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In reply to the discussion: We failed her. Big time. Boston Children’s was experimenting on Justina Pelletier, [View all]liberalhistorian
(20,814 posts)speak to Justina's own Connecticut doctor, one of the foremost specialists in mitochondrial disease, or any of his team who'd been treating her for YEARS. REFUSED TO EVEN SPEAK TO THEM. Why? Because they weren't interested in anything that would have disputed what their own biases wanted it to be. They decided after just a short interview lasting less than a half hour, and a few hours of hospitalization, that THEIR diagnosis that it was all just in her head was the correct one, period, and the parents should be criminalized for following the treatment of the previous internationally-respected doctor. Meanwhile, in their custody, she rapidly deteriorated and became more and more physically ill. They couldn't blame the parents this time because they refused the parents access to her. They just plied her with more and more of their happy pills.
It's truly frightening when what should be just a medical dispute between medical experts becomes a criminalization of the parents for following said medical experts, and the child being taken away.