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Mon Sep 2, 2019, 01:37 PM

Can't sleep

So sick of this!

Been up until 3-4:00 a.m. several days in a row.

No more help w/the severe spasticity that I have from MS due to a forced taper from meds that HELP. Nothing else they tired (drugs they tried over 25 years again - nothing new!) has helped, just made me a lot worse.

Feet are all curled up. How the hell does one walk on feet like this much less wear a pair of something known as shoes?

I ordered two pairs of cheap slippers that allow me to walk a bit, but not much. Searing pain shooting up and down the legs and sharp pains in my head.

God this shit sucks!

I've tried everything and NOTHING will get me some rest, nothing.



28 replies, 1029 views

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Arrow 28 replies Author Time Post
Reply Can't sleep (Original post)
CountAllVotes Sep 2 OP
Phoenix61 Sep 2 #1
empedocles Sep 2 #2
CountAllVotes Sep 2 #4
empedocles Sep 2 #9
irisblue Sep 2 #3
CountAllVotes Sep 2 #5
irisblue Sep 2 #6
CountAllVotes Sep 2 #10
Laffy Kat Sep 2 #7
CountAllVotes Sep 2 #15
Freddie Sep 2 #17
CountAllVotes Sep 2 #19
Skittles Sep 2 #23
irisblue Sep 2 #8
Laffy Kat Sep 2 #18
irisblue Sep 2 #24
Laffy Kat Sep 3 #26
captain queeg Sep 2 #11
CountAllVotes Sep 2 #13
empedocles Sep 2 #12
empedocles Sep 2 #14
CountAllVotes Sep 2 #16
captain queeg Sep 2 #20
CountAllVotes Sep 2 #21
captain queeg Sep 2 #22
CountAllVotes Sep 3 #25
captain queeg Sep 3 #27
Amanda Cerny Sep 12 #28

Response to CountAllVotes (Original post)

Mon Sep 2, 2019, 01:39 PM

1. I am so sorry. I can't imagine. nt

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Response to CountAllVotes (Original post)

Mon Sep 2, 2019, 01:45 PM

2. absorbable melatonin [under the tongue]?

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Response to empedocles (Reply #2)

Mon Sep 2, 2019, 01:49 PM

4. Tried that

It was in a cannabis infused medication called "Dream Away".

I had no dreams but was semi-stoned and wide awake.

The medical MJ doctor tells me, "Studies show that this WORKS!". I told her it doesn't do a thing for me but drain my pockets of money I really don't have to spend.

This is getting sooooooooooooooooooooo old!

I can see why people simply give up w/this shit.

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Response to CountAllVotes (Reply #4)

Mon Sep 2, 2019, 01:55 PM

9. The Puritan'sPride Quick Dissolve Melatonin [no cannabis], 10 mg was about a nickel a tablet.

So it's cheap to try. Worked for me. OTC doxylamine 25 mg works, not for long-term use though. [Melatonin is a 'brain cleaner' btw, good for you]. Good Luck.

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Response to CountAllVotes (Original post)

Mon Sep 2, 2019, 01:46 PM

3. What does your Doctor say?

Cause I get mean without sleep.

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Response to irisblue (Reply #3)

Mon Sep 2, 2019, 01:50 PM

5. I see a nurse

She is the one that started this force taper crap.

I told her that the pain is worse, I cannot sleep, etc.

She just looked at me with a grin on her face.

Seriously. WTF!?

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Response to CountAllVotes (Reply #5)

Mon Sep 2, 2019, 01:52 PM

6. Put a shoeprint on her head. Demand the doctor, be a freaking pest.

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Response to irisblue (Reply #6)

Mon Sep 2, 2019, 02:01 PM

10. If you say the word DOCTOR

They have to let you see a doctor but they'll remember that you did that because it makes the nursiepoo look bad.

However, NO treatment for a chronic symptom that is worsening w/age?

I seriously think they want to off the lot of us (meaning the disabled).

