http://www.freep.com/article/20090305/NEWS15/903050359Research copyright bill would end free health info
Like many parents of children with a chronic illness, Sally Nantais of Wyandotte invests a lot of time looking into ways to help her 17-year-old son, Austin, battle Fragile X Syndrome.
That hunt often leads her to PubMed Central, a government Web site where everyone has free access to many federally-funded studies.
But a new bill sponsored by U.S. Rep. John Conyers, D-Mich., would make it tough and costly to get to those studies. The Fair Copyright in Research Works Act would reverse a National Institutes of Health policy set last year that held that the public should not have to pay to see the results of medical research funded with taxpayer dollars. The bill would prevent other agencies from making similar rules regarding free public access to published studies.
The bill, still in committee, has patient advocates, scientists, librarians and others up in arms.
"I'm concerned I'm going to lose something very vital to me to help my son," Nantais said.
Others fear that if the bill becomes law, cutting-edge information will stop moving freely among the people who create medical breakthroughs and the people who benefit from them.
The reasoning behind the bill has puzzled observers who note that Conyers is a staunch advocate of universal health care. He has a history of pushing for laws that strengthen copyright protections, too....
....Current law requires scientists to submit NIH-funded work to PubMed Central when it is accepted for publication in a journal. It's free to the public after one year.
The bill would keep studies protected under journals' copyrights, often for decades, according to the U.S. Copyright Office.....
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I think John Conyers is wrong. The public pays for and volunteers for the vast bulk of our medical research through public universities. The last thing we need is more $$$ being attached to what should be a public good in the first place.
I'm thoroughly shaken w/ Conyers on this. What is he thinking?