Parents of disabled children blast Florida health care
Twice in the past year, state health administrators cut the number of hours caregivers assisted Alex Perez's severely disabled son at his Westchester home. Both times, the child's pediatrician was left wondering why the state had reduced the care he had prescribed for the boy.
On Monday, state Rep. Katie Edwards asked Perez if she had been "misled or misinformed" when state health care bosses told her that the company that reviews such prescriptions always speaks with family doctors to find a way to help parents.
"Yes," Perez told Edwards at a town hall meeting in Sunrise for parents of disabled and medically fragile children Monday night.
Perez, whose 13-year-old son, Christian, suffers from cerebral palsy and failure to thrive, was one of a dozen parents and advocates who spoke to several lawmakers and other community leaders Monday night at the meeting called to address the needs of Florida children with severe disabilities and life-threatening medical conditions.