Fri Oct 5, 2012, 02:52 PM

MANative (3,084 posts)

Just got devastating news - UPDATE

Last edited Sat Oct 6, 2012, 09:25 PM - Edit history (1)

My dear friend and business partner was diagnosed with a liver disease that will take her life in two to three months if she does not have a transplant. She is a 55 year-old single mother of a ten-year-old daughter, and has no health insurance. Her doctor told her that without health insurance, no hospital will allow her to be treated. He told her to go home and get her affairs in order. I'm gutted over this. I've known this wonderful woman for nearly 15 years, and she is smart and kind and as beautiful inside as she is outside. She doesn't deserve this.

UPDATE: "T" and I have been wading through all of your wonderful ideas and suggestions throughout the day, making phone calls, faxing things all over the place, and we have at least three solid things in process thanks to my DU friends. We are actively working on the Obamacare piece, SSI/SSDI, and the Mayo Clinic. She has also scheduled an appointment with another doctor on Tuesday for a second opinion. She was overwhelmed at the level of caring and helpfulness from this community. I told her, of course, that this is what's at the heart of being a Democrat! She and I are both very hopeful that she will now be able to get the care that she needs. She gratefully accepts your warm wishes and hugs, and sends them back with gusto. I'll add mine to that sentiment.

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195 replies	Author	Time	Post
Just got devastating news - UPDATE (Original post)	MANative	Oct 2012	OP
Hugs to you and your friend. (nt)	JaneQPublic	Oct 2012	#1
My thoughts are with her and her daughter.	lpbk2713	Oct 2012	#2
Wouldn't It Be Nice If One Of These Big Money Donors - To Either Party - Would ......	global1	Oct 2012	#3
And that,	theKed	Oct 2012	#8
What makes this horrible beyond the pale is...	MANative	Oct 2012	#10
Wow he won't help the mother of his kids?	dkf	Oct 2012	#63
He probably thinks she deserves it for divorcing his ass.	Ken Burch	Oct 2012	#160
The sadistic ex-hubby is essentially executing his daughter's mother. He is a horrible father.	LonePirate	Oct 2012	#80
Jesus Christ Almighty... Are you able to print out this thread or send otherwise?	MrMickeysMom	Oct 2012	#95
This is why we need real-life versions of the "Leverage" team.	Ken Burch	Oct 2012	#161
Amen to that, just found that show, it's GREAT n/t	calikid	Oct 2012	#172
Don't know the show, personally...	MrMickeysMom	Oct 2012	#189
That is morally equivalent to murder	ashling	Oct 2012	#96
Typical ReTHUG A-Hole	Auntie Bush	Oct 2012	#138
I can't imagine doing that to your own child.	Arugula Latte	Oct 2012	#144
Go public with her husband's name...go to the media with it...SHAME the bastard into decency.	Ken Burch	Oct 2012	#159
We need a 50% "political spending tax"	James48	Oct 2012	#41
Excellent idea!!!!!!!nt	Tumbulu	Oct 2012	#104
I second that. I also think it's doable. nt	Auntie Bush	Oct 2012	#139
Honestly!	hamsterjill	Oct 2012	#50
All I can offer you is a hug	nadinbrzezinski	Oct 2012	#4
I am so sorry to hear this awful news.	CaliforniaPeggy	Oct 2012	#5
I am sorry to hear that.	JRLeft	Oct 2012	#6
I'm so very sorry. What state is she in?	mzmolly	Oct 2012	#7
She's in Florida. We're trying to find her some help through...	MANative	Oct 2012	#14
Have you checked here?	Spitfire of ATJ	Oct 2012	#37
Thanks for the idea - hadn't thought of them, believing them to work outside the US. n/t	MANative	Oct 2012	#39
You could try here too....	Spitfire of ATJ	Oct 2012	#59
Oh, thank you! And this gave me another idea - my sister works for Emory Medical and...	MANative	Oct 2012	#66
Isn't it amazing how we are a lot less alone than we think?	Spitfire of ATJ	Oct 2012	#70
How very sad.	mzmolly	Oct 2012	#79
I only wish SINGLE PAYER were in effect NOW.	area51	Oct 2012	#166
I only wish OBAMACARE were in effect NOW.	mzmolly	Oct 2012	#188
