Reply #9: Thank you all for your help.

[KayLaw]

You are all so understanding and I need that right now. I have considered calling my congressman. I've read that they can have the files flagged so they don't gather dust. The rep who gave me the DDS number was very nice but seemed harried and overworked. My rep was (is) very nice. She faxed the medical info while I was there so things wouldn't take long. She got all the info on our mortgage and grocery bills and set me up as my son's payee.

Somewhere along the line something went really wrong. The 800 guy was nice but not helpful at all and seemed confused himself. I agree that there should be a way to check up on things and it should be online. If FedEx can do it, so can our government. It's been hard to be patient all this time but I was foolishly confident things would work out well. My son was diagnosed by Dan Marino's neurologist at two, never been mainstreamed, will never get a H.S. degree, has been approved for Medicaid, etcetera, etcetera.

Well, thanks for being outraged on our behalf. I guess I'll stick with the rep we already have and call her first thing Monday morning. If I have any problems I'll have to call a rep or an attorney.