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Member since: Wed Feb 10, 2010, 12:12 PM
Number of posts: 2,835

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More links from Dr. Martha Herbert.

Martha Herbert ‏@marthaherbertmd Feb 20
MT - Beyond Hopelessness: Autism as a complex, chronic, whole-body disorder (not a permanent, brain-based trait)

Retweeted by Autism Revolution
Healthy U NOW ‏@HUNFoundation May 15
New detailed article on diet and autism in Journal of Child Neurology- by Drs. Martha Herbert and Julie Buckley! pic.twitter.com/2poXsb3TIJ

Retweeted by Autism Revolution
Martha Herbert ‏@marthaherbertmd 25 Jul 2012
Synapses, glial cells, brain energy & more: all highly environmentally vulnerable–to many things. #ASD @marthaherbertmd @AutismRevolutio

Retweeted by Autism Revolution
Martha Herbert ‏@marthaherbertmd 25 Jul 2012
Probably won’t find a single enviro culprit for #autism – many env agents, fewer physiological pathways. @AutismRevolutio @marthaherbertmd


Public release date: 15-Jan-2013
NIH/National Institute of Mental Health

Study documents that some children lose autism diagnosis

Small group with confirmed autism now on par with mainstream peers -- NIH-funded study

Some children who are accurately diagnosed in early childhood with autism lose the symptoms and the diagnosis as they grow older, a study supported by the National Institutes of Health has confirmed. The research team made the finding by carefully documenting a prior diagnosis of autism in a small group of school-age children and young adults with no current symptoms of the disorder.

The report is the first of a series that will probe more deeply into the nature of the change in these children's status. Having been diagnosed at one time with an autism spectrum disorder (ASD), these young people now appear to be on par with typically developing peers. The study team is continuing to analyze data on changes in brain function in these children and whether they have subtle residual social deficits. The team is also reviewing records on the types of interventions the children received, and to what extent they may have played a role in the transition.

"Although the diagnosis of autism is not usually lost over time, the findings suggest that there is a very wide range of possible outcomes," said NIMH Director Thomas R. Insel, M.D. "For an individual child, the outcome may be knowable only with time and after some years of intervention. Subsequent reports from this study should tell us more about the nature of autism and the role of therapy and other factors in the long term outcome for these children."

The study, led by Deborah Fein, Ph.D., at the University of Connecticut, Storrs, recruited 34 optimal outcome children, who had received a diagnosis of autism in early life and were now reportedly functioning no differently than their mainstream peers. For comparison, the 34 children were matched by age, sex, and nonverbal IQ with 44 children with high-functioning autism, and 34 typically developing peers. Participants ranged in age from 8 to 21 years old.


Link from: https://www.facebook.com/TheAutismRevolution

Dr. Martha Herbert is an Assistant Professor of Neurology at Harvard Medical School, a Pediatric Neurologist at the Massachusetts General Hospital in Boston, and an affiliate of the Harvard-MIT-MGH Martinos Center for Biomedical Imaging, where she is director of the TRANSCEND Research Program (Treatment Research and Neuroscience Evaluation of Neurodevelopmental Disorders). The author of The Autism Revolution: Whole Body Strategies for Making Life All it Can Be, Dr. Herbert is a leading voice in the medical community, helping to bridge the gap between the lagging medical science and the reality of what she was actually seeing in her patients.

Posted by proverbialwisdom | Sat Mar 15, 2014, 10:18 PM (1 replies)

Study suggests potential association between soy formula and seizures in children with autism.


Study suggests potential association between soy formula and seizures in children with autism

March 13, 2014 by David Tenenbaum

A University of Wisconsin-Madison researcher has detected a higher rate of seizures among children with autism who were fed infant formula containing soy protein rather than milk protein.

The study found excess seizures among girls and in the total sample of 1,949 children. The soy-seizure link reached borderline significance among boys, who comprised 87 percent of the children described in the database under study.

