Survey on the Good and Meaningful Life

what happens when you've collected all the surveys?

I forgot to add the byline.

So, did you unplug?

Doing anything on facebook sends anyone's personal information--demographics, psychographics, anything linkable to a database, which includes EVERYTHING-- to anyone, marketer, insurance group, political analcyst, etc., willing to pay for it. So why should anyone give up any information to any corporation, especially those hiding behind the tax-free cloak of religion, with goals that are more than likely nefarious and certainly not in the interests of anyone not indoctrinated into whatever belief system wants the data?

'Scuse me, but, based on just about every post I've seen from you, I don't believe you have our interests at heart, but, rather, expect to prophet from us.

So, no.

Based on this post alone, I don't believe you are particularly fact-based.

(Aside - I have heard rug called many things, but never a prophet, lol)

but to sign up. No options, of course, but to close the tab and dump yourself out of it. Further it has nothing whatsoever to do with religion. This is a Lounge post.

Why did you post that here?

A. Do you think it will mean that you're living a better life?

or

B. You're just fucking with people.

D. Some of these choices are based on religious beliefs.

E. Your reply says more than if you had actually looked at and answered the 21 questions.

an information collection page with no exit point. That's surveymonkey.com's business model. You give them information and then they sell it to spammers.

The questions were moderately interesting, but the process of taking the survey is unrewarding...unless you're surveymonkey.

http://www.blogger.com/email-post.g?blogID=8310450667755637519&postID=1611368347037586438

It seems she is collecting the data confidentially until she tabulates the results. I suspect she doesn't want to skew the results by discussing it beforehand. I can't imagine why she'd not release or discuss the results when she's done.

I'm not looking for myself because survey monkey surveys automatically collect the IP addresses of everyone who takes the survey and I'd rather not do that.

1. Was there an informed consent form involved?

2. If so, did the consent form state that this protocol was reviewed by an IRB?

"subjects" are involved.

Edited to add that pretty much all sites collect your IP data, including DU.

And an IRB would be required of any professor at a university complying with 45cfr46.

http://www.hhs.gov/ohrp/humansubjects/guidance/45cfr46.html#46.103

Yes, almost all sites do collect IPs, but I go to sites I trust, like DU or the Dept Of Health and Human Services.

They apply to studies in which there is an intervention:



Anonymous surveys do not include an intervention and do not require consent or IRB approval.

The involvement of human subjects occurs when there is intervention or interaction and a survey is most definitely interaction. And IP addresses are generally considered identifying information.



Now I will admit that that surveys may be exempted from review but that is generally determined by the iRB chair (or expedited reviewer) and still should have an informed consent form. The lack of informed consent form in this case shows why IRB review is necessary.

This one would likely qualify as an expedited review if I were to make the decision.

required either consent or IRB approval. The tool only collects data. There isn't even any feedback, let along interaction.

What would you be consenting to?

Potential human participants would be consenting to participating in the study. The informed consent form would describe the study, that there are no more than minimal risk involved, length of time to completion, that they can withdraw from the study and withdraw their data, that their participation is voluntary, that they will not receive an financial benefit, etc., and, most importantly, contact names and numbers of the researcher and IRB chair for questions.

This is all very typical.

I never, ever saw a survey like this come before the committee. There were research tools which involved interviews that came before IRB, but never a survey.

Should hospital or university administrations be subject to IRB approval when they are doing satisfaction surveys? Should studies done in hospitals that require only the collection of data (like infection rates) be subject to this as well?

If you are involved in an overly cautious institution that requires informed consent and IRB approval for something like this, then that is your experience, but I have just never seen that before.

A study like this wouldn't have to come before a full committee. Unless you were IRB chair you might not see them at all.

An IRB chair may decide a protocol is exempt from further review (which this survey likely might be), sending it to one reviewer for expedited review (maybe in this case), or to a full committee (unlikely in this case).

But even if it is exempted from further review the study should still follow basic ethical practices such as informed consent. Typically in survey monkey a researcher has a page devoted to the usual topics in any informed consent form and the participant has to check a box that they read the form and understood.

I've done survey research at four different universities and this typical. It doesn't surprise me that someone involved with a hospital IRBs discount the risk involved with surveys considering the physical risk involved in many medical studies, but the institution still has responsibilities to review all research.

Program evaluation (includes customer service surveys) might be subject to IRB approval depending on the content, but the Common Rule specifically allows them to be exempted from review.

caution and ask the IRB chair to review to see if they needed further approval. Much of that would have happened out of my sight.

We had much bigger problems with some arrogant physicians who didn't think they needed anybody to approve anything. Our other areas of difficulty were with pharmaceutical and medical device companies wanting to skirt the rules as well.

So surveys? They just didn't mean much.

It's been nice talking with you about this. I learned some things I didn't know and came to see your perspective.

Thanks.

And thank you for your service on IRBs.

22. Would you take a survey without an informed consent form?

Its a matter of ethics.