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Member since: Wed Feb 10, 2010, 12:12 PM
Number of posts: 4,053

Journal Archives

No, I want transparency. You want to shut it all down and pretend everything's fine. (nt)

Posted by proverbialwisdom | Thu Mar 12, 2015, 02:53 PM (2 replies)

New Test Leper (REM), Streets of London (Ralph McTell) to just pick a pair.

Posted by proverbialwisdom | Wed Mar 11, 2015, 02:52 PM (0 replies)

That's incorrect. (nt)

Posted by proverbialwisdom | Tue Mar 10, 2015, 12:37 PM (1 replies)

Indeed, Warpy... so I was looking for recent Menendez/autism news on Google and this popped up.

Trust the lack of transparency? Like the self-exoneration? Comfortable and confident? Or looking back will this be worse than the "refrigerator moms" saga?


Advisory Committee to the Board on Federal Affairs (ACBOFA)

Wednesday, January 25, 2015
Elk Grove Village, IL


Page 44
38 CDC “Whistleblower” Controversy

In August, a paper was published in the journal Translational Neurodegeneration, alleging that the Centers for Disease Control and Prevention (CDC) has manipulated data from a study about vaccines and autism entitled, "Age at First Measles-Mumps-Rubella Vaccination in Children with Autism and School-Matched Control Subjects: A Population-Based Study in Metropolitan Atlanta,” that was published in Pediatrics in 2004. The author of the paper, Dr. Brian Hooker, asserted that, based on information from an anonymous tipster from the CDC, proved that the CDC had purposely excluded certain participants from the study in order to achieve a desired outcome in the data.

The paper has since been removed, and the tipster was discovered to be Dr. William W.Thompson, an epidemiologist from CDC, who issued a public statement stating that he felt the paper back in 2004 omitted data that suggested that African American males who received the MMR vaccine before age 36 months were at increased risk for autism. He went on to say that “decisions were made regarding which findings to report after the data were collected, and I believe that the final study protocol was not followed.” He also went on to say that he believes “vaccines have saved and continue to save countless lives. I would never suggest that any parent avoid vaccinating children of any race. Vaccines prevent serious diseases, and the risks associated with their administration are vastly outweighed by their individual and societal benefits.” His main concern was the “decision to omit relevant findings in a particular study for a particular sub group for a particular vaccine. There have always been recognized risks for vaccination and I believe it is the responsibility of the CDC to properly convey the risks associated with receipt of those vaccines.”

Following these revelations, numerous epidemiologists and biostatisticians have stood behind the CDC’s initial data, stating that the exclusion of participants without valid birth certificates was methodologically and scientifically appropriate. In addition, the editors of Pediatrics reviewed the 2004 article and confirmed its findings.

In the wake of the controversy, Congressman Bill Posey (R-FL) has stated that he will take action to “hold the CDC accountable.” Though he has not announced plans at this time, the Department of Federal Affairs is closely monitoring the situation, and is prepared to combat any misinformation that will be disseminated if Congressman Posey holds a hearing or takes other action.
Posted by proverbialwisdom | Sat Mar 7, 2015, 11:02 PM (1 replies)

President Obama Speaks at the Edmund Pettus Bridge

President Obama Speaks at the Edmund Pettus Bridge
Streamed live on Mar 7, 2015

Live from Selma, Alabama. President Obama will speak at the Edmund Pettus Bridge to mark the 50th anniversary of the Selma to Montgomery marches.

The full video will be posted to www.whitehouse.gov/videos momentarily.

TRANSCRIPT (as prepared for delivery): http://theuptake.org/2015/03/07/live-video-obama-speaks-in-selma-to-mark-50th-anniversary-of-civil-rights-march/
Posted by proverbialwisdom | Sat Mar 7, 2015, 04:24 PM (3 replies)

Don't like Blaxill's work? Princeton, Harvard MBA, founding partner 3LP, author, autism dad: SOLID.

Best of all, no agenda but problem solving.


Posted by Age of Autism at April 03, 2015

Mark Blaxill is the father of a daughter diagnosed with autism, Executive Leadership Team Chairman and co-founder of Health Choice, Chairman and co-founder of the Canary Party, Editor-at-Large for Age of Autism and a frequent speaker at autism conferences. He writes often on autism, science and public policy issues for Age of Autism and has published a number of articles, letters and commentaries on autism in journals such as Public Health Reports, the International Journal of Toxicology, the Journal of Autism and Developmental Disorders, Neurotoxicology and Medical Hypotheses. He has also been invited to peer review articles in journals such as the New England Journal of Medicine, the American Journal of Epidemiology, Pediatrics and the International Journal of Toxicology. As part of his advocacy work, he has testified before the Immunization Safety Review of the Institute of Medicine (2001), served on a Blue Ribbon Panel on Vaccine Safety (2004), initiated a symposium sponsored by the National Institute of Environmental Health Sciences entitled “Environmental Factors in Neurodevelopmental Disorders” (2005) and a workshop sponsored by the Institute of Medicine entitled “Autism and the Environment: Challenges and Opportunities for Research” (2007). He was a panelist at a “Meeting on Evaluating Reasons for ASD Trends” co-sponsored by the Centers for Disease Control and Autism Speaks (2011) and at a hearing “1 in 88 Children: A Look Into the Federal Response to Rising Rates of Autism” called by the House of Representatives’ Oversight and Government Reform Committee (2012).

