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Longhorn Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Jan-09-09 09:22 PM
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I'm off to Chicago tomorrow!
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I was afraid I wasn't going to be able to make the trip because of this radiation proctitis that I am currently suffering -- and I mean suffering! But with some changes in my meds, I seem to be doing better. I'm taking Imodium to slow things down and I'll wear adult diapers on the plane if I have to but I'm going to the Cancer Treatment Center of America in Zion, Illinois, and find out their opinion!!!

I'll update this thread when I have any news and to let you know what the place is like. I found some old DU threads on the subject in this forum but none of us had actually been, though some had friends and family who had gone. So I'll be the official DU Cancer Support Group reporter. :)

I'm not expecting miracles but I am hopeful that their approach will work better for me. For example, if my Austin oncologist had taken my side effects seriously, I could have started treatment for the proctitis weeks ago and it wouldn't have developed to the ulcer stage. All of this misery could have been avoided. But it wasn't cancer so she wasn't interested, and in fact, she jumped to the conclusion that it was cancer when she finally felt something inside. Fortunately, I just knew she was wrong and didn't suffer needlessly while we awaited the biopsy results. There was no reason she had to bring up lesions since we were going to find out the next day anyway. That's just typical of her "bedside manners."

If I don't find what I'm looking for at CTCA, I'll keep looking. All I want is a doctor who is willing to believe that I can beat this or at least extend my time and who cares about my quality of life as I go through this. I don't think that's too much to ask.

