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Fri Jun 19, 2015, 06:31 PM

 

Living with autism: year 33

Note to readers: I did not kill my child today. I did not kill her all this week. I deserve a medal, or a vacation, or at least the richest chocolate cake on earth. (Mainly, because I couldn't figure out how to dispose of the body, and I didn't have time anyway.)

Living with autism....call this living?....is not for the faint of heart. It's perpetual two-year-old cum adolescence.

When "helpful" people try to fill the PDD-NOS brain with ideas that cannot be understood safely, trouble results. Like wandering away unattended and getting picked up by the fire department and stuffed in an ambulance and carted to the ER because some concerned passer-by wondered what the crazy woman mumbling to herself was doing all alone...

Like screaming at the person who is trying to get food on the table after a hard day's work because ice cream, trips to the library or shopping, or a movie are not instantly forthcoming or promised....

Like raiding the freezer at night, leaving the door open and letting the ice cream melt all over the freezer and floor.

That kind of week. One in a series....

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Reply Living with autism: year 33 (Original post)
Demeter Jun 2015 OP
Hoppy Jun 2015 #1
dixiegrrrrl Jun 2015 #2
Demeter Jun 2015 #3

Response to Demeter (Original post)

Fri Jun 19, 2015, 06:48 PM

1. Sure makes my shitty week look easy.

 

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Response to Demeter (Original post)

Fri Jun 19, 2015, 08:42 PM

2. How do you get respite time for yourself??

And what is going to happen when you can no longer give all the care that is needed?

I simply cannot imagine the strength needed to be a parent......chocolate cake every day is deserved but faint reward.

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Response to dixiegrrrrl (Reply #2)

Fri Jun 19, 2015, 08:57 PM

3. I have a flaky respite provider, and two agencies

 

but what I really need is time to be in my home, working without whining (or destruction) following behind me and undoing everything.

I'm in the process of autism-proofing the house for high safety/low maintenance. It is an uphill battle which rates its own pity-party....

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