jeebus h christ, so sorry...	K Gardner	Oct 2012	#9
Sorry to hear this, I will keep your friend & her daughter in prayer	skeewee08	Oct 2012	#11
God, I'm so sorry. Try fundraising?	Whovian	Oct 2012	#12
The lack of social morality in our nation is appalling. So sorry. nt	PufPuf23	Oct 2012	#13
My thoughts and prayers are with you and your friend....	Swede Atlanta	Oct 2012	#15
I'm hoping that because she is so young, it will work in her favor in getting help. n/t	MANative	Oct 2012	#35
This should not be a decision about either young or old receiving	crunch60	Oct 2012	#71
Sadly, what "should be" and what "is" are two different things in this country lately.	MANative	Oct 2012	#75
That is very sad.	Jennicut	Oct 2012	#16
That's what we're trying to investigate now. Hoping that we can find a program that will help. n/t	MANative	Oct 2012	#21
I'm sorry for your loss	renate	Oct 2012	#112
Thanks.	Jennicut	Oct 2012	#120
oh, no... that's terrible	renate	Oct 2012	#167
Not to mention the unthinkable	Horse with no Name	Oct 2012	#195
what about the ACA?	barbtries	Oct 2012	#17
From what we understand, the provisions that would have helped her don't take effect	MANative	Oct 2012	#44
all the best	barbtries	Oct 2012	#58
Working on that angle, but not hopeful. He tends to help only with...	MANative	Oct 2012	#60
I thought there were supposed to be catastrophic pools NOW	a2liberal	Oct 2012	#109
There are.	Ms. Toad	Oct 2012	#132
That might be how she can get insurance IF her ex will pay for it	karynnj	Oct 2012	#135
Her ex clearly wants her gone - it's win/win for him	Patiod	Oct 2012	#176
This was a political decision.	girl gone mad	Oct 2012	#173
That is some seriously bad news. Perhaps you could get an article in a news paper, get donations?	Liberal_in_LA	Oct 2012	#18
That's exactly what I was thinking	Iwillnevergiveup	Oct 2012	#148
So sorry!	cilla4progress	Oct 2012	#19
I'm so sorry. Are you in a position to verify or challenge that diagnosis and possible treatments?	Egalitarian Thug	Oct 2012	#20
Exactly what I told her this morning.	MANative	Oct 2012	#27
Thoughts and prayers with you and your friend	beachgirl2365	Oct 2012	#22
I sit here crying knowning a little girl is going to lose her mother and there isn't anything	southernyankeebelle	Oct 2012	#23
I am just aching for her little girl. A complication is that the dad is quite a lot older...	MANative	Oct 2012	#40
Well am 65 and I know I take care of my 6 yr old granddaughter at times. They live next	southernyankeebelle	Oct 2012	#99
Then the daughter should be getting SS benefits if he's 67...	Frustratedlady	Oct 2012	#181
There are times I am ashamed to be an...	99Forever	Oct 2012	#24
Don't cry, get busy. Go online and search her disease and find either	sinkingfeeling	Oct 2012	#25
Working on that, for certain. n/t	MANative	Oct 2012	#31
You would think her M.D. would make it is own personal battle to begin a fight to do something......	busterbrown	Oct 2012	#26
Don't they take an oath or something?	itsrobert	Oct 2012	#91
Their oath is to not cause harm	jsr	Oct 2012	#122
The problem is that most doctors have too many patients	Doctor Jack	Oct 2012	#123
I'm sure you're probably right. I do know that he has...	MANative	Oct 2012	#124
There is a much bigger issue with transplants	Ms. Toad	Oct 2012	#131
Devastating news.	SamKnause	Oct 2012	#28
That is because the cure would take away PROFITS from~~	LovingA2andMI	Oct 2012	#74
Cure	SamKnause	Oct 2012	#162
not really.	Patiod	Oct 2012	#178
This message was self-deleted by its author	darkangel218	Oct 2012	#29
How terrible.	Mad_Dem_X	Oct 2012	#30
Bless your friend, her daughter and herself. She must get on medicaid somehow.	Dont call me Shirley	Oct 2012	#32
I'm so sorry!	LeftofObama	Oct 2012	#33
Awful, awful	MannyGoldstein	Oct 2012	#34
One of the ironies is that she moved to FL less than two months ago, from CT...	MANative	Oct 2012	#36
I just took a look at Mass. Commonwealth Care	MannyGoldstein	Oct 2012	#52
