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Number of posts: 3,337
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Career advancement, current and future funding, financial gain are all irrelevant to these parents, although scientists may be unduly influenced by these factors more frequently than imagined. Blaxill also touched on the existence of third rail research topics during his testimony and blacklisted scientists.
Here's an example of interference:
Posted by proverbialwisdom | Fri Nov 30, 2012, 02:21 PM (1 replies)
I'm very sorry to be misunderstood, but hugely optimistic after recently reading about the following news from the American Academy of Pediatrics. Yesterday's 'woo' may not actually all be woo. Stay posted, please.
Pediatrics leader talks about biggest issues facing kids
By Karen Weintraub | GLOBE CORRESPONDENT NOVEMBER 05, 2012
AAP Calls Autism an Epidemic
November 05, 2012
By Anne Dachel
The new head of the American Academy of Pediatrics, Dr. James Perrin, calls autism an epidemic. He really does. Perrin was the focus in an interview just out from the Boston Globe: Pediatrics leader talks about biggest issues facing kids.
“Perrin is particularly interested in addressing chronic childhood illness during his three years of leadership at the academy.”
Perrin had this to say about “chronic childhood illness.”
“Childhood obesity and other chronic health conditions: the continuing growth in childhood asthma, and the tremendous growth in mental health conditions and developmental conditions like autism. We’ve got three or four major epidemics really growing among children and adolescents in America.”
I couldn’t believe he talked like this because in the past the AAP has been leading the way calling autism a mysterious disorder with no known cause or cure. I have never seen anyone connected to the AAP ever sound worried or use the word crisis in the same sentence with the word autism, let alone epidemic. Most of the time, the AAP is right there in the news declaring solemnly that, regardless of the latest rate increase, they’re still not sure how much is real and how much is more better diagnosing. When the rate went to one in every 88 children, one in every 54 boys, the head of the Centers for Disease Control and Prevention, Dr. Thomas Frieden, still wasn’t sure if more children really have autism. In the same story, Dr. Susan Hyman, chairperson of the Autism Subcommittee of the AAP, could only say that early intervention helps a lot.
Still, no one at the AAP has even been alarmed about the numbers continually climbing with no end in sight—until now.
1995 1:500, 2001 1:250, 2004 1:166, 2007 1:150, 2009 1:110, 2012 1:88.
FYI prior to 1960 1:10,000.
SUPPLEMENT ARTICLE - Gastrointestinal Conditions in Children With Autism Spectrum Disorder: Developing a Research Agenda
Gut-Brain Connection? Leaky Gut? No longer “Crazy Talk” says AAP
November 8, 2012
by Dr. Bob Sears
The American Academy of Pediatrics (AAP) has just taken a giant leap toward recognizing the association between gastrointestinal problems and Autism Spectrum Disorders (ASD.) The November 2012 issue of their journal, Pediatrics, has a 200-page supplement entitled Improving Health Care for Children and Youth With Autism and Other Neurodevelopmental Disorders (Note: this guide was not currently available online.) As I perused the various articles to see what the AAP was up to, one particular gem caught my eye: Gastrointestinal (GI) Conditions in Children With Autism Spectrum Disorder: Developing a Research Agenda. Curiously optimistic, I decided to pause the Saturday-afternoon college football game and read the article. After a mere three sentences, my jaw dropped. “Many individuals with ASDs have symptoms of associated medical conditions, including seizures, sleep problems, metabolic conditions, and gastrointestinal disorders (the italics are mine), which have significant health, developmental, social, and educational impacts.” A few lines later I found there is a “lack of recognition by clinicians that certain behavioral manifestations in children with ASDs are indicators of GI problems (eg, pain, discomfort, or nausea).”
My first thought was that someone from ARI or MAPS had snuck into the AAP and switched a few words in the article before it went to press, and no one had noticed. But as I read the entire piece, I was shocked to see other crazy ideas such as:
“Clinical practice and research to date indicate the important role of GI conditions in ASDs and their impact on children as well as their parents and clinicians.”
A table on “Biomarkers as potential outcome measures” includes testing for: intestinal permeability to assess leaky gut, calprotectin for intestinal inflammation, celiac disease serology tests to assess gluten sensitivity, food allergy panels (not sure what for . . . maybe food allergies play some sort of role in all this?), organic acid testing for B12 or folate deficiency, and analysis of gut microbiota.
The article ends with a discussion on the lack of accepted treatments for GI problems specific to children with ASD and outlines six key research objectives:
1.Determine the pathology of GI conditions in ASD.
