If even a liberal is dismissing these stories that go on everyday, which affects real people, as a "soundbite" that is not "newsworthy," then we have already lost the debate. You have Republicans claiming that we have a the best healthcare system in the world. You would think that the prevalence and frequency of these stories would be "newsworthy" because it shows that such claims are a lie. You also have people citing stats suggesting that most people are happy with their health insurance. Well, they should really focus on people who are actually using their health insurance.
When news ignores the substances, dwells on "setbacks" in reform, and focuses on the namecalling, then I think it is time to reconsider what should be considered "newsworthy." Also, these stories are not soundbites. They are people struggling to make ends meet, literally struggling to stay alive in the United States of America.
You may call the story below a "soundbite" that is not "newsworthy." I see a family at risk of losing their home, trying to keep their little boy alive, and resorting to bake sales to pay their medical bills even though they have health insurance.
If these stories do not form the foundation of the healthcare debate, then I am not sure what the point is.
http://www.nj.com/warrenreporter/index.ssf/2009/08/warren_county_organizations_te.html###
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At just nine years of age, White Township resident Matthew Bell has been fighting cancer for two-thirds of his young life.
First diagnosed with leukemia at age 3 and then with brain cancer at age 8, Matthew has had two bone marrow transplants and two tumors removed from his head. Surgeries, radiation and chemotherapy treatments have sent Matthew's cancer into remission several times. But in April 2009, Matthew's leukemia returned again, this time in his central nervous system.
Last month, surgeons again removed a brain tumor, and today Matthew has a neuro-port in his head, which is used to administer treatments. Matthew struggles with leg pain, headaches, fatigue and stomachaches. He sometimes has trouble breathing and problems sleeping. Scans, MRIs, spinal taps, blood draws and other uncomfortable, painful procedures are all too familiar to Matthew, a much-loved kid who simply wants to go to school and sleep in his own bed every night.
Like many kids his age, Matthew loves to play with Legos and Bakugans. He has a vast collection of shark teeth, as well as rocks, arrowheads and fossils. Matthew dreams of swimming with sharks and educating people of the importance of sharks to our oceans' ecosystems. He would love to visit California's Lego Land and his dream job is to be the person who creates new Lego kits. Matthew also has his own real-life hero: his little brother, Joshua, who has donated his bone marrow to his big brother twice now.
Matt's parents, Carenna and Brian Bell, do their best to hold it all together by keeping a four-person household up and running while dealing with an overwhelming years-long battle filled with fear, worry and anxiety for their oldest child.
"As parents of a very sick child we struggle with the fact that one day the hospital will say that there is no more they can do," said Carenna. "We struggle with the fact that all we think about is being with Matthew, but we also have to work when we can. We worry that as time goes on, if things get worse, we could lose our house."
At the same time, Matthew's parents are incredibly thankful that, with the community's help, they've so far been able to keep their house, which Matt's dad grew up in. They are very grateful to their friends, neighbors, and even strangers, who have surrounded Matt and his family with love, support and donations for the last several years. Medical expenses have mounted quickly despite the family's insurance coverage, and the community has rallied with various fundraising events, from golf events to bike-a-thons, to raise much-needed funds for the family.
This month, members of the Mansfield Masonic Lodge, White Township Parent-Teacher Organization (PTO), and the Belvidere High School Girls Soccer team will join together to hold a car wash and bake sale, with proceeds of the event going to the Bell family.
Michael Iannitelli, who is helping to organize the effort, explained, "After seeing many events take place to assist the Bell family, our secretary James Taylor suggested that we hold a car wash to benefit Matthew Bell. We decided to maximize the effort by also having a bake sale. Knowing that the White Township PTO has held many events for Matthew and is quite familiar with the situation, we reached out to them and they were happy to take part in the bake sale."
Another member of the Masonic Lodge, Thomas Hallowell, has daughters on the soccer team. When he asked them to help, they were eager to participate. The girls will help wash cars the day of the event.
The car wash and bake sale will be Saturday, Aug. 22 (rain date Aug. 23), from 9 a.m. to 3 pm, at the Mansfield Lodge #36, 275 State Route 31 North, Washington. Cars are $5 and SUVs, vans, and light trucks are $7. Various fresh-baked goods and treats will be available as well.
Supporters can send cards and well wishes to Matthew Bell at 39 Titman Road, Belvidere, NJ 07823
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