Seizures — caused by uncontrolled electrical currents in the brain — occur in many neurological disorders including epilepsy, Alzheimer's disease, Down syndrome and autism.

About 25 percent of infant formula sold in the United States is based on soy protein.

Study author Cara Westmark, a senior scientist in the UW-Madison Department of Neurology, says her investigation was sparked by mouse studies of a drug that, it was hoped, would inhibit seizures by blocking signals that excite nerve cells. "It was pure serendipity that we happened to look at soy," she says.

Posted by proverbialwisdom | Sat Mar 15, 2014, 03:15 PM (2 replies)

Discussion continued.

LOCKED: http://www.democraticunderground.com/1014756282

8. New study says _____ MAY be caused by _______________.

fill in the blanks. There are lots of studies that suggest lots of things.

This one is a good example. What it is saying is a condition may be caused by poison. You think?

REPLY: I wouldn't presume to vet the science a) myself or b) via anonymous posters on some internet forum.

This breakthrough publication by scientists from University of Chicago at Illinois, Stanford University, and the University of Chicago exploring environmental factors involved in the etiology of autism (by examining records of a population of 100,000,000) indicates a promising direction in research. Of course, some will oppose this on principle preferring exclusive focus on genetics, although that has not panned out particularly and cannot explain the dramatic increase in prevalence (wait for the April 2014 CDC update on NJ to 1:32, as described during the 1/2014 IACC meeting).

Coupled with absent US media coverage, these researchers are already being disparaged personally here: http://scienceblogs.com/insolence/2014/03/14/autism-clusters-and-toxins/

OTOH, this great article by Katie Wright.


Katie Wright on Autism Speaks' Science Department: A Year in Review
By Katie Wright
Posted by Age of Autism at January 08, 2014

Part 1

Almost a year ago Dr. Rob Ring became Autism Speaks new Chief Scientific Officer. I was told that this would be a new era at AS science. Dr. Ring would be introducing more innovative, original research, reducing the amount of learn the signs studies and prioritizing underserved, severely affected people, biomedical interventions and meaningful here and now treatment for all. Sounds good right?

Well first the good news. AS funded an excellent $120,000 study on wandering prevention and another really terrific study on vocational training for young ASD adults. Earlier this year, thanks the very dedicated work of an AS board member, AS also funded a highly innovative study on $100,000 study on PANDAS. .

I allowed the entire year of 2013 to pass without any public comment because I wanted to give Dr. Ring the opportunity to follow through with his proposed reforms. However, we are now eight months into Dr. Ring’s tenure, looking at the most recent slate of grants, the third grant cycle under Dr. Ring’s authority. These grants are largely disappointing and so painfully conservative in nature that I cannot remain silent. I have tried, very hard, behind the scenes, for years, to lobby for better research. No one at AS science is listening. Our ASD children and young adults deserve so much better.

In 2013 virtually ALL the Weatherstone Predoctoral Fellowships were either genetic, early intervention or brain imaging in nature. It is my understanding that Weatherstone was intended to draw innovative young investigators into the field of autism, with special emphasis on the GAP areas in ASD research. AS has saturated the field early intervention and learn the signs research with money. There is absolutely no need to continue to subsidize growth in this area. To a large degree the same problem applies towards the fields of genetics and brain imaging.

Imagine if the NIH were to subsidize more research into the dangers of smoking cigarettes, which is what is happening here.

There are already 1,295 studies on autism and brain imaging/ fMRI and at least 1,000 more in the pipeline. Simons, Cold Springs Harbor and the NIH are MORE than happy to fund this area of research, AS needs to move on. Brain imaging is all about looking at brain inflammation, we need to know what environmental triggers are CAUSING this to happen. There are over 5,000 published studies on autism and genetics. Naturally some genetics research is indeed valuable but why are most AS grants still genetic in nature? Dr Ring knows this is NOT what AS families want. There are 11,000 published studies on the signs of autism. That is e-n-o-u-g-h; there are over 6,000 studies on early intervention. Additionally there are p-l-e-n-t-y of geneticists and brain imagers in the field or autism research. Weatherstone should be subsidizing predoctoral students in the biomedical and environmental sciences fields, neglected by AS and the NIH. Weatherstone could also be supporting researchers to study the biological functions of autism via GI, autoimmune and food allergies. How refreshing that would be!

