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IdaBriggs

(10,559 posts)
17. They are all neuromuscular issues.
Thu Nov 29, 2012, 03:02 PM
Nov 2012

The SPD was a complete shocker, but our Child #2 had it as well as severe hypotonia, and the change was so dramatic that once the mom started jumping up and down about it (lol!) we began tracking it. Word quickly spread and we ended up with an "autism only, with SPD" subset, too.

100% improvement in the SPD by week six for all of them. For our purposes, we now view SPD as a "level one" neuromuscular issue (just because we have to categorize them somehow). It doesn't "cure" autism, but the SPD symptoms - issues with tags on clothing, bursting textures, loud noises, over-stimulation in busy environments, all with "meltdowns" - all start to resolve pretty consistently by around week six. The parents are ecstatic because it is such a life changer; two tear filled emails about Thanksgiving gatherings last week. Sigh.

The issues we are tracking are part of the process that seem to be impacting the recovery (specifically, decrease in hypo-and-hypertonic symptoms). We have found that for those children it doesn't help (12% - sigh), if they don't see changes in appetite and bowels (for those with severe constipation, which is very common in this population), then they don't get the weight/height gain, or the increase in strength/decrease in hypo-and-hyperspastic symptoms). The changes in energy/stamina, speech/communication, and cognitive all began as parent reported issues as well. It has been *very* exciting.



And our protocol is very well documented on our website. (Many people get upset about it, and I don't want to contaminate this thread with an argument about efficacy.)

We Have A RESEARCHER!!!!

Well Alright ... 1StrongBlackMan Nov 2012 #1
congratulations. hollysmom Nov 2012 #2
That's great!! Good news, indeed! PDJane Nov 2012 #3
Very cool libodem Nov 2012 #4
Thank you. IdaBriggs Nov 2012 #9
Before I became a nurse libodem Nov 2012 #23
Have a dear friend whose son passed away recently at the age of 54. jody Nov 2012 #34
I am trying to work here. Tears streaming down my face IdaBriggs Nov 2012 #35
Congratulations!!!! nt msanthrope Nov 2012 #5
Congratulations... Sekhmets Daughter Nov 2012 #6
Thank you. IdaBriggs Nov 2012 #11
An high school friend of my Sekhmets Daughter Nov 2012 #13
We have only been working with children twelve and under IdaBriggs Nov 2012 #15
No, IdaBriggs, Sekhmets Daughter Nov 2012 #16
You are going to make me cry. IdaBriggs Nov 2012 #18
NO, no, no Sekhmets Daughter Nov 2012 #21
Ahhhhh libodem Nov 2012 #24
My mother worked in the state institutions a long time ago IdaBriggs Nov 2012 #36
You learn to see past the condition libodem Nov 2012 #37
Fantastic! Science Geek Nov 2012 #7
Congratulations!!! OneGrassRoot Nov 2012 #8
fantastic! bigtree Nov 2012 #10
Agreed! And thank you! IdaBriggs Nov 2012 #19
Wow! I'm pulling for you Ida! AAO Nov 2012 #12
What an amazing reach across diagnoses...is it all behavioral or does it include medications? libdem4life Nov 2012 #14
They are all neuromuscular issues. IdaBriggs Nov 2012 #17
Thank you...didn't notice the website address in your sig line. Brought a few tears to this old libdem4life Nov 2012 #20
Outstanding. Next step is to have his report published in a peer-reviewed credible medical journal. jody Nov 2012 #22
Me too! Me too! IdaBriggs Nov 2012 #28
OK but as a prelim to publication the research lead could present interim results at a conference jody Nov 2012 #29
That would be awesome, wouldn't it? IdaBriggs Nov 2012 #30
Never be afraid to dream “Imagination is more important than knowledge. For knowledge is limited to jody Nov 2012 #31
Congratulations. Great cause. glinda Nov 2012 #25
tai kwan do greymattermom Nov 2012 #26
I'm happy for you and all the children that will be halped. Congratulations! Auntie Bush Nov 2012 #27
Bravo!! JNelson6563 Nov 2012 #32
congrats Liberal_in_LA Nov 2012 #33
Kicking for the Evening Crowd. IdaBriggs Nov 2012 #38
k&r Little Star Nov 2012 #39
Did you hire Dr. Sylvia Browne? CreekDog Nov 2012 #40
In three or four sentences, would you please explain what is being investigated? Ptah Nov 2012 #41
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