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Gender: Female
Hometown: South East Michigan
Home country: United States
Member since: Tue Jul 27, 2004, 01:19 PM
Number of posts: 10,559

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I am giddy. We have a RESEARCHER!!!

A real live MEDICAL RESEARCHER!!! And he will be supervising THREE (count 'em - THREE!) fellows who will begin looking at the data we have been collecting on the children with neuromuscular conditions (including cerebral palsy) since June of this year.

I am so happy, I could cry. We now have 92 children seeing improvement in at least two of the eight categories we are tracking (increased appetite, weight/length gain, bowel change, tone/strength, cognitive, speech/communication, energy and sensory), which is giving us an 88% "success rate", a 100% improvement rate for children with Sensory Processing Issues (SPD) by week six, incuding an autism only subset, and 84% "Failure to Thrive" children gaining healthy muscular weight with 76% moving from "less than 5%" on the CDC growth charts to "10% or greater" within 90 days.

The project was/is about generating individual case study data to determine if there is a justification for further research, AND THERE IS!!!

Now this work can get the proper, rigorous scientific investigation it requires!

He has warned me that he will be the most skeptical person out there and I told him I am TOTALLY good with that because this *SHOULD* be investigated that way!!! And his credentials are IMPECCABLE -he is a published researcher, faculty at a respected teaching university, and former member of the United Cerebral Palsy Research Foundation Medical Advisory Board.

I am waiting on the email from his secretary to schedule the meeting to go over the data we have gathered so far.

I Am So Happy!!!

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