Let’s take a look a the biggest Autism Speaks grants of 2013: MORE AT LINK.


Katie Wright is Contributing Editor to Age of Autism. (Her parents founded Autism Speaks)

Comments (58)

Posted by proverbialwisdom | Sat Mar 15, 2014, 02:09 PM (0 replies)

Actually, here's explicit validation from GoTeamKate: "Stop Making the Conversation Controversial."


Stop Making the Conversation Controversial

We need autism to be a part of the collective conscience. We need people dialoging all the time about autism. Those of us directly involved do that anyway. We need the others; the elusive and rare untouched among us to start talking. And you know what? When we fight within the community and get hung up on the semantics of it all; we scare them away.

I don't wish to diminish a person's right to be called 'autistic' or a 'person with autism' or a "free lovin' hippie" for that matter. You can choose your moniker in my view and you can relax when someone else chooses theirs. People can be afraid to talk about autism because they are afraid to offend someone. For the sake of the conversation could you allow these differences to live together for now? The divide within the community works against us. This isn't news, right?

I understand the power of language. I understand that words and phrases change meaning. I also understand that when you make the conversation controversial people will decide to stay out of it. They don't feel prepared to talk about it. They've heard or seen someone crucified for forgetting to use person-first language or they're timid to enter the conversation.

Now, I am the first one to call out someone for saying something rude or insensitive (on this blog anyway, because I am too chicken to do that in person) but I feel that we are placing this topic so far out of of reach of the average person when we assign strict and ridged rules to the discussion.

If someone is being kind when they approach the topic then they are doing it right in my book.

More: http://www.democraticunderground.com/10024324593
Posted by proverbialwisdom | Sat Mar 15, 2014, 12:56 PM (1 replies)

How Environmental Toxins Can Cause Autism

Source: By Jeffrey Kopman Published: Mar 13, 2014, 5:00 PM

Environmental factors such as toxins and pesticides can cause severe health problems, especially for pregnant women and fetuses. For male fetuses, the harmful effect of exposure to these toxins work like this: Toxins can cause genital malformations, which are then linked to autism and intellectual disability, according to a study from the University of Chicago published in the journal PLOS Computational Biology.

The analysis looked at 100 million U.S. medical records and examined them at a county level. Autism rates jumped 283 percentage points for every one percent increase in frequency of malformations per county. In total, male children with autism were six times more likely to have genital malformations.

"Autism appears to be strongly correlated with rate of congenital malformations of the genitals in males across the country," said study author Andrey Rzhetsky, Ph.D., professor of genetic medicine and human genetics at the University of Chicago, in a press release. "This gives an indicator of environmental load and the effect is surprisingly strong."

Genital malformations — such as micropenis and undescended testicles — indicate a possible exposure to harmful toxins, including environmental lead, medications and other synthetic molecules. Researchers concluded that the malformations also correlated with an increase in autism rates, therefore demonstrating a link between environmental toxins and autism.

"We interpret the results of this study as a strong environmental signal," Rzhetsky said.

Read more: http://www.weather.com/health/how-environmental-toxins-can-cause-autism-20140313

PHOTO CAPTION: Ways Air Pollution Hurts - Recently, the World Health Organization officially acknowledged air pollution as a carcinogen, and stressed the importance of cleaning up the globe’s air. What are some other health risks of air pollution? Click through to find out. (Thinkstock/Digital Vision)

LINK FROM: http://annedachel.com/2014/03/13/the-weather-channel-vaccines-at-most-they-play-a-very-weak-role/
Posted by proverbialwisdom | Fri Mar 14, 2014, 10:27 AM (9 replies)

Oncologists, pulmonary specialists, worse.

