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slipslidingaway

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Member since: Tue Nov 30, 2004, 07:08 PM
Number of posts: 18,851

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Under the ACA when does this take effect where you cannot be denied disability insurance ...

for a pre-existing condition? I never knew this extended to disability insurance under the ACA and we're going through this now.

"...But Obama’s mother had full coverage for the disease — her battle was to get disability insurance payments for her out-of-pocket expenses — according to “A Singular Woman,” a biography of Dunham by Janny Scott, who covered the campaign as a reporter for the New York Times."



Posted by slipslidingaway | Fri Jun 29, 2012, 10:00 AM (0 replies)

Now everyone's asking, "What is MDS?"

via email from AAMDS.

"It’s likely you have now heard that a well-known television personality – Robin Roberts, anchor of Good Morning America – has publicly announced that she has been diagnosed with MDS. The news is on TV, in the papers, Web sites, blogs, and coursing through social media.

...At AAMDISIF, we know that even though the diagnosis of a well-known person can call extra attention to a rare disease, after a while the story subsides and fades from prominence. We encourage you to take this current opportunity to bring up the story to others, in person and online – and be ready to refer them to www.AAMDS.org..."

http://www.aamds.org/mds-news

"What Can You Do?

•Donate blood
•Donate platelets
•Sign up for the bone marrow registry
•More ways to get involved"

http://www.aamds.org/about/MDS/treatment/transplantation

A little over two years ago my husband was diagnosed with MDS which rapidly progressed to AML and he had a stem cell transplant in October of 2010.

Rep. Matsui, whose husband died of complications from MDS, has been lobbying for increased research funding.
https://www.aamds.org/sites/default/files/MatsuiElectronicDearColleague.pdf

"Dear Colleague:

Please join me in sending the attached letter to the House Appropriations Subcommittee on Defense in support of additional programmatic funding for research into bone marrow failure disorders. Since 2008, the Bone Marrow Failure Disease Research Program at the Department of Defense has funded cutting edge research into myelodysplastic syndromes (MDS), aplastic anemia, and paroxysmal nocturnal hemoglobinuria (PNH), all of which occur when stem cells inside the bone marrow stop making enough healthy blood cells. In the past five fiscal years, Congress has appropriated nearly $17 million for research into bone marrow failure diseases. This research is increasingly important to the U.S. Armed Services, as recent data indicate that service personnel who were deployed to Iraq or Afghanistan may have been exposed to environmental factors associated with bone marrow failure diseases.

Bone marrow failure diseases can strike any person of any age, of any gender and any race, in any neighborhood, anywhere in the world. They are life-threatening diseases that currently affect tens of thousands of men, women, and children every year. By studying Armed Forces personnel who have been diagnosed with these conditions, we can gain a much better understanding not only of what causes bone marrow failure diseases, but also of how to protect our troops - and the general public - in the future.

We are committed to finding cures for these tragic illnesses, and we request your support to ensure that the fiscal year 2013 Defense Department appropriations bill provides a continuation of funding for the Bone Marrow Failure Disease Research Program..."



Posted by slipslidingaway | Fri Jun 15, 2012, 09:14 PM (6 replies)
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