By the time I finished reading, the cynical frame of mind with which I usually read mainstream articles about autism treatment was replaced with optimism. Finally, mainstream research is planning to look at the gastrointestinal and nutritional aspects of biomedical treatment for autism. For twenty years or more, biomedical physicians have been treating GI problems in autism without much support from thorough mainstream research, and we’ve endured much criticism for doing so. Even worse, parents of children with autism have been begging pediatricians for help, with little acknowledgement that there is any possibility of a gut-brain connection in autism. The tide began to turn in January 2010 with Dr. Tim Buie’s consensus report on GI problems in autism (Pediatrics. 2010;125(suppl 1):S1-S18). And now the tide is actually surging in our favor.
This article doesn’t actually support any particular treatments for GI problems in autism, and we are many years away from mainstream medical research coming to fruition in this area. But it is nice to know that mainstream help is on the way, and that if any doctor tries to ridicule parents for asking for help with their child’s GI problems, you now have the AAP on your side. You can waive this article in the doctor’s face. We pediatricians love that. But seriously, the full text of this article will likely become available online soon. You can view the first part of it here: http://pediatrics.aappublications.org/content/130/Supplement_2/S160.extract?cited-by=yes&legid=pediatrics;130/Supplement_2/S160 . If you have an open-minded pediatrician, and need help, hand he or she this article, and you may be able to get your doctor to test and treat some of your child’s GI problems.
As a side note, this same edition of the journal has an article on the importance of evaluating and treating constipation in ASDs. Definitely a good read for your pediatrician if your child struggles with this, and it even suggests testing such kids for thyroid disease, lead overload, and, get this . . . celiac disease! Here’s a link: http://pediatrics.aappublications.org/content/130/Supplement_2/S98.abstract
Thank you AAP!!!
Dr. Bob Sears
Posted by proverbialwisdom | Fri Nov 30, 2012, 01:58 PM (2 replies)
Lawmakers Look into Federal Response to Rising Rates of Autism
VIDEO (~ 4 hours, 2 panels)
Thursday, November 29, 2012
House lawmakers have called on officials from domestic and advocacy groups to testify Thursday about Autism Spectrum Disorders (ASDs). Among the topics they discuss are efforts to increase awareness and understanding of the disease, limited public health resources and public health policy.
According to studies, autism in children appears to be on the rise. "About 0.74 percent of kids had received in autism diagnosis in 2006-2008, up from 0.19 percent in 1997-1999," said Coleen Boyle, director of the U.S. National Center on Birth Defects and Developmental Disabilities. The goal, she said, "is raising awareness of the importance of this as a health problem and one we need to address."
Other witnesses that testify before the House Oversight Committee include Alan Guttmacher, Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development; Bob Wright, Co-Founder of Autism Speaks; Scott Badesch, President of the Autism Society; Bradley McGarry, Coordinator of the Asperger Initiative at Mercyhurst University; Ari Ne'eman, President of Autistic Self Advocacy Network; and other health professionals.
Posted by proverbialwisdom | Fri Nov 30, 2012, 10:04 AM (0 replies)
Posted by proverbialwisdom | Wed Nov 28, 2012, 04:35 PM (0 replies)
Also relevant to locked thread: http://www.democraticunderground.com/1014319676
Talking Points and Frequently Asked Questions for Organizers and Public Speakers
Child Rescue Emergency Campaign
“Not One More Child”
What’s Happening Now
• A national coalition of groups, the Not One More Child Coalition ( http://www.notonemorechild.org/ ), has launched a national campaign for child rescue, kicked off by the release of a new public service ad.
Background: The Crisis
• Law enforcement has identified hundreds of thousands of suspects in the U.S., trafficking in video and images of young children being raped, tortured and sexually abused. These images are often called “child pornography,” but they are actually crime scene photos and child rape videos.
Our Government’s Refusal to Provide First Responders
• Yet, while authorities now know where these child predators are—and in many cases have evidence leading to the doorstep of their victims—less than 2% are even being investigated, due to lack of resources.
Why Declare a State of Emergency?
• Because it IS an emergency, and action cannot wait. Thousands of children are being raped, tortured and sexually exploited right now, and law enforcement knows where they are but is not rescuing them. They need search and rescue underway, immediately!
But isn’t calling for a state of emergency a little extreme or naive?
• Absolutely not. What is naive is believing that Congress or state legislatures will fund law enforcement properly and in time to secure the rescue of hundreds of thousands of children who are being tortured and abused right now.
Other Talking Points:
• This is a fiscally conservative argument. This campaign is not asking for increased funds (although funds absolutely should be). We are asking for states and the federal government to use EXISTING resources.
