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Mon Feb 18, 2019, 02:08 PM

My son's migraine journey

So I took him for his appointment with his neurologist and he is being switched from Botox to Emgality. I am so thankful for the insurance and the great healthcare that he has. His neurologist is phenomenal. The University hospital is so supportive. I knew it was only a matter of time before he was switched. Here's hoping this is the answer. I guess at his next appointment she is thinking about getting rid of the Zolmig too. This medicine can only be authorized by 4 neurologists at the University hospital, luckily he has one of them. Hopefully things will start to go in a more positive direction for him.

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Arrow 8 replies Author Time Post
Reply My son's migraine journey (Original post)
Lotusflower70 Feb 2019 OP
Laffy Kat Feb 2019 #1
Lotusflower70 Feb 2019 #4
unblock Feb 2019 #2
Lotusflower70 Feb 2019 #6
littlemissmartypants Feb 2019 #3
Lotusflower70 Feb 2019 #5
littlemissmartypants Feb 2019 #7
Lotusflower70 Feb 2019 #8

Response to Lotusflower70 (Original post)

Mon Feb 18, 2019, 02:17 PM

1. Positive thoughts your son's way. It's so hard to watch our children suffer.

It's helpful that he has such a supportive parent. My father had migraines so bad he was often suicidal. He learned biofeedback and swore by it. Just throwing that out there. I'm sure everyone is different.

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Response to Laffy Kat (Reply #1)

Mon Feb 18, 2019, 11:48 PM

4. I feel so helpless

But we keep trying different things. Hopefully something works soon.

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Response to Lotusflower70 (Original post)

Mon Feb 18, 2019, 04:18 PM

2. Best of luck to him. Aimovig has worked well for me so far.

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Response to unblock (Reply #2)

Mon Feb 18, 2019, 11:57 PM

6. He got to pick

The medication he could switch to. He chose to try Emgality. His neurologist is really empowering him with his own health care. She is just phenomenal.

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Response to Lotusflower70 (Original post)

Mon Feb 18, 2019, 10:45 PM

3. Hopefully you will have positive results soon.

Wishing you all the best!

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Response to littlemissmartypants (Reply #3)

Mon Feb 18, 2019, 11:49 PM

5. Thank you

He tracks his migraines. Out of the last 90 days, he had migraines 45 of those days.

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Response to Lotusflower70 (Reply #5)

Tue Feb 19, 2019, 04:51 AM

7. Not much of a quality of life.

I know it must be heartbreaking for you as his mom. Be sure to take care of yourself. ❤

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Response to littlemissmartypants (Reply #7)

Tue Feb 19, 2019, 12:13 PM

8. I know right

I feel terrible for him. I am generally a positive person and it kills me to see him going through this. I would take all his pain if I could but I can't. But I will continue to fight like hell for him to get answers.

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