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IdaBriggs

Profile Information

Gender: Female
Hometown: South East Michigan
Home country: United States
Member since: Tue Jul 27, 2004, 01:19 PM
Number of posts: 10,559

Journal Archives

"Floppy Babies Don't Get Better" & My GoFundMe Campaign

I am officially asking for money for a personal cause I believe in, so if that offends you, please feel free to hit ignore on this thread.

The link is http://www.gofundme.com/idabriggs and I am looking to raise approximately $9,500 total, preferably with at least $4,300 before Friday so I can go to New York City next week, do some training on "how to deal with the media" and spend two days being interviewed by members of the national media. This is not a free event, and I believe the money will be well spent if I am able to reach the people who need to know about my efforts: mainly, families of premature infants and special needs children. So far there is over $1,400 sitting in the account.

I have been posting on DU about my efforts on behalf of the Preemie Growth Project since 2009. I have been a member here since 2004, and some of the old-timers may remember my postings about my challenging twin pregnancy and the amazing awesomeness of my beautiful twins who arrived in February of 2007 weighing in the 4-pound range, delivered after an emergency c-section at 32 weeks due to pre-eclampsia. But that was only the beginning of my journey, because my twins started achieving normal growth and developmental milestones in a matter of months instead of years, and I figured out why and then proved it could be repeated for other premature babies.

In 2011 my efforts on behalf of this outreach (I started jumping through hoops to get my conclusions investigated by credentialed researchers back in 2009) bore unexpected fruit with a young "floppy baby" who began responding to the protocol within a matter of days. I was told repeatedly in the most condescending manner possible that "floppy babies don't get better" (except this one did, and so have a whole bunch of others since) and truthfully, almost walked away from the effort in frustration, but in 2012 a 9-year old girl diagnosed with cerebral palsy got up out of her wheelchair/her hyperspastic hands normalized in sixteen week, and the next thing I knew I was accidentally running an impromptu parent led feasibility study with 271 children from 35 states/6 countries, fighting flame wars on DU that still sting to this day and figuring out the particulars for a commonly undiagnosed medical condition responsible for the deaths of infants and children worldwide, that was literally leaving the survivors in wheelchairs, and appears to be responsible for a high percentage of sensory processing issues, including in an autism only subset.

Solid data was obtained on 134 of the children recruited, and 111 of them (83%) saw improvement in a minimum of four of the eight categories we tracked. That meant that 4 out of 5 children responded to the protocol - for children born prematurely, 9 out of 10 them responded, while non-preemies only saw 8 out of 10 respond. 33 boys under age 4 *ALL* responded, leading me to suspect that boys are more susceptible to these deficiencies. My co-author and I were privileged to share the results in a presentation we made to the Michigan Department of Health & Human Services last week (September 21, 2015), and you can view that presentation here:

https://onedrive.live.com/view.aspx?resid=AA4BA6ADFA380C7F!181&app=PowerPoint&authkey=!AKUdPc8LiR5ndI8

It may be idiotic (heaven knows my personal budget thinks it is), but I have always done this as a volunteer thing, and received zero compensation for it. I have devoted full time effort to this since January after a "blessing in disguise" situation occurred and I was laid off in December from my contract IT position at one of the automotive companies; I thought I just had to finish the report, and I could put the whole thing to rest, and then it was "just do this research poster" and then "just do this presentation in Lansing" and...the reward for a job well done always seems to be more work! Lol!

I am luckier than most in that my beloved husband has been extraordinarily supportive of my efforts, but we are used to being a two-income household, and while the sacrifices I have made may seem mild to others, they are real to me. At the end of the day, I cannot justify asking my family to lose $9,500 from our family budget so I can go to New York City so I can "spread the word" that SOME children with neuromuscular issues may actually be misdiagnosed and suffering from correctable micronutrient deficiencies.

So, I am asking for help. I don't sell ANYTHING. I have never charged a dime for my information and/or knowledge. If I don't raise at least $4,300 by Friday morning, I will have to wait until the next event happens in April, and that is an opportunity cost in unnecessary loss and suffering that makes me cringe.

If you can donate, please do so. If you are willing to share the link, please do so. If you can only offer up positive thoughts or prayers, I will take them as well. If you can only kick this thread, I will accept that with gratitude. And if you, or someone you know needs this information, I will be happy to answer your questions (but please do me a favor and look at the presentation first - I am working on a more "parent centric" shorter version, and hope to have variants done before I head off to New York, assuming I am able to do so).

Thank you in advance, DU. This matters. Please help. Thank you.

Again, the GoFundMe link is: http://www.gofundme.com/idabriggs

Woo Hoo! Our favorite state sex scandal made it to HBO!

Yeah, John Oliver!

And for non-Michigan residents, the Franklin Cider Mill is awesome!

Oh. My. Goodness! HOW Did I Miss This in 2011?

DUer "phantom power" posted an AWESOME thread about President Obama DESTROYING birther fan Donald Trump at the White House Correspondence Dinner in 2011 while behind the scenes he had the U.S. military busy taking out that guy who ordered 9-11. Apparently, Trump was Not Happy and the thread by "phantom power" discusses the titillating rumor that Trump is really running because Obama is a Meanie who Laughed at him.

You can view that thread here: http://www.democraticunderground.com/10027172324

But it sent me on a hunt for the YouTube video, and it is AWESOME, MUST WATCH, HYSTERICAL...

Enjoy! I did!

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