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DU Home » Latest Threads » Forums & Groups » Topics » Health » Chronic Health Conditions Discussion and Support (Group) » I have decided to follow ... » Reply #5

Response to LiberalLoner (Reply #3)

Thu Apr 18, 2013, 05:17 PM

5. Weren't you just recently diagnosed

Think I remember your post about waiting for a solid diagnoses, and reporting some very debilitating symptoms? I read all over this place and so sometimes I forget some individual particulars, and get shit,wrong, it isn't that you are not important to me as an individual.

My friend is lucky in many ways. She had a job with insurance for one. She just retired. She dropped her hours as low as she could and still quality for benefits. She took Interferon injections for at least ten years. It started interfering with her skin integrity. Her neurologist had two drugs he wanted to try. Both immunosupressives. She had to be tested for a virus that lays dormant in the brain that wakes up and kills the patient on one of the drugs. She was p ositive. The virus is a man's name initials, JC but it is not Jacobs Cretchfield(sp) guessing on the spelling. The other was also a big deal to start because it targets receptors on the heart and drops the rate way down. Her ekg had her at a pretty low heart rate. She had to be in a hospital like setting and have her vital signs monitored for six hours. She is tolerating the Gilenya pill well. I think it runs like 75,000 a year or something wild like that.

Best wishes on your treatment plan, my friend. I can't delete that positive smilie on edit, it was an error.

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