@SenatorBoxer points to oil refineries in Port Arthur, TX that make children stay indoors due to pollution #nokxl pic.twitter.com/AnZDkVll1r


Senators Boxer, Whitehouse Expose Harmful Health Impacts of Tar Sands and Keystone XL Pipeline
Posted by EPWChairmanBoxer

Published on Feb 26, 2014

Senator Barbara Boxer (D-CA), Chairman of the Committee on Environment and Public Works (EPW), and Senator Sheldon Whitehouse (D-RI) held a press conference on Wednesday, February 26th to expose the harmful health implications associated with tar sands oil and the proposed Keystone XL pipeline, which is currently under consideration. Senators Boxer, Whitehouse, doctors and community representatives spoke about the health impacts of tar sands oil on communities across the country. Additional speakers included:

Dr. John O'Connor, MD, Alberta, Canada
Dr. Stuart Batterman, Professor of Environmental Health Sciences, Univ. of Michigan School of Public Health
Hilton Kelley, Founder and CEO, Community In-power & Development Association Inc., Port Arthur, TX
Tom Shepherd, Vice President, Southeast Environmental Task Force, Chicago, IL

12:34 PM - 26 Feb 2014
EPWChairmanBoxer Verified account
Boxer's remarks: The Keystone Pipeline & The Threat to Human Health http://1.usa.gov/1frOvvb . Photo: Hilton Kelley pic.twitter.com/ixoMJHSPvh

Posted by proverbialwisdom | Thu Mar 13, 2014, 09:32 PM (2 replies)

125 Exceptional Twitter Accounts Covering Special Needs


For people with special needs, people who work with them, and especially for educators working with special needs students, community is important. The challenges that come with having a learning disability or other special need are difficult to face alone, and knowing other people who are going through something similar can provide a huge amount of relief and insight. That is what makes Twitter such an amazing platform for anyone with special needs, and those who live with them, work with them, and teach them. The special needs community on Twitter is already vibrant, with dozens to hundreds of accounts by people with:

* Down Syndrome
* Autism Spectrum Disorders
* Cerebral Palsy

Anyone in the special needs community, from special education to coaches, therapists, and even parents of children with special needs, will find valuable information and someone to connect with on Twitter. The accounts in this collection cover many of the most common special needs. They are categorized and listed according to follower count, with a few minor exceptions.



Posted by Age of Autism at March 13, 2014
Age of Autism Named Top 125 Exceptional Twitter Account for Special Needs

Hello Kim

I'm thrilled to announce that PhDinSpecialEducation.com has just published a collection of 125 Exceptional Twitter Accounts Covering Special Needs, and @AgeofAutism is highlighted on it. Feel free to check it out here.

There's a wonderfully supportive and knowledgeable community of Twitter users discussing special needs and special education. We think anyone teaching special ed should join the conversation, and we're hoping this list will make it easier for them to find highly informative accounts such as your own to follow!

We're hoping this article will inspire as many new people as possible to get involved with the online community surrounding special needs and special education. Could you help make that happen by sharing a link to this article through your website, and of course through Twitter as well?

Thanks so much for all you contribute to the online discussion about special needs and let me know if you have any questions at all.

Sarah Paulson
Editorial Team
Posted by proverbialwisdom | Thu Mar 13, 2014, 12:11 PM (2 replies)


Posted by proverbialwisdom | Wed Mar 12, 2014, 01:24 AM (0 replies)

PRESS RELEASE: Earthjustice statement on all-night Senate climate change speeches.


