post

Back to top Alert abuse Link here Permalink


Response to thatcrowwoman (Reply #8)

Sat Sep 2, 2023, 04:43 PM

20. Thanks so much, crowwoman

I'll take that to heart.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 04:23 PM

9. Wishing you all the very best.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Lonestarblue (Reply #9)

Sat Sep 2, 2023, 04:45 PM

22. Thank you, lonestarblue

The family's feeling optimistic. At last!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 04:24 PM

10. 👍🏼...K&R...👍🏼

Reply to this post

Back to top Alert abuse Link here Permalink


Response to spanone (Reply #10)

Sat Sep 2, 2023, 04:46 PM

23. Thank you for that, spanone!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Reply #23)

Sat Sep 2, 2023, 07:09 PM

45. 🥰

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 04:28 PM

12. Ohh PeggySue.. I'm so grateful 🤷‍♀️💕

That Cassandra received her liver transplant and that the little boy whole liver was donated is being honored by your family.

Hope is the thing with feathers.. the Power of Hope!

“Hope” is the thing with feathers -

That perches in the soul -

And sings the tune without the words -

And never stops - at all -

And sweetest - in the Gale - is heard -

And sore must be the storm -

That could abash the little Bird

That kept so many warm -

I’ve heard it in the chillest land -

And on the strangest Sea -

Yet - never - in Extremity,

It asked a crumb - of me.

Emily Dickenson

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Cha (Reply #12)

Sat Sep 2, 2023, 05:03 PM

28. I love Emily Dickinson

I've always loved this poem. I discovered it as a teenager. Wasn't sure why I liked it but it always made me smile. I rediscovered it as an undergraduate, later still as a mother myself. I couldn't know as a 16 year old or later as a 20-something or later still as a 30-something mother of small kids that my future granddaughter was running through those lines:

The tune without the words; the little Bird, determined, refusing to be silent while providing warmth in the chilliest land, asking nothing in return

And now there's another child skipping through those words.

Astonishing! Gives me chills thinking about it.

Thanks for putting the poem up, Cha!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Reply #28)

Sat Sep 2, 2023, 05:13 PM

32. You're Welcome, PeggySue..

It's wonderful you loved this poem by Emily Dickenson so early in life.. and it beautifully applies to your granddaughter and I would imagine you son 20 years earlier.

I just heard about it in one of my Hallmark movies and didn't investigate it.

Then I see you referencing it and I looked it up and read the poem. It's definitely something I can strongly relate to in spite of eveything.

So Thank You

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Cha (Reply #32)

Sat Sep 2, 2023, 05:50 PM

41. Yeah, the poem has something of a magical draw to it

It speaks to something we all know or think we know, and it's open enough to find other, more personal interpretations.

I love when that happens. LOL. Glad you enjoyed it.

To Miss Emily.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Reply #41)

Sat Sep 2, 2023, 06:54 PM

44. Well said! And, to Miss Emily..

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 04:40 PM

17. I am

crying.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to SpamWyzer (Reply #17)

Sat Sep 2, 2023, 05:07 PM

29. I was crying, too, SpamWyzer

The whole experience has been wrenching but the child donor did me in. I tear up every time I think or write on it.

Nothing short of awe-inspiring.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 04:44 PM

21. "Hope" is the thing with feathers BY EMILY DICKINSON

“Hope” is the thing with feathers -
That perches in the soul -
And sings the tune without the words -
And never stops - at all -

And sweetest - in the Gale - is heard -
And sore must be the storm -
That could abash the little Bird
That kept so many warm -

I’ve heard it in the chillest land -
And on the strangest Sea -
Yet - never - in Extremity,
It asked a crumb - of me.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to elleng (Reply #21)

Sat Sep 2, 2023, 05:08 PM

30. That's the One, elleng!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 04:52 PM

25. Organ donation - the greatest gift

Knowing that the organs of a loved one will now be used to keep someone else alive must be a great comfort that loved one dies. Like others on here, I too am crying right now both for Cassandra and for the family that gifted her with the greatest gift.

This is such a great story - it just has to end well.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to rurallib (Reply #25)

Sat Sep 2, 2023, 05:30 PM

35. It Just Has to End Well

That's where I've landed, rurallib. Not that there are any guarantees out there but my faith in a good outcome really has been renewed within the last week.

I've done my share of crying but the few details we have on the child donor literally brought me to my knees.

