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Lyme Disease- a chronic illness?

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undeterred Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-09-07 02:37 PM
Original message
Lyme Disease- a chronic illness?
I ran into someone I used to work for a few years ago today and we stopped to chat. His wife was also a manager and she had taken some time off to have their first child and had not come back to work yet the last time I saw him. Well I assumed she was back by now. It turns out she has not gone back. She was very tired and depressed for a long time after the birth and it took over a year to finally diagnose her with Lyme Disease.

The thing is- she did not contract the Lyme Disease recently, but as a thirteen year old at a summer camp. The symptoms flared after giving birth twenty years later, but since she was never treated for it in the first place, she has a systemic bacterial infection of Lyme Disease. There have been many episodes in her medical history that never quite made sense- and she has been treated unsuccessfully for many illnesses she did not have, like hypoglycemia and bipolar disorder. There is still no human vacine for this illness and no surefire way to treat someone who has been infected for a long time.

There is a vaccine for dogs which is fairly effective, and the lyme bacteria, which is carried by ticks, is quite common... but left untreated it is really a terrible diagnosis in people, and one which is often missed if it is not caught right away.
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MADem Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-09-07 02:38 PM
Response to Original message
1. I'll agree with that... NT
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LibertyLover Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-09-07 03:16 PM
Response to Reply #1
6. My husband has had it twice
The first time he didn't realize he had been bitten by a tick until a week or so later he was feeling awful and asked me to take a look at his leg. The target shaped tick bite could still be seen. He went to the doctor's and, while they took blood to confirm it, put him on antibiotics immediately. It took 2 courses before he felt better. About a year ago he thought he had been bitten, checked and saw the bite mark and went to the doctor's. This time they didn't bother to take blood, just put him on the antibiotics. According to the doctor, they didn't bother with blood the 2nd time because the Lyme's spirochetes are in his blood stream and, even if he hadn't been bitten again, would have given a positive reaction. If that's the case, I can't help but think that there could be chronic problems associated with Lyme's. While my husband has never been a particularly healthy person, since that first incidence of Lyme's, his health problems have increased.
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freethought Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-09-07 02:45 PM
Response to Original message
2. That is consistent with what I have read
To get rid of Lyme Disease you have to catch it quickly. Signs of initial infection are distintive.

Those who don't catch it after initial infection are prone to periodic flare-ups which can cause real problems.
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fudge stripe cookays Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-09-07 02:47 PM
Response to Original message
3. My aunt has it.
Edited on Mon Apr-09-07 02:54 PM by fudge stripe cookays
She was bitten by a tick on their property out near Kerrville, and her health has NEVER been the same. She has had all kinds of muscular problems, nerve problems, loss of feeling, etc.
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laruemtt Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-09-07 02:50 PM
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4. i am one of the ones the
docs couldn't diagnose for at least the first three years i had Lyme disease. i went through a never-ending search for the perfect supplement, B12 shots, and many tests and diagnoses. finally in December 1995 a doctor who recognized the symptoms gave me a Western Blot test (no one else had done that!) and i've been taking antibiotics off and on - mostly on - ever since. i'm currently off the antibiotics and am trying once again to maintain by eating a really clean diet and taking a lot of supplements and working out. i'm hopeful this will work but it's about my 7th try at going natural and it's never taken before, so we shall see. i'm nothing like the person i was before i got this stupid disease, but a lot of people have it a lot worse and i'm grateful for the degree of function i've got.
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undeterred Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-09-07 02:57 PM
Response to Reply #4
5. The person I talked to sounded like it was an all consuming
search for health for them too. And an all consuming search for the right doctor, which is odd, considering we live near a teaching hospital in a state where the disease is easily caught. We live in WI, and they go to NY. Apparently its been politicized. It struck me as odd when I was offered a vaccine for my dog (and found out my neighbor's dog had gotten the disease from a tick in the backyard) and realized there is no vaccine for humans. Dogs show symptoms and respond well to treatment if they are taken in for treatment quickly though.

I remember hearing a lot about this disease about 10-15 years ago but not so much any more. I wonder how many people realize how serious it is if not caught during those first few weeks.
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Catherine Vincent Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-09-07 03:20 PM
Response to Original message
7. What are the symptoms of Lyme disease?
I was bit by a tic when I was a kid.
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nomatrix Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-09-07 03:38 PM
Response to Reply #7
9. My daughter was bit before we moved to the west
she woke up one morning with a facial paralysis (similar to the Novocaine smile after the dentist, on one side of your face.)
We took her to the emergency room with a bright doctor who suggested testing for Lyme disease. From what I understand, the west coast doesn't have it, still, she was registered as the only person with Lyme, in the state for that year, on their infectious disease registry.


