Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

Cancer Support

slipslidingaway

(21,210 posts)

22. Can we have those 20 years back, we felt and looked wonderful back then, did we not?

Reply to dixiegrrrrl (Reply #11)

Thu Aug 25, 2016, 12:55 AM

Aug 2016

Hang in there, I can only say this as a caregiver, do whatever you need to do to come out the other side. Be curious, but not too curious, put on movie, go to movie, take a walk, distractions are wonderful. Look when you feel you can during tests, look away when you cannot. We met a 23 year old refugee from Kosovo who had a haplo/double cord transplant and is now looking forward to a wedding next year, we'll all be celebrating.

Easy for me to say, just a bystander here, have not asked her if she still has her port, but I know she dreaded the bone marrow biopsies.

Use whatever you can to move forward!

Edit history

Please sign in to view edit histories.

29 replies

= new reply since forum marked as read

Highlight:

Today I had surgery to have a port put into my chest. [View all] dixiegrrrrl Aug 2016 OP

May you heal quickly with enough pain meds to manage. Best wishes being sent your way. uppityperson Aug 2016 #1

Toss predictability out. Solly Mack Aug 2016 #2

Tig Notaro kept her sense of humor and has made it part of her comedy routine. alfredo Aug 2016 #5

It's part of mine now too. :) Solly Mack Aug 2016 #7

Best wishes for your health. applegrove Aug 2016 #3

The fun never stops. How long will you have that hole in your chest? alfredo Aug 2016 #4

right now, plan is 3 months or more dixiegrrrrl Aug 2016 #9

Chemo nearly put me in the hospital. alfredo Aug 2016 #12

I am so lucky in that I am retired and do not have to be anywhere dixiegrrrrl Aug 2016 #13

Same here. It's been very convenient if we want to beg off family commitments. :) alfredo Sep 2016 #27

Being hit on both sides cannot be comfortable but ... slipslidingaway Aug 2016 #6

Ya know, 20 years ago I would be much more tolerant of stuff like this dixiegrrrrl Aug 2016 #11

Can we have those 20 years back, we felt and looked wonderful back then, did we not? slipslidingaway Aug 2016 #22

Port surgery isn't THAT bad. PennyK Aug 2016 #8

Port surgery was fine, I was out for it. dixiegrrrrl Aug 2016 #10

I had a port placed about 7 months ago. It was painful following surgery but I have to say auntAgonist Aug 2016 #14

Thank you for that information.... dixiegrrrrl Aug 2016 #15

I have a needle accessing the port and ONLY the clear dressing over that. auntAgonist Aug 2016 #16

This is how mine looks when it's not accessed. (not my picture) 2nd is accessed w/needle auntAgonist Aug 2016 #17

I am confused right now dixiegrrrrl Aug 2016 #18

Well, they DO stick the needle in PennyK Aug 2016 #19

I am really bummed out. dixiegrrrrl Aug 2016 #21

The port is SO close to the skin you barely feel the access needle going in to it, auntAgonist Aug 2016 #20

Just commenting at this late date that you are so right dixiegrrrrl Sep 2016 #25

Oh I'm so glad everything worked out alright for you. auntAgonist Sep 2016 #26

I wish you the very best...today and every day.. Stuart G Sep 2016 #28

Stuart, thank you! dixiegrrrrl Sep 2016 #29

Dixiegrrrrl, I onethatcares Aug 2016 #23

wow....thank you very much. dixiegrrrrl Aug 2016 #24