Thanks for the note!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 05:01 PM

26. It's the ultimate gift.

Love, and sacrifice and love.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to calimary (Reply #26)

Sat Sep 2, 2023, 05:34 PM

36. It really is the ultimate gift, calimary

Humbling in nature.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Reply #36)

Sat Sep 2, 2023, 06:32 PM

43. Btw - so considerate of you to take the time to answer every post here.

I know you're already carrying some emotional extra weight. Thanks for being - well - YOU.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 05:01 PM

27. heart-wrenching

Whenever we think our life is tough, overwhelming, painful, let us pause to think of Cassandra, her family, and especially of the parents of the little boy who so generously gave a piece of their own beloved child, so that some other child might live. There's a special place in heaven for all of you.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Jean Genie (Reply #27)

Sat Sep 2, 2023, 05:39 PM

37. Awwww. Thank you for that, Jean Genie

Not so sure I'm heaven material but I know Cassandra and this little boy truly are. And the parents in both families for their faith, strength and grace.

The story continues.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 05:12 PM

31. Such very good news.

I had been wondering but knowing you would post soon. So far so good and it sounds like the possibility is a good one. Rest up, they have a long road and will need you. I am so happy you got this news.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to MuseRider (Reply #31)

Sat Sep 2, 2023, 05:42 PM

38. It does sound and feel good, MuseRider

I'm far more encouraged than I was a few short weeks ago. And yes, the story and the long road continue.

But we're getting there.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 05:26 PM

33. So wonderful... my eyes are wet!!!!!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Karadeniz (Reply #33)

Sat Sep 2, 2023, 05:43 PM

39. Yours and mine both, Karadeniz

Incredible journey!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 05:27 PM

34. My heart goes out to all of you!

Sending love to both of your families. 💗💗💗💗🙏🏼💐

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Hope22 (Reply #34)

Sat Sep 2, 2023, 05:44 PM

40. Appreciate the kind words and thoughts, Hope22

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 06:32 PM

42. It's weird how it happens that way.

You wait, and wait, and wait - and the first liver falls through - and almost immediately a second arrives.

If you've been around your granddaughter recently, she may have noticed she was orange. You'll be amazed at how quickly the orange disappears (it may have already).

I wish her a trouble-free recovery. But there will likely be glitches - just remember that rejection is almost always easily overcome by adjusting medications. My littlest liver transplant buddy received a new liver shortly after birth and is now 14. He's had occasional rejection scares - but mostly is just your normal adventurous kid.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Ms. Toad (Reply #42)

Sat Sep 2, 2023, 07:38 PM

47. Appreciate the heads up, Ms Toad

The rejection factor is something we saw first hand with my brother-in-law's lung transplant. For him, the struggle was too much. He died this past March having only a year extension to his life, and frankly, a lot of suffering. My brother-in-law was 72 and had had by-pass surgery before the lung transplant. I was surprised the second hospital accepted him into the program. But they did and he was gung-ho. It just didn't work out.

We're all hoping Cassandra's young age and incredible stamina will prove to be an asset. It's taken her this far, so hopefully it continues.

Thanks for the note.

PS: Yes, the timing on this was very strange. In a good way!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 07:22 PM

46. Kickin' & Rec'n

HALLELUJAH

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Faux pas (Reply #46)

Sat Sep 2, 2023, 09:55 PM

50. Hallelujah indeed, Faux pas

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 07:44 PM

48. AND THIS....this 5 year old donor will contribute to a life. A life of remembrance, a life of living.

How awesome is his family for giving their boys life to another human being. ♥️ ♥️ ♥️ ♥️ ♥️ there really is a higher being for them to do this.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to a kennedy (Reply #48)

Sat Sep 2, 2023, 10:00 PM

51. I still haven't wrapped my head around what this family offered

Not in a moment of profound loss and grief. It's almost too much to expect anyone to do with a child this young.

And yet, they did.

Forever grateful.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to peggysue2 (Original post)

Sat Sep 2, 2023, 09:29 PM

49. Hope and love to both families.

Glad to hear about your granddaughter, sad to hear about the little boy's family. We are all stardust in the give and take of the universe.

Haele

Reply to this post

Back to top Alert abuse Link here Permalink


Response to haele (Reply #49)

Sat Sep 2, 2023, 10:05 PM

52. Thank you, Haele

The child donor is indeed a sad event. For Cassandra, this donation was the greatest gift of all. Our family will remember this small boy in our quiet moments and our joy.

Reply to this post

Back to top Alert abuse Link here Permalink

Reply to this thread