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In reply to the discussion: My son has autism [View all]

MADem

(135,425 posts)
8. Sheila, I don't know if you've seen this study out of Yale but it might be worth looking into.
Sun Sep 14, 2014, 12:08 AM
Sep 2014

I don't know where they're at on the clinical trials, but if your child is interested they should be able to tell you if/where they're firing them up.

http://news.yale.edu/2014/06/19/hairless-man-arthritis-drug-spurs-hair-growth-lots-it

The patient had previously been diagnosed with both alopecia universalis, a disease that results in loss of all body hair, and plaque psoriasis, a condition characterized by scaly red areas of skin. The only hair on his body was within the psoriasis plaques on his head. He was referred to Yale Dermatology for treatment of the psoriasis. The alopecia universalis had never been treated.

King believed it might be possible to address both diseases simultaneously using an existing FDA-approved drug for rheumatoid arthritis called tofacitinib citrate. The drug had been used successfully for treatingpsoriasis in humans. It had also reversed alopecia areata, a less extreme form of alopecia, in mice.

“There are no good options for long-term treatment of alopecia universalis,” said King, a clinician interested in the treatment of rare but devastating skin diseases. “The best available science suggested this might work, and it has.”

After two months on tofacitinib at 10 mg daily, the patient’s psoriasis showed some improvement, and the man had grown scalp and facial hair — the first hair he’d grown there in seven years. After three more months of therapy at 15 mg daily, the patient had completely regrown scalp hair and also had clearly visible eyebrows, eyelashes, and facial hair, as well as armpit and other hair, the doctors said.

“By eight months there was full regrowth of hair,” ... King has submitted a proposal for a clinical trial involving a cream form of tofacitinib as a treatment for alopecia areata.

My son has autism [View all] Separation Sep 2014 OP
I don't share your situation and will never be able to bvf Sep 2014 #1
Thank you for sharing your story and perspective. LisaLynne Sep 2014 #2
I do understand that part about parents will do anything to make sense or try to find a cure. SheilaT Sep 2014 #3
Sheila, I don't know if you've seen this study out of Yale but it might be worth looking into. MADem Sep 2014 #8
I sent that to my mother-in-law (who has alopecia universalis) a few weeks ago. deurbano Sep 2014 #17
It does look very hopeful--the question will be if the results are translatable over a wide swathe MADem Sep 2014 #20
While many people with alopecia SheilaT Sep 2014 #24
If they're happy the way they are, more power to them. MADem Sep 2014 #27
Oh, yes. I think that for my sons the fact that they lost their hair SheilaT Sep 2014 #28
I was a mall Santa for years Omaha Steve Sep 2014 #4
Thank you, this is an excellent post. Voice for Peace Sep 2014 #5
My stepson is autistic and my son has some autistic traits, so I undersand what you 1monster Sep 2014 #6
Wow... you have your hands full. ReRe Sep 2014 #7
Thank you, Separation Sep 2014 #12
Were you stationed in Camp Lejuene, prior to 1987? Uncle Joe Sep 2014 #9
We were there from 94-99 Separation Sep 2014 #10
I was in Camp Lejeune in 76 and again in 78-79 Uncle Joe Sep 2014 #13
Thank you everyone for your kind words. Separation Sep 2014 #11
I completely understand onecaliberal Sep 2014 #14
Such an excellent post BrotherIvan Sep 2014 #15
I refuse to stand in judgement of parents that have children with severe autism. liberal_at_heart Sep 2014 #16
Have you tried cannabis? SHRED Sep 2014 #18
Just waiting for Tn. to legalize it and a brave enough doctor to prescribe it. Separation Sep 2014 #31
I wouldn't wait SHRED Sep 2014 #34
I understand where you come from... Dr Hobbitstein Sep 2014 #19
Why do you conflate "anti-vax crowd" with people who advocate for vaccine SAFETY? pnwmom Sep 2014 #26
Because vaccines are currently safe to MOST people... Dr Hobbitstein Sep 2014 #32
"Most people." That doesn't help the people who are injured -- like my sister who was killed -- pnwmom Sep 2014 #35
There will never be ANYTHING that is safe for EVERYONE. Dr Hobbitstein Sep 2014 #36
No, the standard should be as safe as possible, not just "most." And that wasn't the case with the pnwmom Sep 2014 #37
A normal childhood disease? Dr Hobbitstein Sep 2014 #39
Chicken pox for the vast majority of children had no serious consequences, as you know. pnwmom Sep 2014 #40
My son has ASD as well shaayecanaan Sep 2014 #21
Mine too. lumberjack_jeff Sep 2014 #22
My heart goes out to you. Lilma Sep 2014 #23
My heart goes out to you and all the other parents. pnwmom Sep 2014 #25
Thank you for sharing LeftishBrit Sep 2014 #29
This article might be of interest to you: Live and Learn Sep 2014 #30
Click here once a day free to help children with autism Omaha Steve Sep 2014 #33
Message auto-removed Name removed Sep 2014 #38
Welcome to DU, john kale! pnwmom Sep 2014 #41
Message auto-removed Name removed Sep 2014 #42
Autism Not a Fan Sep 2014 #43
I don't know if this will give you any solace, phylny Sep 2014 #44
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