Sat Sep 2, 2023, 02:39 PM
peggysue2 (10,244 posts)
Hope is the Thing with Feathers
I wanted to wait this time, not preempt a a Good News story before it was fully hatched.
Cassandra's received her liver transplant Thursday evening. Surgery finished up before the sun rose Friday. No sooner had her parents returned to Philly, exhausted, thoroughly bummed out, that they got the phone call. Another liver was available, a five-year old donor. There's tragedy mixed with this miracle, of course, because another child died, a little boy, in order to provide this spectacular gift. For Cassandra, a pediatric transplant is the next best thing to a living donor. The surgeons were very happy. Not only did the surgery proceed without a hitch but Cassandra had clean margins (no evidence of cancer) around the liver or lungs. Not anywhere. The journey isn't done. Cassandra is in a medically-induced coma until Monday to give her body a chance to rest and heal. Weirdly enough, physicians did the same thing to her father after his traumatic brain injury 20+ years ago. She'll be closely monitored for infection and rejection or any other mishap. I am completely humbled by the donor family. I raised little boys, can easily remember them at age five. I'm not sure I would have had the strength or grace to offer my child's organs while steeped in profound grief. But this family did. My daughter-in-law is committed to remembering this little boy as if he were one of our own. He'll be part of Cassandra and the rest of us, another child to cherish and remember.
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52 replies, 1951 views
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Author | Time | Post |
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peggysue2 | Sep 2 | OP |
Hekate | Sep 2 | #1 | |
peggysue2 | Sep 2 | #11 | |
CaliforniaPeggy | Sep 2 | #2 | |
peggysue2 | Sep 2 | #13 | |
Bayard | Sep 2 | #3 | |
peggysue2 | Sep 2 | #14 | |
Deuxcents | Sep 2 | #4 | |
peggysue2 | Sep 2 | #15 | |
Solly Mack | Sep 2 | #5 | |
peggysue2 | Sep 2 | #16 | |
electric_blue68 | Sep 2 | #6 | |
peggysue2 | Sep 2 | #18 | |
electric_blue68 | Sep 2 | #24 | |
lamp_shade | Sep 2 | #7 | |
peggysue2 | Sep 2 | #19 | |
thatcrowwoman | Sep 2 | #8 | |
peggysue2 | Sep 2 | #20 | |
Lonestarblue | Sep 2 | #9 | |
peggysue2 | Sep 2 | #22 | |
spanone | Sep 2 | #10 | |
peggysue2 | Sep 2 | #23 | |
spanone | Sep 2 | #45 | |
Cha | Sep 2 | #12 | |
peggysue2 | Sep 2 | #28 | |
Cha | Sep 2 | #32 | |
peggysue2 | Sep 2 | #41 | |
Cha | Sep 2 | #44 | |
SpamWyzer | Sep 2 | #17 | |
peggysue2 | Sep 2 | #29 | |
elleng | Sep 2 | #21 | |
peggysue2 | Sep 2 | #30 | |
rurallib | Sep 2 | #25 | |
peggysue2 | Sep 2 | #35 | |
calimary | Sep 2 | #26 | |
peggysue2 | Sep 2 | #36 | |
calimary | Sep 2 | #43 | |
Jean Genie | Sep 2 | #27 | |
peggysue2 | Sep 2 | #37 | |
MuseRider | Sep 2 | #31 | |
peggysue2 | Sep 2 | #38 | |
Karadeniz | Sep 2 | #33 | |
peggysue2 | Sep 2 | #39 | |
Hope22 | Sep 2 | #34 | |
peggysue2 | Sep 2 | #40 | |
Ms. Toad | Sep 2 | #42 | |
peggysue2 | Sep 2 | #47 | |
Faux pas | Sep 2 | #46 | |
peggysue2 | Sep 2 | #50 | |
a kennedy | Sep 2 | #48 | |
peggysue2 | Sep 2 | #51 | |
haele | Sep 2 | #49 | |
peggysue2 | Sep 2 | #52 |
Response to peggysue2 (Original post)
Sat Sep 2, 2023, 02:45 PM
Hekate (86,498 posts)
1. 💕💕💕💕💕💕💕💕💕💕💕💕
Love and hope to you all
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Response to Hekate (Reply #1)
Sat Sep 2, 2023, 04:27 PM
peggysue2 (10,244 posts)
11. Thanks, Hekate!
The whole thing has been pretty incredible. The number of healthy, available livers is low to begin with, but a pediatric liver (one that meets all the criteria) is very hard to find.
As a family we will be forever grateful to everyone involved. ![]() |
Response to peggysue2 (Original post)
Sat Sep 2, 2023, 02:51 PM
CaliforniaPeggy (147,012 posts)
2. Thank you, my dear peggysue2, for this amazing and wonderful news! ♥
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Response to CaliforniaPeggy (Reply #2)
Sat Sep 2, 2023, 04:29 PM
peggysue2 (10,244 posts)
13. Oh thank you, Peggy!
Giving updates is the very least I can do after all the support received from our DU family.
