General Discussion
In reply to the discussion: I am giddy. We have a RESEARCHER!!! [View all]IdaBriggs
(10,559 posts)The SPD was a complete shocker, but our Child #2 had it as well as severe hypotonia, and the change was so dramatic that once the mom started jumping up and down about it (lol!) we began tracking it. Word quickly spread and we ended up with an "autism only, with SPD" subset, too.
100% improvement in the SPD by week six for all of them. For our purposes, we now view SPD as a "level one" neuromuscular issue (just because we have to categorize them somehow). It doesn't "cure" autism, but the SPD symptoms - issues with tags on clothing, bursting textures, loud noises, over-stimulation in busy environments, all with "meltdowns" - all start to resolve pretty consistently by around week six. The parents are ecstatic because it is such a life changer; two tear filled emails about Thanksgiving gatherings last week. Sigh.
The issues we are tracking are part of the process that seem to be impacting the recovery (specifically, decrease in hypo-and-hypertonic symptoms). We have found that for those children it doesn't help (12% - sigh), if they don't see changes in appetite and bowels (for those with severe constipation, which is very common in this population), then they don't get the weight/height gain, or the increase in strength/decrease in hypo-and-hyperspastic symptoms). The changes in energy/stamina, speech/communication, and cognitive all began as parent reported issues as well. It has been *very* exciting.
And our protocol is very well documented on our website. (Many people get upset about it, and I don't want to contaminate this thread with an argument about efficacy.)
We Have A RESEARCHER!!!!