He received a bachelor’s degree summa cum laude from the Woodrow Wilson School of Public and International Affairs at Princeton University and an MBA with distinction from Harvard Business School. In his professional career, he spent 25 years at The Boston Consulting Group, where he was a Senior Vice President. Recently, he co-founded 3LP Advisors, an advisory firm focused on intellectual property transactions, where he is a Managing Partner. He co-authored a book on autism with Dan Olmsted, called The Age of Autism: Mercury, Medicine and a Man-made Epidemic, (Thomas Dunne, September 2010). His new book with Dan, Vaccines 2.0: The Careful Parent’s Guide to Making Safe Vaccination Choices for Your Family (Skyhorse Publishing, February 2015), was released in Febuary.
Posted by proverbialwisdom | Fri Mar 6, 2015, 06:53 PM (1 replies)

I have something serious previously posted for you to check out, in particular, Dr. Insel's remarks.


IACC Meeting (9/23/14): Video excerpt of public comment by parent, Megan Davenhall, with transcript
September 30, 2014

Posted by proverbialwisdom | Thu Mar 5, 2015, 10:56 PM (1 replies)

A multigenerational report of adverse reactions here (link from Twitter).


Former Mooresville child compensated by federal ‘vaccine court’
02/28/2015 5:32 PM 02/28/2015 11:48 PM

Related: http://www.democraticunderground.com/1016115541#post8
Posted by proverbialwisdom | Sun Mar 1, 2015, 04:28 AM (1 replies)

130 new cases of autism are diagnosed in the US each day. Keep provoking meaningless division.


Did You Know?
 1 in 88 children are affected by autism
 1 in 54 boys is on the autism spectrum
 130 children are diagnosed per day
 A new case is diagnosed every 11 minutes
 More children are affected by autism than
diabetes, AIDS, cancer, cerebral palsy, cystic
fibrosis, muscular dystrophy or Down syndrome –
 Autism is the fastest-growing serious
developmental disability in the United States
 Autism costs the nation $126 billion per year
 Autism receives less than 5% of the research
funding of many less prevalent childhood diseases
 Boys are four times more likely than girls to have


It is AMAZING that the CDC can track EVERY damn CASE OF MEASLES in the United States...

OMG 4 more http://www.foxnews.com/health/2015/02/24/4-more-measles-cases-reported-in-california/

I would assume the CDC could also track the 130 NEW CASES of Autism each and every day... and report that to the public.
or perhaps a site needs to be set up for that information.

Posted by: cmo | February 24, 2015 at 01:36 PM/div]
Posted by proverbialwisdom | Sun Mar 1, 2015, 02:48 AM (1 replies)

Individuals with autism and the parents of children with autism are ALL DIRECT STAKEHOLDERS.

Both are sidelined, currently. That can't last.

I read this recently. It reminded me of Kearns' Team of Rivals (title only, haven't read the book):


Autism Policy Reform Coalition: Be a Part of the Solution
Posted on May 15, 2014


It is not well known, but President Barack Obama put together a position paper on autism spectrum disorders back when he was running for president in 2008. That paper promised that

“Obama will appoint a Federal ASD Coordinator to oversee federal ASD research and federal efforts to improve awareness of ASD and improve the training of medical professionals to identify and treat ASD. By establishing one top-level point person to coordinate ASD efforts in the White House, Obama will ensure that ASD receives the recognition and priority it deserves in the federal government. The Federal ASD Coordinator will work also be tasked with eliminating bureaucratic obstacles that may be delaying implementation of important ASD measures and ensuring that all federal ASD dollars are being spent in a manner that prioritizes results. The Coordinator will work with state task forces on ASD to ensure effective communication and collaboration among federal, state, and local agencies.”

The APRC believes that a similar model to that described above would be the best possible way to make federal autism policy accountable and effective. We request that an Office of National Autism Policy be established, with a Director who is appointed by the President, directly accountable to Congress for results, and advised by a committee comprised substantially of stakeholders who would drive policy. National autism policy needs to be centralized and streamlined in order to effect change. Many people say that Congress won’t consider such a thing because “other diseases” don’t get the same treatment, but “other diseases” don’t affect 2% of the country’s 10-year-olds and are not associated with “bizarre” behavior patterns that make interacting with people in law enforcement, educational settings, group housing, and the work place problematic.


You want solutions? Reallocate the power.
Posted by proverbialwisdom | Sat Feb 28, 2015, 04:12 PM (1 replies)
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