I do not know much about MDS but my brother has been diagnosed with a form of leukemia and has talked about offering himself as part of a study for new drug (as he has little coverage) My work is for the CDC (HHS and NIH) and while they offer BC/BS my premiums when I was covering my kids was approx. $16,000/year and BC/BS still made me jump hoops and denied claims, and as we had very few I was disgusted and on principle refuse to participate in a corrupt system.
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