2011 Crimes Against Children Conference Keynote Elizabeth Smart
Posted by proverbialwisdom | Wed Nov 28, 2012, 04:22 PM (1 replies)
VICTORY! Yesterday our Child Protection Act of 2012 passed Congress. Today it's on its way to President Obama's desk for signing. This was a major bipartisan victory, and a direct result of your support for PROTECT! We especially thank Rep. Lamar Smith (R-TX), Rep. Debbie Wasserman Schultz (D-FL), Sen. Richard Blumenthal (D-CT) and Sen. John Cornyn (R-TX)...
The new law includes several measures that our allies have been trying unsuccessfully to pass for years. Here are the highlights:
• Reauthorizes our PROTECT Our Children Act of 2008 ( http://protect.org/component/content/article/702 ), approving double today's child rescue funding for America's Internet Crimes Against Children (ICAC) task forces. These task forces rescue thousands of children every year
Many Americans just assume that passing laws like this is easy. After all, who's not against child abuse?
But PROTECT members know better...
Exciting news! BTW, VP Biden was the Senate co-sponsor of the PROTECT Our Children Act of 2008.
Posted by proverbialwisdom | Wed Nov 28, 2012, 02:56 PM (0 replies)
Source: By John Cornyn at Nov 28, 2012 8:41 AM
The Senate passed the Child Protection Act of 2012, introduced in the Senate by U.S. Senators John Cornyn (R-Texas) and Richard Blumenthal (D-Conn.).
The bipartisan legislation seeks to protect young victims of child pornography, sexual abuse, and trafficking by strengthening law enforcement’s ability to protect victims and witnesses and apprehend perpetrators. It includes several important anti-human trafficking provisions authored by me and originally included in the Domestic Minor Sex Trafficking Deterrence and Victims Support Act of 2011, legislation I introduced along with Senator Ron Wyden (D-Ore.).The Child Protection Act has now passed both the Senate and House of Representatives and awaits the President’s signature.
We need to provide law enforcement with every tool they need to crack down on the most vile criminals – child sex predators and traffickers – and protect the innocent young people who fall victim to these heinous crimes. This is an issue we can all agree on, and I’m pleased Congress has passed this important measure in a bipartisan fashion. I hope the President will sign this bill swiftly to bring greater justice and protection to victims and allow law enforcement to take immediate steps to stop child predators and traffickers in their tracks.
Read more: http://www.texasgopvote.com/issues/restore-families/senate-passes-cornyn-blumenthal-child-protection-act-2012-004867
Posted by proverbialwisdom | Wed Nov 28, 2012, 02:40 PM (5 replies)
Posted by proverbialwisdom | Wed Nov 28, 2012, 11:56 AM (0 replies)
November 27, 2012
It's More Than a Sex Scandal
Paula Broadwell, Whistleblower
by FRED GARDNER
In Men in Black Tommy Lee Jones and Will Smith make use of a device that erases memory as they save the USA and the whole collateral world. In real life the memory-erasing function is performed by the corporate media and the incessantly twittering culture. “The United States of Amnesia” is what Gore Vidal called us.
Who recalls that Martha Mitchell, the wife of Attorney General John Mitchell, broke the news of Nixon’s involvement in the Watergate break-in when she told a sympathetic female reporter (Helen Thomas) that her husband should not take the rap for The White House? John Mitchell, loyal to Nixon, called his wife a drunken loud-mouthed dame and had her hauled off to a locked facility. Months later Bob Woodward and Carl Bernstein reported that Nixon knew about the break-in in advance, and to this day they’re credited with breaking the story.
Martha Mitchell’s blunt revelation and the way it got ignored comes to mind as we await the follow-up to Paula Broadwell’s assertion that two prisoners were being held at the CIA “annex” near the consulate in Benghazi at the time of the assault that left Ambassador Christopher Stephens and three other Americans dead.
Broadwell was speaking on October 26 at the University of Denver alumni symposium, promoting All In, her biography of Gen. David Petraeus. Proceeds were going to a program that helps wounded veterans hone their physical fitness. In addition to almost 7,000 deaths, some 45,000 Americans have been wounded in Iraq and Afghanistan —”amputees, multiple amputees,” Broadwell reminded the Denver alums— and 450,000 troopers have returned with post-traumatic stress, brain damage, and other disorders not readily apparent.
Posted by proverbialwisdom | Tue Nov 27, 2012, 09:56 PM (1 replies)
Posted by proverbialwisdom | Mon Nov 26, 2012, 11:45 AM (0 replies)