Senators Pull Off All-Nighter for Climate Action #Up4Climate

Earthjustice statement on all-night Senate climate change speeches
MARCH 11, 2014

WASHINGTON, D.C. — — Last night a group of 30 Senators stayed up all night delivering speeches to bring attention to the need for climate action. The Senators began their evening of climate speeches at 6:30 p.m. ET on March 10 and concluded at 9 a.m. ET on March 11. In the 14 hours of #Up4Climate speeches, the Senators discussed climate science, shared stories of climate change impacts on their home states, and stressed solutions and the need to apply American ingenuity and innovation to the problem of climate change.
The following is a statement from Earthjustice Senior Legislative Representative Sarah Saylor:

"We are very grateful that a majority of the Democrats in the U.S. Senate took to the floor throughout the night to highlight the need for action to combat climate change. In particular, we thank those Senators who initiated the #Up4Climate effort, Senator Brian Schatz (D-HI), Sen. Sheldon Whitehouse (D-RI), and Sen. Barbara Boxer (D-CA).

“As we know, every day power plants dump carbon pollution into our atmosphere without limit. That is counter to the purposes of the Clean Air Act, which has proven an effective tool for reducing air pollution.

“The Environmental Protection Agency is currently working on common sense safeguards under current law to keep carbon pollution in check. However, last week, the House of Representatives voted against the steps that the Environmental Protection Agency is taking to cut carbon pollution.

“We are glad to see the Senate is poised to reject that backward-looking approach and instead work toward meeting our shared obligation to future generations to cut carbon pollution and protect our planet."

The following Senators participated:

Majority Leader Harry Reid, D-Nev. (@SenateDems & @SenatorReid)
Senator Dick Durbin, D-Ill. (@SenatorDurbin)
Senator Charles Schumer, D-N.Y. (@SenSchumer)
Senator Patty Murray, D-Wash. (@PattyMurray)
Senator Brian Schatz, D-Hawaii (@BrianSchatz)
Senator Sheldon Whitehouse, D-R.I. (@SenWhitehouse)
Senator Barbara Boxer, D-Calif. (@EPWChairBoxer)
Senator Dianne Feinstein, D-Calif. (@SenFeinstein)
Senator Ron Wyden, D-Ore. (@RonWyden)
Senator Jack Reed, D-R.I. (@SenJackReed)
Senator Bill Nelson, D-Fla. (@SenBillNelson)
Senator Maria Cantwell, D-Wash. (@CantwellPress)
Senator Benjamin L. Cardin, D-Md. (@SenatorCardin)
Senator Bernard Sanders, I-Vt. (@SenSanders)
Senator Amy Klobuchar, D-Minn. (@AmyKlobuchar)
Senator Mark Udall, D-Colo. (@MarkUdall)
Senator Tom Udall, D-N.M. (@SenatorTomUdall)
Senator Jeanne Shaheen, D-N.H. (@SenatorShaheen)
Senator Jeff Merkley, D-Ore. (@SenJeffMerkley)
Senator Kirsten Gillibrand, D-N.Y. (@SenGillibrand)
Senator Al Franken, D-Minn. (@FrankenCommTeam)
Senator Chris Coons, D-Del. (@SenCoonsOffice)
Senator Richard Blumenthal, D-Conn. (@SenBlumenthal)
Senator Chris Murphy, D-Conn. (@ChrisMurphyCT)
Senator Martin Heinrich, D-N.M. (@MartinHeinrich)
Senator Angus King, I-Maine (@SenAngusKing)
Senator Tim Kaine, D-Va. (@SenKaineOffice)
Senator Elizabeth Warren, D-Mass. (@SenWarren)
Senator Edward J. Markey, D-Mass. (@MarkeyMemo)
Senator Cory Booker, D-N.J. (@CoryBooker & @SenBookerOfc)

Watching it was clear that not all senators are equally deserving of support for their views on #Up4Climate .
Posted by proverbialwisdom | Tue Mar 11, 2014, 11:05 AM (0 replies)


The White House ‏@WhiteHouse 18m
RT if you agree: For the sake of our kids & the future of our planet, it's time to #ActOnClimate change. #Up4Climate pic.twitter.com/wCJHkCMtXV

Posted by proverbialwisdom | Mon Mar 10, 2014, 08:18 PM (0 replies)
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