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Wed Aug 13, 2014, 11:52 PM

Stem Cell transplant starts tomorrow

And I was advised this morning that sadly. the cancer has returned. Although the PT scan in mid June showed remission, 4 nodes of lymphoma have now shown up in this week's scan only 2 months later. This thing is really aggressive. Needless to say, this was more then unsettling news. My doctor, who heads up the transplant unit at UM Sylvester, assured me that he and 2 colleagues, all with extraordinary credentials, independently decided that moving forward with the autologous transplant still was the right decision. Apparently, it's not uncommon for lymphoma patients to go through these even when disease is present because the massive dose of chemo will knock it all out. As there is no cancer in my bone marrow, my stem cells are just fine to infuse after 6 days of chemo. I go in tomorrow (Thurs) at 10am. Will be checking in here when I can with updates and am journaling at caring bridge (PM me if you are interested in following along with my journey there).

Taking deep breaths (and just swallowed my nightly Xanax). With 4 weeks in the hospital looming in front of me, I feel like Piper from Orange is the New Black, heading into the slammer.

Wish me luck.

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Replies to this discussion thread
Arrow 11 replies Author Time Post
Reply Stem Cell transplant starts tomorrow (Original post)
KaryninMiami Aug 2014 OP
YvonneCa Aug 2014 #1
NYC_SKP Aug 2014 #2
sinkingfeeling Aug 2014 #3
slipslidingaway Aug 2014 #4
slipslidingaway Aug 2014 #5
Ruby the Liberal Aug 2014 #6
slipslidingaway Sep 2014 #7
slipslidingaway Sep 2014 #8
Ruby the Liberal Sep 2014 #9
slipslidingaway Sep 2014 #10
Solly Mack Sep 2014 #11

Response to KaryninMiami (Original post)

Thu Aug 14, 2014, 12:27 AM

1. ...

...

Hugs are more powerful than wishes...

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Response to KaryninMiami (Original post)

Thu Aug 14, 2014, 12:46 AM

2. Wishing you tons of luck...

 

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Response to KaryninMiami (Original post)

Thu Aug 14, 2014, 08:43 AM

3. Wishing you the very best.

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Response to KaryninMiami (Original post)

Fri Aug 15, 2014, 12:14 AM

4. Stay determined ...

and sorry to hear the results of the latest scan. I do not know the particulars of your disease, but you can check the LLS boards, both under lymphoma and under stem cell transplant. If you do, you'll see that the word "determined" is used more frequently than the word "positive." Nobody can stay positive all the time, just try and stay determined, day by day!

As my husband's doctor said ... we have lots of drugs, use whatever meds (anti-anxiety/pain) you need to get through this period, your job is to get through the next month!

Best of luck!













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Response to KaryninMiami (Original post)

Wed Aug 20, 2014, 12:25 AM

5. Best of luck on Day Zero!!!

And +1, +2, +3, +4 .......




"The day you receive your new cells is often called 'Day Zero'. It usually comes 1 or 2 days after you complete the preparative regimen..."

http://bethematch.org/For-Patients-and-Families/Getting-a-transplant/Transplant-day/



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Response to KaryninMiami (Original post)

Sun Aug 24, 2014, 11:38 AM

6. Keeping you in thoughts and prayers, Karyn

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Response to KaryninMiami (Original post)

Tue Sep 2, 2014, 12:26 AM

7. Hoping you will be leaving the hospital soon ...

and that your counts continue to rise

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Response to KaryninMiami (Original post)

Sat Sep 13, 2014, 12:36 AM

8. Just read an update on Karyn's CB site ...

she is now home and taking things one day at a time.

Healing thoughts coming your way



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Response to slipslidingaway (Reply #8)

Sat Sep 13, 2014, 09:00 AM

9. Thank you for that update.

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Response to Ruby the Liberal (Reply #9)

Sat Sep 20, 2014, 07:30 PM

10. You're welcome ...

I always look for updates from the participants here in the forum, so thought others might want to read the latest.

We all need a little push and encouragement at times.

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Response to KaryninMiami (Original post)

Wed Sep 24, 2014, 03:56 AM

11. (((KaryninMiami)))

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