HomeLatest ThreadsGreatest ThreadsForums & GroupsMy SubscriptionsMy Posts
DU Home » Latest Threads » Forums & Groups » Topics » Health » Health (Group) » Craziest thing: Anyone he... » Reply #29

Response to MannyGoldstein (Original post)

Sun Dec 9, 2012, 01:35 PM

29. I'v suffered from psoriasis since college. That's 40 years at this point.

The problem with this disease is that it's very adaptable. I've gone through many different treatments that work for a length of time then suddenly stop working. You get it to disappear on one part of your body and it shows up somewhere else.

I was fully macrobiotic for 5 years. Did nothing to change my psoriasis.

Used steroid creams. They worked for about a year. Then they didn't work.

Did light box treatments. These worked great, to the point where my condition went away totally, and where two 2-minute treatments a year were all I needed. Then, my work-provided insurance plan changed to a plan that didn't include my dermatologist. The one in the new plan didn't have a light box. He put me on steroid creams. Within 8 months, my psoriasis was back full blown. So, I went back to the old dermatologist and paid out of my own pocket. But the treatments never fully worked after that. Subsequent light box treatments I've started over the years have done nothing.

I used to go to the beach to tan under doctor's orders. Two weeks in the sun used to clear things up. But these days, I just don't have the tolerance to sit in the sun for extended periods day after day. I also count myself lucky that all that sun hasn't left me with a skin cancer or dried out skin (the only good thing about having psoriasis is that you're always visiting the dermatologist who checks for cancers every visit).

At this point, I have psoriatic areas on my torso, hips, knees and elbows.

I've had lecithin recommended to me before. Can't remember if I ever tried it. I'll try it this time as a pound of lecithin granules costs about $11, which at 2-4 tbsp per day should last for a couple of weeks. I'll give this anecdotal treatment a month and see what happens. If it works, great! If not. Well, I'm used to "didn't work" when it comes to treatments for psoriasis.

BTW - I'm sure they could find a cause and a treatment for psoriasis IF they spent 1/1-millionth of the funding they spend on cancer research to study psoriasis. It's pretty sad when the best chance we have of getting some money spent on psoriasis research is the fact that Kim Kardashian has been diagnosed with the condition. The only way a disease gets any attention or funding in this country is if some celebrity has it.

Reply to this post

Back to OP Alert abuse Link to post in-thread

Always highlight: 10 newest replies | Replies posted after I mark a forum
Replies to this discussion thread
Arrow 39 replies Author Time Post
MannyGoldstein Dec 2012 OP
Voice for Peace Dec 2012 #1
Sherman A1 Dec 2012 #12
Chipper Chat Dec 2012 #2
MannyGoldstein Dec 2012 #22
gateley Dec 2012 #38
gateley Dec 2012 #26
Chipper Chat Dec 2012 #35
gateley Dec 2012 #37
bananas Dec 2012 #39
rainin Dec 2012 #3
tavalon Dec 2012 #9
Voice for Peace Dec 2012 #21
tavalon Dec 2012 #24
Voice for Peace Dec 2012 #25
tavalon Dec 2012 #34
shraby Dec 2012 #4
diane in sf Dec 2012 #5
tavalon Dec 2012 #8
InsultComicDog Dec 2012 #11
gateley Dec 2012 #27
tavalon Dec 2012 #6
grahamhgreen Dec 2012 #7
Not a Fan Dec 2012 #10
kestrel91316 Dec 2012 #31
eShirl Dec 2012 #13
MannyGoldstein Dec 2012 #23
DCKit Dec 2012 #14
postulater Dec 2012 #15
Patiod Dec 2012 #16
gateley Dec 2012 #28
arikara Dec 2012 #17
Auntie Bush Dec 2012 #18
MineralMan Dec 2012 #19
Chemisse Dec 2012 #36
just1voice Dec 2012 #20
gateley Dec 2012 #30
LineReply I'v suffered from psoriasis since college. That's 40 years at this point.
stopbush Dec 2012 #29
Bluestar Dec 2012 #32
RagAss Dec 2012 #33
Please login to view edit histories.