Well this is not good.

[TZ]

I just got back from my personal hematologist. And discovered--my platelets have gone up AGAIN. At Mayo they were 1475. Today they were 1620. Not at all good. That puts me in the danger zone for bleeding risk. AND I've been having some leg (not muscle) pain..that when I mentioned to the doc REALLY concerned him. Gonna keep an eye on that, I assure you. I have also been much more fatigued in the last couple of days.
I still don't have my meds. The doctor's office at Mayo is still trying to get the insurance company to approve it.
My hematologist is a little surprised by me going on interferon, he thinks its a bit strong and I should stay with the older chemo drug Hydrea..I had some vomiting issues that I am not convinced wasn't from the meds. Well we shall see. Have to get the docs to communicate...Frustrating this is.x(

[lost-in-nj]

sorry

TZ

:hug:

I hope they can get the meds approved....

maybe your reg. Doc should call the insurance comp. or the Mayo docs.
This might be the push the Ins. company needs to approve it....


lost

[CaliforniaPeggy]

1. My dear turtlensue...

I'm so sorry to hear this...

Yup, the docs need to talk to each other, and to you, for sure...

Please take care, OK?

Hugs to you, sweetie...

:hug: :hug: :hug:

[DFW]

2. Many friends and relatives confronting life-threatening junk these days

Hang in there. It ain't over til it's over, and it ain't over yet!

[Parche]

3. My Favorite Turtleandsue

:hug: :hug: :hug: :hug:


:hi:

[TZ]

4. Hi Parche.

How you doing..Hanging in there?:hug:

[Gormy Cuss]

5. Ugh. Double Ugh. Triple Ugh.

I hope the platelet count goes down soon.

[Haole Girl]

6. Hope you get your meds soon...

insurance companies... grrr.

:hug:

[two gun sid]

7. turtlensue, I hope they get the medication...

and insurance situation fixed soon. All my very best to you.

[ThomCat]

8. I have been thinking about you a lot recently.

I'm a worrier. :(

I hope this gets straightened out and your numbers come down. Please be well. :hug:

[lightningandsnow]

9. Sorry to hear that.

Stay strong, okay hun?

:hug:

[Skittles]

10. ?? I am confused

I'm a platelet donor and the way I understand it is it's a LOW platelet count that causes bleeding, no?

[TZ]

15. This is an odd disease I have

It can cause both bleeding and clotting..One because the platelets made are mal-formed and don't work entirely right.
Also other clotting factore (besides platelets) in the blood aren't made..at least thats the simple explanation for it.

[Skittles]

16. oh dear

I feel for you my sweet :o

[lizerdbits]

11. What you need is a good old fashioned blood letting

Sorry, trying to be humorous. Hope you get the IFN soon and it helps. :)

[malta blue]

12. that stinks

:hug:

Sending healing vibes your way :hug:

[av8rdave]

13. Sounds like a tough day...so sorry

Hope your med situation gets straightened out soon, and hope you're feeling better!

[GreenPartyVoter]

14. That's not good *hugs* I hope you can get some good meds right away!

[Dr. Strange]

17. Aw crap.

Hopefully I'll have something to cheer you up within the next couple of days.
;)

[Spacemom]

18. I don't know what to say

except I hope you're on the mend soon, and offer :hug:

Hang in there.

[Bullwinkle925]

19. Dear TnS . . .

Wish I had that *magic wand* - I would be waving it frantically all about you.
I wish you well and hope the days become easier from here on . . .



http://www.smh.com.au/ffximage/2006/09/24/helendallimore_wideweb__470x312,0.jpg

[KitchenWitch]

20. Oh man.

:hug:

Wish I could do something.