You guys, rock! ![]() ![]() |
Response to peggysue2 (Original post)
Sat Sep 2, 2023, 02:51 PM
Bayard (20,123 posts)
3. Glad everything went well for your family
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Response to Bayard (Reply #3)
Sat Sep 2, 2023, 04:32 PM
peggysue2 (10,244 posts)
14. Me too, Bayard
This has been a true rollercoaster ride as is often the case with catastrophic illness or injury. I've been on this road before. It never gets easier.
![]() Thanks for the good wishes. |
Response to peggysue2 (Original post)
Sat Sep 2, 2023, 02:57 PM
Deuxcents (13,078 posts)
4. One family's heart break is another family's miracle
Thanks to unconditional love, medicine, science and technology. It’s wonderful what can be done now but the real reason is the grieving family’s gift to save a life(s). I’m sure this little boy will be remembered and celebrated by both families and I hope the message will help others to talk about the “what if it happens to us” and be donors if that day ever comes. Peggysue, my heart melted when I read your post and hopefully, Cassandra will recover and live a healthy and happy life. 🌺
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Response to Deuxcents (Reply #4)
Sat Sep 2, 2023, 04:36 PM
peggysue2 (10,244 posts)
15. Big thank you for that, Deuxcents
I suspect this little boy will be celebrated by several families, all gifted as we were. A friend of my daughter-in-law referred to the donation as a tragic miracle.
That about sums it up. Appreciate the words and good wishes. |
Response to peggysue2 (Original post)
Sat Sep 2, 2023, 03:03 PM
Solly Mack (90,459 posts)
5. Hoping for the best.
Response to Solly Mack (Reply #5)
Sat Sep 2, 2023, 04:37 PM
peggysue2 (10,244 posts)
16. The more hope and good wishes the better, Solly Mack
They've been working like a charm thus far.
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Response to peggysue2 (Original post)
Sat Sep 2, 2023, 03:40 PM
electric_blue68 (13,328 posts)
6. May she stay compatible with her new liver, be infection-free, never be subjected to any cancer...
ever again, living a healthy, long life!
🤞🤞🤞🤞🤞 |
Response to electric_blue68 (Reply #6)
Sat Sep 2, 2023, 04:41 PM
peggysue2 (10,244 posts)
18. That's what we're hoping for, electric blue
This was her last, best chance. So many things could have gone wrong but didn't.
It's renewed my faith that all things are possible. I'd been wobbling badly over the last few weeks. This turned me around. Thanks for the good wishes! ![]() |
Response to peggysue2 (Original post)
Sat Sep 2, 2023, 03:43 PM
lamp_shade (14,630 posts)
7. Thank you for continuing to keep us posted.
Response to lamp_shade (Reply #7)
Sat Sep 2, 2023, 04:42 PM
peggysue2 (10,244 posts)
19. Ahhh, you're welcome, lamp_shade
Makes me happy to do it!
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Response to peggysue2 (Original post)
Sat Sep 2, 2023, 03:56 PM
thatcrowwoman (1,001 posts)
8. Sending love and hugs and sweet Shalom, peace be with you all.🩵💫🕊
🕊thatcrowwoman
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Response to thatcrowwoman (Reply #8)
Sat Sep 2, 2023, 04:43 PM
peggysue2 (10,244 posts)
20. Thanks so much, crowwoman
I'll take that to heart.
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Response to peggysue2 (Original post)
Sat Sep 2, 2023, 04:23 PM
Lonestarblue (8,509 posts)
9. Wishing you all the very best.
Response to Lonestarblue (Reply #9)
Sat Sep 2, 2023, 04:45 PM
peggysue2 (10,244 posts)
22. Thank you, lonestarblue
The family's feeling optimistic. At last!
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Response to peggysue2 (Original post)
Sat Sep 2, 2023, 04:24 PM
spanone (134,459 posts)
10. 👍🏼...K&R...👍🏼
Response to spanone (Reply #10)
Sat Sep 2, 2023, 04:46 PM
peggysue2 (10,244 posts)
23. Thank you for that, spanone!
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Response to peggysue2 (Original post)
Sat Sep 2, 2023, 04:28 PM
Cha (289,566 posts)
12. Ohh PeggySue.. I'm so grateful 🤷♀️💕
That Cassandra received her liver transplant and that the little boy whole liver was donated is being honored by your family.
