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LiberalLoner

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Member since: Fri Nov 20, 2009, 01:17 PM
Number of posts: 5,933

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I want an orange tshirt that says that!

Treatment will have to wait until doc comes back, she is away right now. I am leaning towards Copaxone.

NMO is like MS only more severe and usually fatal within a decade.

Only MS, NMO came back negative!

I know there is a 30% false negative on that test but I'm still so very relieved! MS isn't the greatest disease to have but it's better than NMO so today I am very relieved.

Thank you. I will try to be patient! This last relapse (last week) was just excruciatingly

Painful. The only way I got through it was by taking dilaudid I had left over from a previous surgery. And now I have no more dilaudid left so if the pain comes back I will have to go to the ER. And since they do not give out painkillers other than Tylenol or Motrin at military ERs, the only way Id get pain control is to be admitted to the hospital.

And I already went through that two years ago when I had my first bad bout with this crap. Because I had an implanted device at that time (which I have since had removed, long story) they could not do an MRI. So they misdiagnosed me with GBS instead and stuck me in neuro ICU for ten days. Fun fun fun. But they did at least give me painkillers for the excruciating back pain.

I'm just tired of being blown off, misdiagnosed, tested, tested, tested, with no idea of when I will finally get some help. But I will try to be patient for just a fewmoreweeks at least....

Thank you. My spinal tap showed oligoclonal bands consistent with MS,

My symptoms and signs are just about too numerous to list...significant ones are abnormal gait and leg weakness, blurry vision consistent with ON, positive babinskis, absent Achilles' tendon reflex, hyperreflexia of my knees.

MRI showed a very large lesion on my thoracic spine (covering several vertabrae) and a couple of small ones in my brain.

Yeah, everything is going to sh*t because of the R's. it's like they WANT to create hell on earth for all non-billionaires.

I'm just tired of these relapses. This last one, my back hurt so bad I almost passed out when I sat on the toilet. I'm guessing there is another lesion on my spine now.

My PCP called me to give me a referral for a colonoscopy (weird, they must really want me to have one for some reason?) and I can only assume that was on behest of the neuro although I don't know why that would be part of the diagnostic process.

Ps they took blood for NMO test 5 weeks ago now....shouldn't I have the results by now???!!!!

Pps the neuro did say that I absolutely DO have a demylenating disease of the CNS...they just need to figure out which one it is before I can get treatment....

Just an update

Still waiting for an answer from my neuro about test for NMO. Have been reading up on MS and I am certain From my symptoms it's MS.

My husband will call the neuro next week to get an update. He is active duty and therefore gets more respect and action than me, since I am only a dependent.

In the meantime I am just getting over another bad relapse (my third in three months) and now I have bad headaches all the time, my whole body jerks me awake at night several times as I'm trying to sleep, and my right leg is really messed up now, to the point where I need a walker to walk more than short distances and I do not feel I can drive safely.

Really hoping my doctor decides for sure what I've got and helps me, before I end up paralyzed, bedridden and on a ventilator.

And one more song. This one never fails to leave me in tears.

Posted by LiberalLoner | Tue Apr 9, 2013, 04:52 PM (0 replies)

Dedicated to all who served in Vietnam.



Posted by LiberalLoner | Mon Apr 8, 2013, 01:19 PM (3 replies)

I decided to be honest on the MFO Facebook page about what happened to me

A couple of guys very quickly reposted their photos to keep it from being on top of the feed. No comments, no likes. Exactly what I expected. My heart is still pounding. Can't believe how scary it was to tell the truth of the rape. I'm glad I did it though. Maybe more females who served there will come forward too.

+1, beautiful post...there is so much rage and

As a woman it frightens me how strong the movement to put us women "in our places" has become.

I remember an Air Force Major General (now retired) forcing his staff to read an article talking about how not enough white babies are being born and how we must fight against that by eliminating contraception for females. It went on to point out the relationship between education of women and low birth rates and suggested we should eliminate education for women, similar to the way it was once illegal to teach black people to read.

The fact that this stuff is so open and so very popular, chills my blood. I hope we can fight against it but look at some of the posts even here and you will understand why I am so pessimistic.

I remember when I first learned about prejudism.

I was in 3rd grade in Alexandria Virginia. The teacher told us about how some people thought other people with darker skin weren't as good. I actually burst out laughing because the idea of that was so ridiculous to me that I thought the teacher was pulling our legs and joking.

I didn't get it because white privilege protected me from knowing about racism.

I wonder how many, many things I don't get even to this day and probably wont ever get because I have white privilege. I suck. I don't want to suck but I do.

I probably shouldn't even be posting because what could I possibly say of any value?
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