General Discussion
In reply to the discussion: Who here ISN'T an organ donor? [View all]JustAnotherGen
(31,783 posts)To medical research. Race and gender do not make sense for the disease I have. If I can make life easier for some 17 year old boy someday by letting the medical facility I'm giving it to rip it apart - that's a good thing. If they can figure out what tripped the gene in me from my skeleton, intestines, heart, pancreas - what went wobbly - then that's a good thing.
I also wish they would take some samples from King Richard III . . . That spine is not simple scoliosis. That's AS. My great grandfather hunched in his late teens, laid dormant, then curved like that in his last ten years. Two men in my support group in their 30's have spines like that. I'm going rigid straight but my rib cage is being altered (closing in) and m left hip bone looks like Richard's did in those pictures.
I'm for science and saving people - but I can help the many if I let scientists take me apart. IE what does my closing rib cage do to my lungs, heart, and upper internal organs? I know how it feels to be out of breath. Maybe they can figure out how to stop it. And with the Iritis - no one is going to want my eyes in 15 or twenty years.
But - if someone doesn't have a genetic disease that is just now being researched - I don't see why one would not want to give that gift to someone else.