![]() ![]() Hope is the thing with feathers.. the Power of Hope! ![]() “Hope” is the thing with feathers - That perches in the soul - And sings the tune without the words - And never stops - at all - And sweetest - in the Gale - is heard - And sore must be the storm - That could abash the little Bird That kept so many warm - I’ve heard it in the chillest land - And on the strangest Sea - Yet - never - in Extremity, It asked a crumb - of me. Emily Dickenson |
Response to Cha (Reply #12)
Sat Sep 2, 2023, 05:03 PM
peggysue2 (10,244 posts)
28. I love Emily Dickinson
I've always loved this poem. I discovered it as a teenager. Wasn't sure why I liked it but it always made me smile. I rediscovered it as an undergraduate, later still as a mother myself. I couldn't know as a 16 year old or later as a 20-something or later still as a 30-something mother of small kids that my future granddaughter was running through those lines:
The tune without the words; the little Bird, determined, refusing to be silent while providing warmth in the chilliest land, asking nothing in return And now there's another child skipping through those words. Astonishing! Gives me chills thinking about it. Thanks for putting the poem up, Cha! ![]() |
Response to peggysue2 (Reply #28)
Sat Sep 2, 2023, 05:13 PM
Cha (289,566 posts)
32. You're Welcome, PeggySue..
It's wonderful you loved this poem by Emily Dickenson so early in life.. and it beautifully applies to your granddaughter and I would imagine you son 20 years earlier.
I just heard about it in one of my Hallmark movies and didn't investigate it. Then I see you referencing it and I looked it up and read the poem. It's definitely something I can strongly relate to in spite of eveything. So Thank You ![]() ![]() |
Response to Cha (Reply #32)
Sat Sep 2, 2023, 05:50 PM
peggysue2 (10,244 posts)
41. Yeah, the poem has something of a magical draw to it
It speaks to something we all know or think we know, and it's open enough to find other, more personal interpretations.
I love when that happens. LOL. Glad you enjoyed it. ![]() |
Response to peggysue2 (Reply #41)
Sat Sep 2, 2023, 06:54 PM
Cha (289,566 posts)
44. Well said! And, to Miss Emily..
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Response to peggysue2 (Original post)
Sat Sep 2, 2023, 04:40 PM
SpamWyzer (336 posts)
17. I am
crying.
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Response to SpamWyzer (Reply #17)
Sat Sep 2, 2023, 05:07 PM
peggysue2 (10,244 posts)
29. I was crying, too, SpamWyzer
The whole experience has been wrenching but the child donor did me in. I tear up every time I think or write on it.
Nothing short of awe-inspiring. ![]() |
Response to peggysue2 (Original post)
Sat Sep 2, 2023, 04:44 PM
elleng (125,941 posts)
21. "Hope" is the thing with feathers BY EMILY DICKINSON
“Hope” is the thing with feathers -
That perches in the soul - And sings the tune without the words - And never stops - at all - And sweetest - in the Gale - is heard - And sore must be the storm - That could abash the little Bird That kept so many warm - I’ve heard it in the chillest land - And on the strangest Sea - Yet - never - in Extremity, It asked a crumb - of me. |
Response to elleng (Reply #21)
Sat Sep 2, 2023, 05:08 PM
peggysue2 (10,244 posts)
30. That's the One, elleng!
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Response to peggysue2 (Original post)
Sat Sep 2, 2023, 04:52 PM
rurallib (61,369 posts)
25. Organ donation - the greatest gift
Knowing that the organs of a loved one will now be used to keep someone else alive must be a great comfort that loved one dies. Like others on here, I too am crying right now both for Cassandra and for the family that gifted her with the greatest gift.
This is such a great story - it just has to end well. |
Response to rurallib (Reply #25)
Sat Sep 2, 2023, 05:30 PM
peggysue2 (10,244 posts)
35. It Just Has to End Well
That's where I've landed, rurallib. Not that there are any guarantees out there but my faith in a good outcome really has been renewed within the last week.
I've done my share of crying but the few details we have on the child donor literally brought me to my knees. Thanks for the note! ![]() |
Response to peggysue2 (Original post)
Sat Sep 2, 2023, 05:01 PM
calimary (78,092 posts)
26. It's the ultimate gift.
Love, and sacrifice and love.
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Response to calimary (Reply #26)
Sat Sep 2, 2023, 05:34 PM
peggysue2 (10,244 posts)
36. It really is the ultimate gift, calimary
Humbling in nature.
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Response to peggysue2 (Reply #36)
Sat Sep 2, 2023, 06:32 PM
calimary (78,092 posts)
43. Btw - so considerate of you to take the time to answer every post here.
I know you're already carrying some emotional extra weight. Thanks for being - well - YOU.
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Response to peggysue2 (Original post)
Sat Sep 2, 2023, 05:01 PM
Jean Genie (166 posts)
27. heart-wrenching
Whenever we think our life is tough, overwhelming, painful, let us pause to think of Cassandra, her family, and especially of the parents of the little boy who so generously gave a piece of their own beloved child, so that some other child might live. There's a special place in heaven for all of you.
