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mopinko

(69,806 posts)
Mon Oct 20, 2014, 06:17 PM Oct 2014

mitochondrial autonomic dysfunction.

well, my little girl, 21yo, may have found the answer to her many head scratching medical problems. the doc, wisely, has refused to tell her what he is looking at, but from what he did tell her, it looks like this is what they are testing for.
she gets the final round of tests on friday.

this, of course, answers all of my head scratching questions. he told her i def have it if she does.
and her sister, too, who has a somewhat different set of bizarro symptoms.
and at least one of my sisters.

my mom must have had it too. she was pretty healthy and strong all her life, but had at least one symptom that fits this, an occasional complete, fairly violent, emptying of her entire digestive system.

doc says i probably have a more latent version, but i intend to go see the same doc, and i'm thinking by the time i get done with him, he will take back that latent thing.

no treatment, no cure. i am sure the joy of finding the right answer will be short lived.

anyone else have this?

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