Wow - thank you for this. I'll do some digging into what's here.	MANative	Oct 2012	#57
Very complicated thing to look into, probably	MannyGoldstein	Oct 2012	#64
Yes, I grew up in the Greater New Bedford area, and still have most of my family there.	MANative	Oct 2012	#67
If it helps and this is a consideration, I live in NC and my insurance is Inclusive Health.....	tpsbmam	Oct 2012	#88
I feel your pain	BobbyBoring	Oct 2012	#38
But don't let your friend waste time trying alternatives INSTEAD of western medicine	Patiod	Oct 2012	#179
Devastating.	LoisB	Oct 2012	#42
Good advice. For profit "health" "care" likely DOES tend to rush to prognosis. nt	patrice	Oct 2012	#46
Please accept my apologies, the commoditization of death seems only to make me more angry	patrice	Oct 2012	#43
This makes me so angry I could toss chairs out of windows	DFW	Oct 2012	#45
I hate to ask this question	BigD_95	Oct 2012	#47
Pre-existing condition of another type disqualified her.	MANative	Oct 2012	#49
I figured it was something like that	BigD_95	Oct 2012	#65
too late now but	a2liberal	Oct 2012	#119
You were right in the first place	Ms. Toad	Oct 2012	#133
hmm	a2liberal	Oct 2012	#150
Different portions of HIPAA provide different benefits	Ms. Toad	Oct 2012	#155
Thanks! :) (n/t)	a2liberal	Oct 2012	#194
if she's been uninsured for more than six months...	MrsBrady	Oct 2012	#142
Thoughts and prayers for your friend, her daughter, and you	Catlover827	Oct 2012	#48
That was one of my first thoughts, and we're trying to find out if there is a program. n/t	MANative	Oct 2012	#51
University medical schools do research and they grow all kinds of human cells	DhhD	Oct 2012	#174
My thoughts and prayers are with you and your friend.	Liberalynn	Oct 2012	#53
in most industrialized nations she would be provided with healthcare....god bless the usa	spanone	Oct 2012	#54
I know I'm posting the obvious here, but this is not right.	hamsterjill	Oct 2012	#55
This happens every hour in this brutal country.	RagAss	Oct 2012	#61
I do. I know where I live, thank you.	hamsterjill	Oct 2012	#69
Ohhhh my thoughts and prayers are with you and your friend and families!!!!	onecent	Oct 2012	#56
More stem cell research is needed	DaveJ	Oct 2012	#62
That's another major factor, even if by some miracle she could get coverage or $$ help.	MANative	Oct 2012	#72
Partial transplants are not just for very young.	Ms. Toad	Oct 2012	#127
About 8 years out from being able to grow your own liver -	Ms. Toad	Oct 2012	#134
Absolutely	Patiod	Oct 2012	#180
nt.	Johnny Noshoes	Oct 2012	#68
Just a thought	chloes1	Oct 2012	#73
Not sure if that would help, because from what my friend was told, the decision...	MANative	Oct 2012	#77
Obamacare can help! Now!	MoonchildCA	Oct 2012	#76
Oh my God, Bless you! As much as I thought I knew about ACA, I was sure that the	MANative	Oct 2012	#78
Also, contact Social Security Admin and ask about Compassionate Allowances	Emit	Oct 2012	#82
WOW, just WOW, I sure do hope this is true and your friend gets help.	GumboYaYa	Oct 2012	#89
I thought 2014 was the date. But upon further research I found information on a "bridge." Here:	mzmolly	Oct 2012	#90
This is a bridge program	MoonchildCA	Oct 2012	#92
Thank you so much for providing this life saving information.	myrna minx	Oct 2012	#84
Here is the link for the PCIP plans	Ms. Toad	Oct 2012	#128
well, that's a heck of a way to make a (almost) debut on DU!	renate	Oct 2012	#114
I am so very sorry. My thoughts are with her.	bluerum	Oct 2012	#81
THANK YOU so much, everyone, for your kind words and your ideas.	MANative	Oct 2012	#83
We're all here in full support of the two of you.	myrna minx	Oct 2012	#86
Have her get a second opinion!	proReality	Oct 2012	#85
I Suggest This Protocol and this Website	triplepoint	Oct 2012	#87
don't give up, here call the phone numbers on the pre existing condition Gov site	Sunlei	Oct 2012	#93
you need to get this on the news.	okieinpain	Oct 2012	#94
Can she get help by way of Obamacare?	marezdotes	Oct 2012	#97
