General Discussion

Akoto

(4,266 posts)

71. You're asking for answers way above my head, truthfully.

Wed Apr 3, 2013, 10:19 AM

Apr 2013

Do I believe some people are born with better pain coping mechanisms than others, or more sensitive to pain than others? Sure, I think that could be possible.

In my case, though, we know that there is a physical issue going on. By accessing my pelvic floor muscles (I'll spare you the gruesome details), chronic spasm is readily detected. It's like the bowl of muscle within your skeletal pelvic is clenched into a constant fist. That's my form of CPPS/PFD, but there are actually several. It's a very strange syndrome, and that has made it difficult to find a cure.

In addition to my pain medication, which I have no problems with taking, I also go to a psychiatrist who prescribes Valium and teaches me some relaxation techniques. Always tends to help.

Perhaps the best assistance after that is true, deep distraction. I'm a gamer, so if I really get into a game (or perhaps a good book or something) my mind will focus less upon the pain. To some extent, that means literally living in fantasy, but I'll do what works.

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On Being Disabled [View all] Akoto Apr 2013 OP

This message was self-deleted by its author freshwest Apr 2013 #1

My brother just got SSI duffyduff Apr 2013 #2

Very true. It is extremely important to stay on top of the doctor/records. Akoto Apr 2013 #4

There isn't anything that can be done about my brother duffyduff Apr 2013 #7

I can relate. Akoto Apr 2013 #8

The person I talked with from SS basically said they are looking for anything unusual duffyduff Apr 2013 #11

Thanks for sharing your story with us. undeterred Apr 2013 #3

This might help you contact Alan Grayson, since he posts here. :) M0rpheus Apr 2013 #5

Familiar with "invisible illness" KT2000 Apr 2013 #6

invisible cancer sigmasix Apr 2013 #76

Spare yourself KT2000 Apr 2013 #77

K&R Starry Messenger Apr 2013 #9

Thank you so much for posting this. thucythucy Apr 2013 #10

I agree mike978 Apr 2013 #49

Brilliant writing, Akoto Iwillnevergiveup Apr 2013 #12

K&R nt Zorra Apr 2013 #13

That was my post and I apologize for it being a little too heavy on the "scamming" aspect. brewens Apr 2013 #14

Backs are a sore point with me. Literally. Ms. Toad Apr 2013 #16

until one experiences extreme back pain riverbendviewgal Apr 2013 #42

I have a neck spasm that does that to me - Ms. Toad Apr 2013 #44

I am retired so I don't have a financial problem riverbendviewgal Apr 2013 #48

If the economy didn't suck so much, many disabled would be working TexasBushwhacker Apr 2013 #21

Scamming = Sen McCain n/t kickysnana Apr 2013 #24

Aside from the rest of your bs, whatever system you are in is not Social Security Disability Bluenorthwest Apr 2013 #29

That ruling came from my state L&I. I work with lifting restrictions. I'm brewens Apr 2013 #65

So you are comparing apples to oranges when comparing your situation with the OP's for your was a Bluenorthwest Apr 2013 #68

I am fighting a similar battle, Mr.Pain Apr 2013 #15

Welcome to DU. progressoid Apr 2013 #22

Best of luck with all of this thucythucy Apr 2013 #32

It's hard for me to accurately imagine what you're going through. No Vested Interest Apr 2013 #60

There are a lot of people worse off than me. Mr.Pain Apr 2013 #80

Drugs are bad, no doubt, but as a wise friend No Vested Interest Apr 2013 #81

Asoluteley not Mr.Pain Apr 2013 #83

I got SSI in two weeks GiveMeFreedom Apr 2013 #17

I am so sorry, I wish you much strength and courage Voice for Peace Apr 2013 #36

k&r liberal_at_heart Apr 2013 #18

You're very eloquent -- Thank you for your posts Hekate Apr 2013 #19

K&R & thank you. Kurovski Apr 2013 #20

Akoto,I salute thee DonCoquixote Apr 2013 #23

Both you and Akoto are so eloquent in sharing your story... OneGrassRoot Apr 2013 #26

Thanks DonCoquixote Apr 2013 #30

Thanks for sharing grantcart Apr 2013 #33

yes yes yes Voice for Peace Apr 2013 #37

K&R n/t OneGrassRoot Apr 2013 #25

Many Of Us Can Relate grilled onions Apr 2013 #27

You must be an amazingly strong person. bunnies Apr 2013 #43

If I Had Had A Crystal Ball.. grilled onions Apr 2013 #46

Re: How do you deal with it Akoto Apr 2013 #47

shame. bunnies Apr 2013 #53

I'm disabled madokie Apr 2013 #28

Invisible disabilities pipi_k Apr 2013 #31

Thanks for sharing grantcart Apr 2013 #34

re:On Being Disabled allan01 Apr 2013 #35

You are entitled to your opinion mike978 Apr 2013 #50

and if the bloody ss cap was removed DonCoquixote Apr 2013 #55

I agree with the idea of removing the SS cap mike978 Apr 2013 #57

prevention does not remove cure DonCoquixote Apr 2013 #62

Are you really equating Ms. Toad Apr 2013 #63

I have read all of the comments mike978 Apr 2013 #69

You didn't pay much attention to the comments Ms. Toad Apr 2013 #72

I did read the comments mike978 Apr 2013 #74

I wrote a long response last night - Ms. Toad Apr 2013 #84

How exactly do you want disability spending to be 'moderated?' Akoto Apr 2013 #66

The growth moderated mike978 Apr 2013 #75

K&R! Voice for Peace Apr 2013 #38

Share with your Congressperson anyways One_Life_To_Give Apr 2013 #39

Absolutely!! Talk to your Congress Person and you will be surprised at their speed in acting! AtheistDragon Apr 2013 #73

K&R. cliffordu Apr 2013 #40

i am so sorry you have so much pain. riverbendviewgal Apr 2013 #41

I have a more obvious disability Malone Apr 2013 #45

A Lifetime of Hiding My Disability otohara Apr 2013 #51

I feel guilty at how fast I was granted disability under SSI... WCGreen Apr 2013 #52

I thank you for sharing this. mwooldri Apr 2013 #54

You have the same condition as a friend of mine. Sirveri Apr 2013 #56

Ah, yes. The cushion. My constant companion. Akoto Apr 2013 #59

So true Rider3 Apr 2013 #58

Chronic Fatigue... Kalidurga Apr 2013 #61

Invisible.. undergroundpanther Apr 2013 #64

I wish you well, but I have some questions. JDPriestly Apr 2013 #67

You're asking for answers way above my head, truthfully. Akoto Apr 2013 #71

You make a great point that the disabled don't always appear that way. OnionPatch Apr 2013 #70

I know how you feel, in a way. Akoto Apr 2013 #78

No, it's not that bad. OnionPatch Apr 2013 #79

I'd try to not think that way. The mind has such a powerful influence. Akoto Apr 2013 #82

A kick for more readability. N/t Akoto Apr 2013 #85