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Wed Jul 11, 2012, 04:07 PM

Brenham boy’s death impacts legislation

President Barack Obama signed legislation providing incentives for pharmaceutical companies to develop new drugs for rare pediatric diseases on Monday, and it’s in part thanks to a little Brenham boy.

In January 2003, Donna and Tim Culliver’s 4-year-old son Adam died within four hours of being diagnosed with a rare form of leukemia. Adam got sick around 5 p.m. and was dead later that night, the father said.

<<snip>>

Since Adam’s death, the Brenham residents have traveled to Washington, D.C., twice a year to meet with members of Congress about funding for pediatric drugs. That is where they met Rep. Michael McCaul, R-Austin, and his wife and shared their story.

McCaul introduced the Creating Hope Act of 2011 after being affected by the many stories he’s heard and children he’s met. His wife Linda serves on the board at M.D. Anderson Cancer Center.

http://www.theeagle.com/article/20120711/BC0101/120719968/1142

This was a bi-partisan bill introduced by McCaul and G. K. Butterfield (D-NC). While I am not fond of McCaul's politics, this is a great story of what can happen after the bickering stops in Congress. Our country would benefit so much if our representatives cooperated.

Some of the comments to the article are also interesting.

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Reply Brenham boy’s death impacts legislation (Original post)
TexasTowelie Jul 2012 OP
sonias Jul 2012 #1

Response to TexasTowelie (Original post)

Wed Jul 11, 2012, 05:58 PM

1. Wow McCaaul actually supported something worthwhile

“We haven’t had a drug developed since the 1980s, which I think is shameful,” McCaul said.


But of course McCaul is against the Affordable Care Act (aka Obamacare) which would provide millions of children with health care.

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