She needs to apply for Social Security Disability right now; she'll be immediately Medicare eligible	REP	Oct 2012	#98
Contact Social Security Admin and ask about Compassionate Allowances	Emit	Oct 2012	#100
What about medicaid? Isn't there something that could get her on the donor list?	glowing	Oct 2012	#101
More on Obamacare	MoonchildCA	Oct 2012	#102
Thank you again, MoonchildCA.	MANative	Oct 2012	#121
Have her move to either Massachusetts or possibly Vermont	jerseygal	Oct 2012	#103
I'm so sorry. I hope the comments here	Ilsa	Oct 2012	#105
Another idea is the Mayo Clinic in Jacksonville	Lifelong Protester	Oct 2012	#106
The Repubs idea of "death panels" regarding Obamacare	GaelicWench	Oct 2012	#107
Am so very sorry with this news. so, so sorry.	secondwind	Oct 2012	#108
Her doctor is a scumsucking fuck	DainBramaged	Oct 2012	#110
Yeah, this has been one of the most distressing elements of this whole ordeal.	MANative	Oct 2012	#117
A second opinion is essential	catchnrelease	Oct 2012	#130
Hugs to you, your friend, and her precious daughter	catbyte	Oct 2012	#111
This should not be happening in the richest country in the world!	Third Doctor	Oct 2012	#113
Do tell her to contact SS and Medicaid to see if they can help.	ProfessionalLeftist	Oct 2012	#115
if nothing else, maybe your friend's ex can be persuaded to pay up...	renate	Oct 2012	#116
I will give the ex credit for one thing: he does love his daughter, BUT...	MANative	Oct 2012	#118
Since he is paying child support, it seems as if Medicaid could go after him.	freshwest	Oct 2012	#125
If neither of you has tried this yet,	mwblueyarn	Oct 2012	#126
If she has been without health insurance for 6 months	Ms. Toad	Oct 2012	#129
Is that $100,000 for Rx after PCIP?	dkf	Oct 2012	#154
Different issues	Ms. Toad	Oct 2012	#156
I guess it's a matter of practicality to make sure a transplant recipient can pay for their care.	dkf	Oct 2012	#164
I absolutely agree about single payer -	Ms. Toad	Oct 2012	#182
It broke my heart when I heard that kids in foster care sometimes are ruled Ineligible	dkf	Oct 2012	#186
It isn't an absolute ineligibility -	Ms. Toad	Oct 2012	#187
Get her signed up for the PCIP plan IMMEDIATELY.	kestrel91316	Oct 2012	#136
+1 PCIP is in effect now! n/t	MrsBrady	Oct 2012	#143
Yes. And it is easy to get in to	MoonchildCA	Oct 2012	#157
^^^This.	Chorophyll	Oct 2012	#175
Such sad news...	sendero	Oct 2012	#137
Call around to hospitals	tblue	Oct 2012	#140
:(	Catherine Vincent	Oct 2012	#141
Oh my Lord that is so heart-breaking. Prayers for all. n/t	DebJ	Oct 2012	#145
K&R Free health care for all....	midnight	Oct 2012	#146
May you and your friend be blessed with good fortune.	waterwatcher123	Oct 2012	#147
I wish I had more to offer besides my heartfelt sympathy	BlancheSplanchnik	Oct 2012	#149
Try Masons and Shriners	Pathos1503	Oct 2012	#151
Good suggestions.	Indpndnt	Oct 2012	#153
Senator John Kerry	Savannahmann	Oct 2012	#152
Go to the media...NOW(especially any tv in your area)	Ken Burch	Oct 2012	#158
that is heartbreaking news	lillypaddle	Oct 2012	#163
MANative	littlemissmartypants	Oct 2012	#165
This is a pre-existing condition. Can't she get insurance now under Obamacare? Special	juajen	Oct 2012	#168
Wishing You and Your Friend Good Fortune	waterwatcher123	Oct 2012	#169
Damn	grr8wine	Oct 2012	#170
Coming to this thread late, after so many other great suggestions upthread.	riderinthestorm	Oct 2012	#171
I left my Ex 30 years ago	Plucketeer	Oct 2012	#177
I am overwhelmed by your thoughtful responses.	MANative	Oct 2012	#183
Have you looked into this	Sekhmets Daughter	Oct 2012	#184
Maybe she could run away to Canada?	libodem	Oct 2012	#185
Kick for update and thanks n/t	MANative	Oct 2012	#190
Wonderful thread, great responses. It kind of struck me that this is not quite what Palin thought	grantcart	Oct 2012	#191
Anything that discredits that pitbull with lipstick is A-okay in my book!	MANative	Oct 2012	#192
hugs, vibes, and prayers	GreenPartyVoter	Oct 2012	#193