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  -I'm off to Chicago tomorrow! Longhorn  Jan-09-09 09:22 PM   #0 
  - BRAVO,  elleng   Jan-10-09 02:34 AM   #1 
  - Thanks, elleng!  Longhorn   Jan-10-09 01:20 PM   #3 
     - delete  elleng   Feb-02-09 08:45 PM   #54 
  - It's unfortunate that you had (have) a dismissive oncologist.  Tracer   Jan-10-09 08:28 AM   #2 
  - I don't understand it either.  Longhorn   Jan-10-09 01:23 PM   #4 
  - Go! With prayers and best wishes and hopes.  JohnnyLib2   Jan-10-09 01:41 PM   #5 
  - I just realized I'll have to pay a luggage charge if we don't get everything into two carry-ons.  Longhorn   Jan-10-09 02:13 PM   #6 
  - Wishing the best for you!!  Tab   Jan-10-09 06:17 PM   #7 
  - Thanks, Tab!  Longhorn   Jan-10-09 06:31 PM   #8 
     - Well, if we make it to April and I haven't posted  Tab   Jan-10-09 06:47 PM   #9 
  - I'll be keeping my fingers crossed for you Longhorn!  auntAgonist   Jan-10-09 10:41 PM   #10 
  - Thanks, kesha!  Longhorn   Jan-12-09 07:13 PM   #17 
  - Good luck, Longhorn!  Uben   Jan-11-09 04:27 PM   #11 
  - Thanks, Uben!  Longhorn   Jan-12-09 07:14 PM   #18 
  - You are in my prayers  Ocracoker16   Jan-11-09 07:34 PM   #12 
  - The kindness of strangers never ceases to amaze me.  Longhorn   Jan-12-09 07:09 PM   #15 
  - Safe journey  seemunkee   Jan-12-09 11:46 AM   #13 
  - Thanks, seemunkee!  Longhorn   Jan-12-09 07:11 PM   #16 
  - My prayers go with you.  emilyg   Jan-12-09 03:28 PM   #14 
  - Your prayers are greatly appreciated, emilyg!  Longhorn   Jan-12-09 07:17 PM   #19 
  - UPDATE: Travel and first day.  Longhorn   Jan-12-09 07:30 PM   #20 
  - It's wonderful to hear about the reception and running start.  JohnnyLib2   Jan-12-09 08:51 PM   #21 
  - Sounds good so far. Thanks for update.  emilyg   Jan-12-09 09:31 PM   #22 
  - Its great to hear from you,  elleng   Jan-12-09 09:57 PM   #23 
  - You're only 4 hours from me right now but so far away..  auntAgonist   Jan-13-09 12:23 AM   #24 
  - Sounds encouraging  seemunkee   Jan-13-09 06:42 AM   #25 
  - It was cold here today, too, Longhorn  Uben   Jan-13-09 02:48 PM   #26 
  - UPDATE: Second day  Longhorn   Jan-13-09 03:56 PM   #27 
  - Sounding good, hope the week continues like this.  JohnnyLib2   Jan-13-09 06:10 PM   #28 
  - Hope you can go to Chicago  Ocracoker16   Jan-13-09 07:24 PM   #29 
  - i'm pulling for you, Longhorn  noiretblu   Jan-14-09 01:51 PM   #30 
  - UPDATE: Third day  Longhorn   Jan-14-09 06:44 PM   #31 
  - Here's hoping those meds give you a lot more control of pain.  JohnnyLib2   Jan-14-09 08:29 PM   #32 
  - I hope you do get the pain under control.  mwdem   Jan-15-09 12:45 AM   #33 
  - UPDATE: Fourth day  Longhorn   Jan-15-09 02:39 PM   #34 
  - I hope you sleep well tonight  Ocracoker16   Jan-15-09 03:53 PM   #35 
  - I slept pretty well,  Longhorn   Jan-16-09 08:39 AM   #38 
  - Huzzahs for the meds.  JohnnyLib2   Jan-15-09 06:37 PM   #36 
  - Yes, the meds are really making a difference!  Longhorn   Jan-16-09 08:40 AM   #39 
  - Let me know how you liked Gran Torino.  mwdem   Jan-15-09 11:05 PM   #37 
     - We liked Gran Torino.  Longhorn   Jan-16-09 08:45 AM   #40 
  - UPDATE: Fifth and Sixth Days  Longhorn   Jan-17-09 05:43 PM   #41 
  - Glad to hear all the news,  elleng   Jan-17-09 06:01 PM   #42 
  - What a heartening report.  JohnnyLib2   Jan-17-09 06:26 PM   #43 
  - Thanks so much for this heartwarming update  auntAgonist   Jan-17-09 07:48 PM   #44 
  - Hi Longhorn ...  Tracer   Jan-18-09 07:58 AM   #45 
  - Thanks for the heads up, Tracer!  Longhorn   Jan-18-09 10:16 AM   #46 
  - Best of luck with the new treatment  seemunkee   Jan-19-09 12:33 PM   #47 
  - Hope you are home now relaxing  Ocracoker16   Jan-19-09 06:09 PM   #48 
     - I am resting, thanks.  Longhorn   Jan-19-09 06:33 PM   #49 
        - Thinkin' about you.  JohnnyLib2   Jan-19-09 07:10 PM   #50 
        - Welcome home, Longhorn!  Uben   Jan-19-09 07:12 PM   #51 
  - Hello there--  JohnnyLib2   Jan-26-09 09:50 PM   #52 
  - Taxotere does cause redness.  Tracer   Jan-27-09 08:13 AM   #53 
  - We were with you all the way.  elleng   Feb-02-09 08:46 PM   #55 
  - R.I.P. Kendra.  Forkboy   Feb-02-09 09:09 PM   #56 
  - ...  bicentennial_baby   Feb-02-09 10:51 PM   #58 
  - ...  noiretextatique   Feb-05-09 07:00 PM   #62 
  - Rest in peace, Kendra.  racaulk   Feb-02-09 10:05 PM   #57 
  - so long to a beautiful soul.. You were loved Kendra. RIP  auntAgonist   Feb-03-09 12:11 AM   #59 
  - Cowgirl up, sweetie.  mwdem   Feb-04-09 10:31 PM   #60 
     - me too ... I can't stop reading these threads, thinking,  auntAgonist   Feb-04-09 11:56 PM   #61 

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