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Response to Jean Genie (Reply #27)
Sat Sep 2, 2023, 05:39 PM
peggysue2 (10,244 posts)
37. Awwww. Thank you for that, Jean Genie
Not so sure I'm heaven material but I know Cassandra and this little boy truly are. And the parents in both families for their faith, strength and grace.
The story continues. ![]() |
Response to peggysue2 (Original post)
Sat Sep 2, 2023, 05:12 PM
MuseRider (33,849 posts)
31. Such very good news.
I had been wondering but knowing you would post soon. So far so good and it sounds like the possibility is a good one. Rest up, they have a long road and will need you. I am so happy you got this news.
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Response to MuseRider (Reply #31)
Sat Sep 2, 2023, 05:42 PM
peggysue2 (10,244 posts)
38. It does sound and feel good, MuseRider
I'm far more encouraged than I was a few short weeks ago. And yes, the story and the long road continue.
But we're getting there. ![]() |
Response to peggysue2 (Original post)
Sat Sep 2, 2023, 05:26 PM
Karadeniz (21,474 posts)
33. So wonderful... my eyes are wet!!!!!
Response to Karadeniz (Reply #33)
Sat Sep 2, 2023, 05:43 PM
peggysue2 (10,244 posts)
39. Yours and mine both, Karadeniz
Incredible journey!
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Response to peggysue2 (Original post)
Sat Sep 2, 2023, 05:27 PM
Hope22 (929 posts)
34. My heart goes out to all of you!
Sending love to both of your families. 💗💗💗💗🙏🏼💐
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Response to Hope22 (Reply #34)
Sat Sep 2, 2023, 05:44 PM
peggysue2 (10,244 posts)
40. Appreciate the kind words and thoughts, Hope22
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Response to peggysue2 (Original post)
Sat Sep 2, 2023, 06:32 PM
Ms. Toad (32,680 posts)
42. It's weird how it happens that way.
You wait, and wait, and wait - and the first liver falls through - and almost immediately a second arrives.
If you've been around your granddaughter recently, she may have noticed she was orange. You'll be amazed at how quickly the orange disappears (it may have already). I wish her a trouble-free recovery. But there will likely be glitches - just remember that rejection is almost always easily overcome by adjusting medications. My littlest liver transplant buddy received a new liver shortly after birth and is now 14. He's had occasional rejection scares - but mostly is just your normal adventurous kid. |
Response to Ms. Toad (Reply #42)
Sat Sep 2, 2023, 07:38 PM
peggysue2 (10,244 posts)
47. Appreciate the heads up, Ms Toad
The rejection factor is something we saw first hand with my brother-in-law's lung transplant. For him, the struggle was too much. He died this past March having only a year extension to his life, and frankly, a lot of suffering. My brother-in-law was 72 and had had by-pass surgery before the lung transplant. I was surprised the second hospital accepted him into the program. But they did and he was gung-ho. It just didn't work out.
We're all hoping Cassandra's young age and incredible stamina will prove to be an asset. It's taken her this far, so hopefully it continues. Thanks for the note. PS: Yes, the timing on this was very strange. In a good way! ![]() |
Response to peggysue2 (Original post)
Sat Sep 2, 2023, 07:22 PM
Faux pas (14,278 posts)
46. Kickin' & Rec'n
HALLELUJAH
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Response to Faux pas (Reply #46)
Sat Sep 2, 2023, 09:55 PM
peggysue2 (10,244 posts)
50. Hallelujah indeed, Faux pas
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Response to peggysue2 (Original post)
Sat Sep 2, 2023, 07:44 PM
a kennedy (28,432 posts)
48. AND THIS....this 5 year old donor will contribute to a life. A life of remembrance, a life of living.
How awesome is his family for giving their boys life to another human being. ♥️ ♥️ ♥️ ♥️ ♥️ there really is a higher being for them to do this.
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Response to a kennedy (Reply #48)
Sat Sep 2, 2023, 10:00 PM
peggysue2 (10,244 posts)
51. I still haven't wrapped my head around what this family offered
Not in a moment of profound loss and grief. It's almost too much to expect anyone to do with a child this young.
And yet, they did. Forever grateful. |
Response to peggysue2 (Original post)
Sat Sep 2, 2023, 09:29 PM
haele (12,214 posts)
49. Hope and love to both families.
Glad to hear about your granddaughter, sad to hear about the little boy's family. We are all stardust in the give and take of the universe.
Haele |
Response to haele (Reply #49)
Sat Sep 2, 2023, 10:05 PM
peggysue2 (10,244 posts)
52. Thank you, Haele
The child donor is indeed a sad event. For Cassandra, this donation was the greatest gift of all. Our family will remember this small boy in our quiet moments and our joy.
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