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Home » Discuss » DU Groups » Health & Disability » HIV/AIDS Support Group Donate to DU
 
Liberal Veteran Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Feb-09-07 10:24 PM
Original message
Please allow me to introduce myself....
I'm "celebrating" my 20th year with this unwanted guest in my body.

The last 7 of them, I have been taking taking antivirals.

My first counts were pretty crappy at 22 t-cells and 250,000 for a viral load.

I've been undetectable since the first set of blood work since starting medication.

My t-cells at last count (although I don't trust the latest result) were at 610. The reason I don't trust them is because it took over 2 years to get my counts above 200 and than was with Interleukin-2 therapy and they have never gotten above the mid-300's until this latest bloodwork. I'll trust those results if they are about the same next time.

I certainly have high hopes that they are.

My current medications are Atripla, Marinol, Wellbutrin XL, and Serostim (human growth hormone for lipo).

I work full time, I have a wonderful long-term relationship with a negative partner and we'll be celebrating 16 years together this spring.

Life is still good.
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MuseRider Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Feb-09-07 11:15 PM
Response to Original message
1. Life is still good.
I am so happy to hear that.

It is good to see you.
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Malikshah Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Feb-09-07 11:17 PM
Response to Original message
2. Happy anniversary in advance.
And more power to you both. Not that you need it. Life is indeed good.
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and-justice-for-all Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Feb-10-07 12:17 AM
Response to Original message
3. Congrats...
..I have been in a relation for 12years, with a (+) partner who is doing very well.

Are those all your babies? We have 3 kitties and one of them is names Sybil as well. we also have Mona and Kitty Boy, all of which are rescued strays. I think animal companions are important, specially under difficult circumstances, I cant imagine life without my four-legged friends around.

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Liberal Veteran Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Feb-10-07 09:54 AM
Response to Reply #3
6. Well, I haven't updated my kitty pics recently.
Sybil passed away about six month ago. And I have two other kitties: Chatterbox and DeDe.
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Cobalt Violet Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Feb-10-07 07:10 AM
Response to Original message
4. So glad to hear your doing so well.
How often do you have to check your blood work?

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Liberal Veteran Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Feb-10-07 09:52 AM
Response to Reply #4
5. Every three to six months.
My former HIV doc who moved on to a new position as head of a hospital said he saw no need to have my blood work done every quarter since my health was so stable. Although when we changed my antivirals from Sustiva/Combivir to Sustiva/Truvada, we went back to every three months, which is wise.

Now I have a team as my HIV care providers consisting of a doctor, a pharmacist, a dietician, and a social worker that operate out of our community health clinic. I was certainly impressed with thoroughness on my first visit in November.

I was a little dismayed that they felt a need to repeat a bunch of tests that they should have already had the results for from my previous doc, though (hep screen, toxoplasmosis screen, etc).

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Cobalt Violet Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Feb-10-07 10:02 AM
Response to Reply #5
7. I hope all goes well.
And you T cell count really is that high.

It sounds like you have a great team that you work with.
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pinto Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Feb-10-07 12:39 PM
Response to Original message
8. Good to hear you've responded to tx so well. Any problems with the Atripla?
Edited on Sat Feb-10-07 12:59 PM by pinto
:thumbsup:

(on edit) I'm on it, as well. No major problems.
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Liberal Veteran Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Feb-10-07 06:38 PM
Response to Reply #8
9. No. It wasn't much of a switch for me, because I'd been on Sustiva/Truvada prior...
Other than crappy cholesterol numbers and a little grogginess in the first few weeks, I have been blessedly free of side effects.
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William769 Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Feb-10-07 08:27 PM
Response to Original message
10. Glad to hear.
When I was diagnosed my t-cell count was 3 viral load 550,000+. That was two years ago. I am now about to break 200 on my t-cells which takes me out of the danger zone & my viral load is undetectable!
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nealmhughes Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Feb-12-07 10:48 PM
Response to Reply #10
11. Dude we rock!
150K VL in Janurary 2005 and CD4 of 85...two years and 40 pounds plus later, on Combivir and Sustiva, undetectable and 300ish since May of 06!

I get my full blood done every 6 months now (was 3) since no Chlosterol or kidney or liver problems. Right now still every 3 for basic labs, but it may soon go to twice a year!

I'm even getting ready to go back to work, applied for 3 asst. professorships today and yesterday, and walked 2 miles with dogs today...

Other than that complete blockage of my left carotid artery and the 3 months having to learn basic right handed skills again...and my crappy sinuses...I'm in fine health, save that "whiff of HIV..."
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William769 Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-14-07 05:59 AM
Response to Reply #11
12. Great news!
I still have my labs done every 3 months because of Chlosterol problems. :(
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leQ Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Mar-12-07 12:50 PM
Response to Original message
13. my goodness, are those cats your family?
Edited on Mon Mar-12-07 12:51 PM by leQ
stay well liberal veteran. i only wish i could have someone by my side sharing this illness with me. but i'm alone. i used to like being alone, but lately it's become more of a burden. anyway, glad to see you're doing so well. i always like to draw inspiration from those who have managed to keep this disease in check.


on edit: i saw your post about the cats after posting this. sorry.
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