Response to MANative (Original post)

Fri Oct 5, 2012, 02:55 PM

JaneQPublic (5,385 posts)

Just got devastating news - UPDATE

1. Hugs to you and your friend. (nt)

2. My thoughts are with her and her daughter.

3. Wouldn't It Be Nice If One Of These Big Money Donors - To Either Party - Would ......

8. And that,

10. What makes this horrible beyond the pale is...

63. Wow he won't help the mother of his kids?

160. He probably thinks she deserves it for divorcing his ass.

80. The sadistic ex-hubby is essentially executing his daughter's mother. He is a horrible father.

95. Jesus Christ Almighty... Are you able to print out this thread or send otherwise?

161. This is why we need real-life versions of the "Leverage" team.

172. Amen to that, just found that show, it's GREAT n/t

189. Don't know the show, personally...

96. That is morally equivalent to murder

138. Typical ReTHUG A-Hole

144. I can't imagine doing that to your own child.

159. Go public with her husband's name...go to the media with it...SHAME the bastard into decency.

41. We need a 50% "political spending tax"

104. Excellent idea!!!!!!!nt

139. I second that. I also think it's doable. nt

50. Honestly!

4. All I can offer you is a hug

5. I am so sorry to hear this awful news.

6. I am sorry to hear that.

7. I'm so very sorry. What state is she in?

14. She's in Florida. We're trying to find her some help through...

37. Have you checked here?

39. Thanks for the idea - hadn't thought of them, believing them to work outside the US. n/t

59. You could try here too....

66. Oh, thank you! And this gave me another idea - my sister works for Emory Medical and...

70. Isn't it amazing how we are a lot less alone than we think?

79. How very sad.

166. I only wish SINGLE PAYER were in effect NOW.

188. I only wish OBAMACARE were in effect NOW.

9. jeebus h christ, so sorry...

11. Sorry to hear this, I will keep your friend & her daughter in prayer

12. God, I'm so sorry. Try fundraising?

13. The lack of social morality in our nation is appalling. So sorry. nt

15. My thoughts and prayers are with you and your friend....

35. I'm hoping that because she is so young, it will work in her favor in getting help. n/t

71. This should not be a decision about either young or old receiving

75. Sadly, what "should be" and what "is" are two different things in this country lately.

16. That is very sad.

21. That's what we're trying to investigate now. Hoping that we can find a program that will help. n/t

112. I'm sorry for your loss

120. Thanks.

167. oh, no... that's terrible

195. Not to mention the unthinkable

17. what about the ACA?

44. From what we understand, the provisions that would have helped her don't take effect

58. all the best

60. Working on that angle, but not hopeful. He tends to help only with...

109. I thought there were supposed to be catastrophic pools NOW

132. There are.

135. That might be how she can get insurance IF her ex will pay for it

176. Her ex clearly wants her gone - it's win/win for him

173. This was a political decision.

18. That is some seriously bad news. Perhaps you could get an article in a news paper, get donations?

148. That's exactly what I was thinking

19. So sorry!

20. I'm so sorry. Are you in a position to verify or challenge that diagnosis and possible treatments?

27. Exactly what I told her this morning.

22. Thoughts and prayers with you and your friend

23. I sit here crying knowning a little girl is going to lose her mother and there isn't anything

40. I am just aching for her little girl. A complication is that the dad is quite a lot older...

99. Well am 65 and I know I take care of my 6 yr old granddaughter at times. They live next

181. Then the daughter should be getting SS benefits if he's 67...

24. There are times I am ashamed to be an...

25. Don't cry, get busy. Go online and search her disease and find either

31. Working on that, for certain. n/t

26. You would think her M.D. would make it is own personal battle to begin a fight to do something......

91. Don't they take an oath or something?

122. Their oath is to not cause harm

123. The problem is that most doctors have too many patients

124. I'm sure you're probably right. I do know that he has...

131. There is a much bigger issue with transplants

28. Devastating news.

74. That is because the cure would take away PROFITS from~~

162. Cure

178. not really.