Lyme disease can cause facial paralysis and the same symptoms as Bells palsy. Bacteria enter the body through the skin at the site of the tick bite. Typical early symptoms of Lyme disease are a red ring around the site of the bite and flu-like symptoms. Unfortunately these symptoms do not always appear. The early symptoms will pass, but administration of an antibiotic as early as possible is important to avoid serious problems later. Without an antibiotic the bacteria can spread throughout the body, causing arthritis, heart disease, and nervous system disorders such as facial paralysis.
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Catherine Vincent Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-09-07 03:44 PM
Response to Reply #9
11. Thanks.
I was around 12 or 13 when I was bit. It was funny, I didn't even know until I was out playing and looked at my tummy and saw something there that I couldn't take off and I ran to my mother and showed her. She took a tissue and yanked it out and rubbed a lot of alcohol on the area. I don't remember getting sick so I guess I was lucky. I probably picked it up when I went to camp with the girl scouts.
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undeterred Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-09-07 03:48 PM
Response to Reply #7
12. I imagine there is some variance.
Symptoms at this link: http://www.cdc.gov/ncidod/dvbid/lyme/ld_humandisease_symptoms.htm

The person I know was a teenager and remembers a bad tick bite at summer camp (she presumes this is when it happened). There were actually behavioral changes after it happened- sounds like her parents wrote it off as teenage growing pains.

Of course she's not sure when it really happened. I've travelled and camped quite a bit myself- I guess it pays to be really attentive to bites where the swelling doesn't go away quickly, especially if you aren't sure what caused the bite.
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DemBones DemBones Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-09-07 03:26 PM
Response to Original message
8. Lots of chronic illnesses, like lupus, appear after childbirth,

which is a wonderful event but is also a time of tremendous hormonal changes, as is all of pregnancy. Some doctors think that the physiology of pregnant women is so different that they have to be considered as completely different from non-pregnant women, as if there were two types of women.

On the positive side, women who have given birth have a decreased risk of breast cancer, even more so if they breastfeed, the longer they breastfeed, the less risk. Not that anyone should have a baby thinking it will protect her health, because it may also cause a flare of a previously undiagnosed disease, and most of all because babies need to be wanted for themselves.


Lyme disease is carried by DEER ticks, which are supposed to stay on deer, not dogs or humans. It's on the increase because there are huge populations of deer, more than there should be, due to the lack of predators. Ecologists who specialize in this area say there are more deer in North America than there were when Europeans came here. We killed most of the wolves and other predators and we don't want wolves in our backyards, so instead we have deer in our backyards, eating our gardens and spreading Lyme disease because the deer ticks hop or fall off deer and look for something else to feed on, like your dog or you. Often, deer are underweight and not as healthy as they should be because there are too many of them and too little food, so the situation is bad for them and for us. Deer also cause many auto accidents, often with human fatalities. Besides causing wrecks, deer have been known to go through windshields when hit and, alive and panicked, kick the driver to death.

They are beautiful animals but we are too sentimental about them, thanks to the "Bambi" effect. If we had such an overpopulation of rats, we'd be demanding that they be killed, as we should since rats can carry Yersinia pestis, the bacteria that causes bubonic plague, not to mention that rats bite. Hunters cannot keep the deer population in check since hunting is only allowed at certain times and a hunter has a limit of how many deer he or she can take. We need a massive effort to reduce the deer population by either allowing hunting year around with no limits -- of course monitoring it so that deer populations wouldn't be decreased too much -- or having wildlife managers do the culling (i.e. kill off a lot of deer.)

The meat could be put to good use to feed the hungry, too. Hunters already donate meat from deer they take and don't need to feed their own family to programs to provide the meat to the poor. Venison is delicious if it's well-prepared, though of course some people won't eat it for psychological reasons, just as some won't eat rabbit. Old people from rural areas will tell you that during the Depression, wild rabbits and deer helped keep many rural families alive. When I ate meat, I ate venison and rabbit but I have my own hang-ups; I love liver but could never bring myself to eat other organ meats, though I'm sure they are delicious when prepared properly and that I could eat anything if hungry enough, but hope I'll never be that hungry!

I've never hunted and no longer eat meat but I'm a biologist with specialization in ecology and serious concern about the overpopulation of deer. They are out of balance with nature and posing a threat to humans. Eventually, we're going to have to deal with the problem.
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laruemtt Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-09-07 03:43 PM
Response to Reply #8
10. we have huge deer
walking through our backyard now - this is something new. i used to think they were so beautiful!

as far as symptoms are concerned, i felt like i had the flu over and over again. i had a rash on my lower back that a doctor said he thought was shingles! oops! guess not, doc...... i also had ongoing sore throat and exhaustion like i'd never known before. i remember the day after my last day of work, calling my supervisor and telling her i could not get up off the floor to get dressed to come in to work.

it's here in west virginia but it seems for political reasons the powers that be don't want it go get out because of the hit to the tourist industry it might mean. yeah, no lyme disease here - just tens of thousands of deer practically walking the streets..........
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