I intend to call as soon as they are open again and I will tell them that their plans to cut me off of everything I am taking is NOT WORKING!

FUCKERS!!!!!!


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Response to CountAllVotes (Reply #5)

Mon Sep 2, 2019, 01:53 PM

7. I just hate what they're doing to patients now.

They are so afraid of people becoming dependent on narcotics, but if it's the only thing that helps and your disease is chronic, why not?

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Response to Laffy Kat (Reply #7)

Mon Sep 2, 2019, 02:13 PM

15. Who is next?

If the drugs allow me to live my life and get out now and then, it is worth it.

This war on opiates is plain stupid!

One sad case here:

>>Laura Johnson shuffled over to her coffee pot, hunched over at a 90-degree angle. She gazed out the window, watching birds land on her deck.

The 62-year-oldís spine is twisted due to slow deterioration from multiple sclerosis.

Johnson, of Shafer, Minn., said she could function normally when she was taking opioids for the pain. But after being weaned off of the medication, she can hardly leave her house due to agony from regular movement.

https://www.twincities.com/2019/08/25/chronic-pain-patient-leads-charge-in-favor-of-opioids-despite-addiction-fears/

This story is me in a nutshell. Will I be next?

If so, its buh bye because it WILL KILL ME if they do!

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Response to Laffy Kat (Reply #7)

Mon Sep 2, 2019, 03:02 PM

17. It's horrible

My son-in-lawís dad has horrible back pain from rheumatoid arthritis. Doc now refuses to prescribe anything that works. Already an alcoholic, now he drinks for pain relief too. Slowly killing himself.

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Response to Freddie (Reply #17)

Mon Sep 2, 2019, 03:16 PM

19. Who can blame him?

These forced tapers violate the hippocratic oath of DO NO HARM.

Well they are doing plenty of harm, esp. to vets!

I read that 30% of vets that have been forced tapered are DEAD 6 mos. after a forced taper.

Suicide!

Suicide due to pain should never be an option but it looks like a viable option when you are living with severe pain or a progressive painful disease.

The Surgeon General went so far as to follow some idiotic advice from Iran that purported to work as well as opiates for pain -- a Tylenol IV for F's sake!

This idiot needs to be the next one in the Dump admin. to resign!

He is killing people with his stupidity!

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Response to CountAllVotes (Reply #5)

Mon Sep 2, 2019, 07:26 PM

23. you need to see someone else

that is disrespectful, and you could use a second opinion

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Response to CountAllVotes (Original post)

Mon Sep 2, 2019, 01:54 PM

8. I also started a DR appt with the new nurse by asking" Who The Hell Are You"

When a stranger walked in the room.

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Response to irisblue (Reply #8)

Mon Sep 2, 2019, 03:08 PM

18. To you? Did she say that to you? Jesus. nt

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Response to Laffy Kat (Reply #18)

Mon Sep 2, 2019, 10:06 PM

24. It was a pap smear appear apt

It was a noisy loud appk I rebooked

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Response to irisblue (Reply #24)

Tue Sep 3, 2019, 02:12 AM

26. I don't blame you.

Those are bad enough under the best circumstances.

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Response to CountAllVotes (Original post)

Mon Sep 2, 2019, 02:02 PM

11. Sorry for your pain

The latest war on drugs causality are those in chronic pain and the reaction to the opioid epidermic. I think lots of people were getting drugs that didnít really need them and focusing on those should be the tack they take. As usual itís one size fits all for their response.

I was in a lot of pain last year and got up to pretty high and regular doses. Got to the point where my doctor suddenly and without telling me halved the prescription. Fortunately my cancer doctor re established the regime. I guess cancer doctors donít get the DEA breathing down their necks. As things worked out the pain was from a bone infection and once I had surgery and an aggressive antibiotic treatment Iím not in any pain now. But my cancer is very early stage and I know thereíll come the time Iíll need this drugs again and worry that I wonít be able to get them

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Response to captain queeg (Reply #11)

Mon Sep 2, 2019, 02:09 PM

13. Every month I live in fear

I always wonder, "Will they fill my RX?".

