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KaryninMiami

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Gender: Female
Hometown: Miami, FL
Member since: Wed Nov 10, 2004, 11:15 PM
Number of posts: 3,073

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So it appears I have relapsed.

My fever (mostly low grade) returned a few weeks ago. I'd had a nice, six week fever free run over the holidays. Just prior to that, my thyroid basically stopped functioning causing me to gain 40 lbs in about 30 days-,without changing my eating habits. But that was certainly odd and disturbing. Some of the weight is water- in fact, the last few days my body has filled with water like a ballon- very scary and painful. Something strange was definitely going on.
We moved up my scheduled Petscan from late Feb. to today to rule out relapse. And the preliminary report shows, sadly, that my lymph nodes appear to be popping up again. As they did just before my auto transplant in Aug.
I'm still in shock-may wind up being a two Xanax night. If this is what it appears to be, I have another long, torturous road ahead probably culminating with an allo (doner) transplant which as I understand it, is the only chance for a cure.
Letting it all sink in- it's a lot as you can imagine. Will start researching alternative treatment options as well and if anyone has any info on holistic/homeopathic therapies with a history of success for TCell Lymphomas (or any lymphomas actually), please send them.
Damn it all- was really hoping I couid close this chapter and move on to something new and fun. Fuck cancer.

Namaste
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