HomeLatest ThreadsGreatest ThreadsForums & GroupsMy SubscriptionsMy Posts
DU Home » Latest Threads » Forums & Groups » Main » General Discussion (Forum) » For all my DU caregivers » Reply #3
In the discussion thread: For all my DU caregivers [View all]

Response to Deuxcents (Original post)

Thu Nov 24, 2022, 01:47 AM

3. As many times as I have heard this, it brings me comfort to hear it again.

My wife has meylofibrosis, a rare and untreatable bone marrow disorder. My employer was gracious enough to let me work from home so I can keep the lights on, but I still have to manage work, house work, home repairs and pets on top of giving her care and being good company. She is on home hospice and could pass on any given day. That fact is stressful enough, but I am on month seven of any given day could be today. I have relatives who want updates when nothing new is going on, some in the form of unanswered letters. Nothing ever changes except for the day when it finally does change forever. As hard as every day is, with each one I hope that tomorrow is just like it.

I have to be at my best to provide care, so I have been doing my best to take care of myself. I sincerely thank you for this reminder.

Reply to this post

Back to OP Alert abuse Link to post in-thread

Always highlight: 10 newest replies | Replies posted after I mark a forum
Replies to this discussion thread
Arrow 6 replies Author Time Post
Deuxcents Nov 2022 OP
KentuckyWoman Nov 2022 #1
Deuxcents Nov 2022 #2
LineNew Reply As many times as I have heard this, it brings me comfort to hear it again.
chriscan64 Nov 2022 #3
Lucinda Nov 2022 #4
SheltieLover Nov 2022 #5
Hortensis Nov 2022 #6
Please login to view edit histories.