So far the biggest problem I've had was with CVS. They actually manipulated an RX I took in for 1/2 the amount. The other half went to ... the person working at the pharmacy and is now in JAIL.

What a shit way to live. Every month I wonder am I next?

I actually know of a person that has been cut off.

She spends her days in bed now and manages to slink to a nearby store to buy Kratom and bogus CBD. It is taking all of her resources and being she is afraid to drive, she has to take a taxi to and from this place to buy these items.

So sad what they are doing to the chronically ill living in intractable pain. It is a heinous crime IMO!

They should lock up these freaks that are indeed killing the disabled.



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Response to CountAllVotes (Original post)

Mon Sep 2, 2019, 02:06 PM

12. You might try a medical person with 'Functional Medicine' certification

They tend to see more of the possibilities than others. Often use computer aided scans of systems. My wife saw 3 different MD's who were stumped. Functional identified the problem as Lyme disease - problem got solved.

Look for a national clearing house - for someone near your area.

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Response to empedocles (Reply #12)

Mon Sep 2, 2019, 02:10 PM

14. Was a naturopath who found and nurse practitioner who followed part of the during proticol.

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Response to empedocles (Reply #12)

Mon Sep 2, 2019, 02:16 PM

16. There is a doctor shortage where I live

The M.D. I went to for years began to question the reality of my illness after 20+ years.

She called me up and was cursing at me. That did it!

I never went back.

I was "lucky" to be accepted into a rural health clinic, LUCKY.





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Response to CountAllVotes (Original post)

Mon Sep 2, 2019, 03:27 PM

20. I live in one of the states with legal marijuana

Iíve tried it a few times when I had a lot of pain. Didnít hep me. Iím jealous of those for whom it works. Tried the pure CBD too, no help. Iíve gotten some THC/CBD capsules for my brother who has ALS. Heís not really in physical pain but completely helpless in an electric wheelchair. Iíve been getting him edibles for a couple years, he canít breath on his own so canít smoke. But the capsules seem to help. They certainly help his mood which is the most important thing. Itís hard to say if itís had any effect on the disease. I started getting it for him about 3 years ago. Heís been on hospice twice because they thought heíd die, but his progression has been really slow so maybe itís helping with that too.

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Response to captain queeg (Reply #20)

Mon Sep 2, 2019, 03:50 PM

21. Same here

They have deemed me to be a fatal case so I receive a 30% discount on all MJ products which is nice if you can afford it.

I've tried all of the above with no great help.

Sadly, I lost half of my intestines due to NSAID pain killers 10 years ago and I can't eat anything much.

I used to be a hefty person but no more (-80+ lbs).

Appetite is non-existent and now no sleep.

I wonder how much longer I will be able to go on like this?

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Response to CountAllVotes (Reply #21)

Mon Sep 2, 2019, 04:27 PM

22. Ever try Kratom?

It does seem to help for a day or two, I guess after that your body gets used to it. Have to wait awhile to do it again. I tried all sorts of stuff when I was really hurting. Like I say Iím real fortunate at the moment. I too ruined my stomach with NSAID. Those help a lot, just canít take it any more.

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Response to captain queeg (Reply #22)

Tue Sep 3, 2019, 12:41 AM

25. I have not

I heard it was rough on the stomach so that drove me away.

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Response to CountAllVotes (Reply #25)

Tue Sep 3, 2019, 05:41 AM

27. I don't think that's necessarily true, there are different methods.

But it does taste terrible. Once I chocked it down didnít notice much.

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Response to CountAllVotes (Original post)

Thu Sep 12, 2019, 11:24 AM

28. Can't sleep

 

You should attempt these tips then you should defeat the sleep issue. Wake up simultaneously every day. Take out alcohol and drugs like nicotine and caffeine. Exercise consistently. Limit activities in bed. Try not to eat or drink directly before going to bed. Make your sleeping environment comfortable.

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