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please send good thoughts to this young girl in UK

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medeak Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Aug-21-06 05:53 PM
Original message
please send good thoughts to this young girl in UK
I met her last xmas...the most beautiful 14 yr old you can imagine...she has "Abe Lincoln syndrome" they call it...very elongated fingers (beautiful) along with body but terrible heart and spine defects...we got bad news today...she has been the poster child for this disorder but need some good news...please send good wishes that I can forward to her?

From her Mom:

HI MOLLY HAS TO HAVE MORE SPINAL SURGERY , MR MARKS ( HER SPECIALIST
)HAS SAID THAT THE MUSCLES EACH SIDE OF HER SPINE ARE DAMAGED THROUGH
ALL THE SURGERY AND NOW THEY ARE JUST HANGING THERE STICKING OUT MAKING
MOLLY LOOK A LITTLE STRANGE, ALL THE NERVES ARE DAMAGED, ALSO HER RIB
CAGE IS TWISTING AND THEY WANT TO OPERATE TO STOP THIS, SHE'S FINE JUST
WORRIED ABOUT HER SCHOOL WORK.
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ScreamingMeemie Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Aug-21-06 05:55 PM
Response to Original message
1. You can send a bunch and a half of good wishes for me!
For Molly! Stay strong... school work can wait... somebody in Michigan is sending a ton of good vibes. :grouphug:
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medeak Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Aug-21-06 09:02 PM
Response to Reply #1
2. thank you! am disappointed re the reaction...where the hell is everyone?
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Road Scholar Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Aug-21-06 09:04 PM
Response to Reply #2
4. Best wishes from me. Prayers too. nt
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ScreamingMeemie Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Aug-22-06 09:34 AM
Response to Reply #1
20. Kick for Molly!
:kick:
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lizziegrace Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Aug-21-06 09:03 PM
Response to Original message
3. Sorry, I was out this evening
:hug: to Molly. I wish we could do more than send best wishes.

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u4ic Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Aug-21-06 09:07 PM
Response to Original message
5. What a brave young woman!
I wish her all the best with her surgery...she sounds so incredibly special. And smart.

I respect her immensely for all the courage she's shown, and the pain she must endure. I hope she has much love and support in her life. :hug:
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medeak Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Aug-21-06 09:11 PM
Response to Reply #5
7. indeed...
kicking this...as she needs encouragement...Her Mom teaches disabled children...the best people you could meet... please send more good wishes!
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grannylib Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Aug-21-06 09:10 PM
Response to Original message
6. Marfans Syndrome...how sad!! I have a daughter Molly too...
So from the mom of one Molly to the mom of another...
My thoughts and prayers and best wishes are with you and your daughter. May God be with you and with her physicians as they work to bring her health and strength.
:hug:
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medeak Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Aug-21-06 09:13 PM
Response to Reply #6
8. your daughter has Marfans?
please pm me...they have the best docs in UK...if you could share info it would be wonderful.. ms
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grannylib Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Aug-21-06 09:17 PM
Response to Reply #8
9. No, the young lady from UK..."Abe Lincoln syndrome" is the more common
name for Marfans...
No, my daughter simply shares a name with the young woman from UK
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medeak Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Aug-21-06 09:20 PM
Response to Reply #9
10. Molly is a wonderful name
am so happy your daughter is fine....please kick this.. My Molly needs some good wishes.
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grannylib Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Aug-21-06 09:21 PM
Response to Reply #10
11. Kicked for good wishes for your Molly!!!
:hug:
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medeak Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Aug-21-06 09:23 PM
Response to Original message
12. my husband has Parkinsons and we bonded with this family
both handicapped...Molly is too beautiful and young to suffer however...please send good vibes and wishes to her!
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medeak Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Aug-21-06 09:37 PM
Response to Original message
13. come on people! please just send a good wish...or light a candle..
want so much to send something happy to Molly! If you met her like I did you couldn't help yourself...

thank you to you good people who responded...every message is sent to her.

She had a melt down for the first time ever yesterday..she really needs encouragement.
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Benfea Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Aug-21-06 09:44 PM
Response to Original message
14. Gah!
Best wishes and hugs for Molly!
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u4ic Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Aug-22-06 12:45 AM
Response to Original message
15. KICK
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LaraMN Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Aug-22-06 12:55 AM
Response to Original message
16. Oh wow. How scary!
Good thoughts on the way.
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Haole Girl Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Aug-22-06 01:07 AM
Response to Original message
17. Marfan Syndrome?
Hope she feels better soon! :hug:
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Nicole Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Aug-22-06 01:34 AM
Response to Original message
18. Good thoughts for Molly
:)
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Arugula Latte Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Aug-22-06 02:06 AM
Response to Original message
19. Molly -- I send you my best wishes
I'm sorry you have to go through all this. We're thinking about you. :hi: :grouphug:
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Anarcho-Socialist Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Aug-22-06 12:59 PM
Response to Original message
21. My best wishes!
:hug:
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flvegan Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Aug-22-06 01:00 PM
Response to Original message
22. Right to the top of my "Good Vibes List"
most certainly.
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miss_american_pie Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Aug-22-06 01:06 PM
Response to Original message
23. Of course
All my best wishes for her. :hug:
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NewWaveChick1981 Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Aug-22-06 01:07 PM
Response to Original message
24. Molly, we wish you the best!
We're cheering for you here in the United States! :bounce: Hope all goes well and you feel better very soon! :hi: :hug: :D
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medeak Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Aug-22-06 02:14 PM
Response to Original message
25. thank you all so much
received this reply:

MOLLY LOVED THAT THANK YOU ALL VERY MUCH!!!
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mvd Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Aug-22-06 05:19 PM
Response to Original message
26. Sending good vibes
Hoping for some good news soon!
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u4ic Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Aug-22-06 10:58 PM
Response to Original message
27. kick
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redwitch Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Aug-22-06 11:02 PM
Response to Original message
28. I send Molly all the best from beautiful upstate NY
I hope her surgery goes well. Hang the schoolwork, lots of time for that young'un!
:hi:

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