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In the discussion thread: Only MS, NMO came back negative! [View all]

Response to Downwinder (Reply #3)

Tue Apr 16, 2013, 05:57 PM

4. I'm sorry you have this too.

I hope you are doing okay!

I do seem to be RR, still in middle of diagnosis. The neuros say I have for sure a CNS demylenating illness with one large, bad spinal lesion stretching over several vertabrae and two small lesions in the brain and some signs of mild ON. But they were not sure which disease, which is why they did the NMO test and a bunch of other tests. I do have oligoclonal bands in spinal tap. So at least to me it sure looks like a bad form of MS.

I want to take DMDs pronto because I have had 3 attacks now in 3 months and want to slow this stuff down. Bought a walker, if I get any worse will need to use it. Getting by for now, just very stiff and limpy and have clumsy hands, weak legs, headaches, bad bad fatigue, twitching, jerking like seizures, muscle cramps, seem to be overly emotional lately, cry too easily.


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