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Edited on Thu Mar-17-05 10:49 PM by diamond14
and that applies to any hospital, where the patient is unable to communicate to medical personnel in a coherent and lucid manner...
at all hospitals today, all across America....patients in your brother's condition are LEFT without much help...mostly because hospitals are understaffed and overworked, and have many other patients whose relatives pester the staff MORE than you....
you've got to BE THERE everyday, and everyday, ASK LOTS OF QUESTIONS of medical personnel...make certain that EVERY SINGLE DAY, his sheets are cleaned and changed, his bathroom is disinfected, his body is cleaned and his body functions are taken care of (eating, urinating and crapping)...nurses and nurses aids do this stuff, and often they skip some people (oh, they look OK today), because they are OVERWORKED, underpaid and understaffed....and high turn-over...
if nobody watches out for him...he can get BED SORES, other nasty infections, and all kinds of urinary tract stuff, and skin sores, etc....and that's all just for starters....
SECOND: be nice to the staff....they are going to take of your brother, but you need to be kind to them, and motivate them....too many people YELL at the staff....thank them often and sincerely, because their work is NOT EASY.....
get to know the DOCTORS who care for your brother...and ask them LOTS of QUESTIONS....doctors can make important REFERRALS, but often don't if nobody asks....Doctors give ORDERs to nurses....so that your brother's rehabilitation can begin....DOCTORS also examine your brother's condition and determine the treatment that will or will not be given....you MUST talk to the Doctors, and discuss your brother's options...YOU are now your brother's keeper....you can leave him there alone, or you can stand by with him as he recovers....you can ALWAYS ask for a second Doctor's opinion, and for REFERRALS to specialists....Doctors can order MORE TESTS.....
lots of times, just being there, and asking questions, moves the STAFF to like "OPEN THE MEDICAL RECORD, and read the orders" "recall that a special test was ordered and the patient hasn't been taken to the CAT-scan yet, so now, they will do that" "ooops....the nurses forget his injection today, so now they'll do it" and LOOK AT every single injection and medication to make certain it's been double-checked, ask the nurse to double-check or show you the container (mistakes in medications, injections is a HUGE problem, can be fatal, people get tired, overworked, night shift, etc.)
and after a while, the staff will KNOW that you'll be there EVERY DAY, and that YOU CARE, and the staff will be on top of the situation lots more...because a family member is THERE....Doctors, too...continuously TALK to the Doctors, because you now represent your brother, his interests, his life....and actually, Doctors like it when a family member takes responsibility, because for many people (rich and poor) the families frequently abandoned them at the hospital door.....THANK them, and make them proud of what they are doing, and you'll get alot more help for your brother....
at any hospital, there are special staff for rehabilitation AND for discharge home care AND for hospice, etc. But, you must FIND THESE PEOPLE, because they can help and advise you...but they too are OVERWORKED and understaffed and underpaid....so it's not like they are going to out and FIND YOU...there are also FAMILY counselors for YOU....YOUR brother's Doctor can order any services that he thinks are needed....Your brother's Doctor SHOULD be opening your brother's medical chart EVERY SINGLE DAY, and writing some more notes in there....ask him about it EVERY DAY....it's a PROCESS....ask every day about the sheets, and look at the bathroom, and look at your brother's body, to see if it's clean....and ask the nurses if any tubing has to be replaced, and if it's working correctly (I.V. drips, urinary catheters, etc.)...and ask the Doctor about your brother's progress....let them know that you are your brother's representative, and sign any necessary papers...ask for advice...ask and ask more for advice....then you can judge better what to do after getting as many opinions as possible....ask the nurses 'do patients like this recover well?'....older nurses have seen a LOT of patients like your brother, and can be blunt at times, but their experience can be invaluable to YOU....ask about life-support, and talk about it, so you can be calm and clear what your brother would want if that time comes....
it's won't be easy....I ran the whole gambit as my Mother died from cancer...for almost a year..in and out of hospitals....my brother is a Medical Doctor, a radiologist....it's just one of those MAJOR challenges in life.....IMO, you're always better to STAND with your brother....some in my family just abandoned my Mother in her dying days...and now, they are all in psychiatric counseling or on heavy prescription drugs.....while I feel OK about it all, even though it can be stressful and challenging at times....everybody gets to DIE at some point, and going through the process can be a good learning experience....my Mother died peacefully in my arms in her living room, in her big pink chair....as my medical doctor brother said: a Charmed Death (at the time, I wanted to punch him, but as time went by, I realized how charmed it really was, compared to a lot of cold impersonal hospital deaths, tubed up, and scared)....
my thoughts are prayers are with you...it's a lot of work...but it's something you should do for your brother....
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