lounge vibes for my kiddo, please

[mopinko]

at the mayo clinic trying to find answers to the many issues that have dogged her since her dx with chron's disease 10 years ago, at age 9. so many pain problems, unusual symptoms, and bad med reaction. oh, and callous doctors.
everyone here seems extremely caring and professional, and she is feeling good about it in spite of the grueling tests she is going through.
right now she is getting a colonoscopy and endoscopy. tomorrow we get results.
more than anything she wants answers. my shaking fingers are crossed.

[CaliforniaPeggy]

1. ...

[frogmarch]

2. Mayo Clinic doctors are

among the best in the world, and they'll surely be able to help your daughter, mopinko.

Sending good vibes for you and yours.

[riderinthestorm]

3. (((((((vibes of knowledge and strength))))) to your daughter and the Mayo docs!

Keep us posted

[nolabear]

4. Sending good wishes and healing vibes.

What a lot to go through. I'm glad she has you to help her. Best to you all.

[mopinko]

5. man they r fast

less than an hour and done.
results tomorrow.
thanks all.

[fizzgig]

6. keeping my fingers crossed

for you and the kiddo.

i hope they're able to find some answers

[MiddleFingerMom]

7. Vibes for your girl (and all involved).

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[VenusRising]

8. Sending good vibes for your daughter and you.

I can't imagine how difficult it is to watch someone you love in pain.

I sincerely hope they can find answers for you both.

[applegrove]

9. Vibes.

[sharp_stick]

10. I really hope that answers are forthcoming

the people at Mayo are fantastic.

[angstlessk]

11. How terribly trying that must be for a parent to see a child in pain...

I hope Mayo has the answer for her and you...You've got my vibes for sure...wish I could offer more.

[hedgehog]

12. Here's hoping for good news.

[lillypaddle]

13. this is a nasty disease

My sister and nephew have it. Good luck to your kiddo, and the entire family.

[bluesbassman]

14. Vibes going out mopinko.

Here's to some solid answers and a positive course to move forward on.

[denbot]

15. Big vibes for your Kiddo..

You are in world class hands at the Mayo..
Peace

[mopinko]

16. worst is over. no more tests.

gonna go get some actual food now that there is no more fasting or other bs.
hopeful about results but also just really curious about how the great mayo clinic works and whether we will get some mayo magic. don't know what all blood work they did, but they took a jillion tubes. most of it the normal, but they will be testing for a lot of autoimmune stuff that hasn't been tested yet.
well, will let you know tomorrow afternoon.

[elleng]

17. **VIBING** for both of you, mop.

Glad to hear of the positive atmosphere there.

[femmocrat]

18. Sending mopinko-kid best vibes.

And a couple of hugs Hope she feels better soon.

[TuxedoKat]

19. Best wishes

hope you get some answers and a treatment plan. (((HUGS)))

[HopeHoops]

20. Good luck.

[irisblue]

21. (((VIBES)))

I've had a colonscopy and endoscopy, even my being in good health, they suck. Strong wishes for your baby girl, and her parents. Chrones is awful

[mopinko]

22. well, a little new info, but not a whole lot of help.

sigh. the good news is that she doesn't have celiac, which we were afraid of. confirmed that she is having low motility, which is causing her trouble. but the chron's itself is quiet. still waiting for biopsy results, but mostly she looked good.
she does have some arthritis that is probably related to the chron's, and the cause of some of her pain problems. that is welcome info. not much to be done about it, besides pt to strengthen the associated muscles. sucks to have that kind of deterioration at her age.
a few weird but innocuous incidental findings that will bug her i am sure. i know that sort of stuff bugs me.

all in all, at least it is good to know where you are. we were hoping for more of a plan, but she will take the info back to the pain doc, and hopefully they can form a better plan from it.


thanks for all the good vibes. i showed her this thread and it made her smile.

[elleng]

24. Glad SOME things resolved positively,

sorry not everything, but you're on the road.

Best to both of you.

[Denninmi]

23. Oh, I'm sorry to hear about her illness.

I hope she will be ok.

[Smilo]

25. Strong positive

vibes coming your way.

Fingers crossed for you both.

[Odin2005]

26. UGH, Chron's sucks!

[Angry Dragon]

27. ..........

[Fridays Child]

28. Has she been tested for enteropathic arthritis?

Here's a link for you. It's just one of a number of disorders called spondyloarthropathy.

Best of luck to your daughter and to you in finding the answers you need. I know from experience with my children how frustrating it is to get a proper diagnosis.

[mopinko]

34. trying to get her to see a rheumie.

i have fibro, as does she. she goes to the rehab institute for that. she sees them the end of the month. i am hoping this leads them to do some looking. she is too young to have her pelvis and spine deteriorating. aarrgghhh.

[Fridays Child]

37. My son's ankylosing spondylitis probably began in high school.

But he wasn't diagnosed until the age of 29, when the heads of his femurs had collapsed in on themselves and pushed through their sockets. He required two hip replacements. His spine was also partially fused by that time, as were his sacroiliac joints. Years of misdiagnoses, years of worsening pain dismissed as minor arthritis took their toll. It took losing the ability to walk to finally get a correct diagnosis. Now, the same disorder is suspected in my daughter, who just turned 18. She'll be getting an MRI with contrast, later this month, hopefully. She also has fibromyalgia and is in constant pain. She has the genetic marker for spondyloarthropathy. We'll see whether her sacroiliac joints are inflamed and/or beginning to fuse. I hope not.

Hang in there. Good vibes to your daughter.

[mopinko]

39. they did do blood tests for that, but

yeah, exercise is not an adequate answer as far as i am concerned. may put her on a plane back there to see rheumie, will see.
been through a ton of similar stuff myself. it sucks.

[blueamy66]

29. vibes coming your way

oh and to your daughter as well

[Tsiyu]

30. kicking for update and continued support

Hope your baby is comfortable and feeling good about defeating whatever is hurting her.

Hope you are keeping it together, too.

[GoCubsGo]

31. Sending good vibes.

[otherone]

32. my thoughts and prayers are with you my friend

peace..

[mopinko]

36. thanks and welcome to du.

you will find a lot of friends here.

[Kaleva]

33. Vibes to your daughter and family!

[mopinko]

35. thank you all so much.

it made me feel so much better, and helped her also. so frustrating to not have answers, especially now. but glad that her chron's is quiet, at least. and that we have some clues about the pain.
and the things that were ruled out made us both very happy. so, more answers and fewer questions would be been better, but it was worth the trip, i think.

again, thanks so much to all.

[Rhiannon12866]

38. Oh, mo, my heart goes out to you and your daughter...

I know what it's like to be chronically ill and how discouraging that can be. It took me three surgeries (two at Mass General in Boston) to finally get well. Sounds like you finally found the right place for your daughter. Hoping so much that you fine a solution for her and a return to good health...